Looking After Yourselves
Feeding Your Baby
Your Baby's Development
Dont be afraid to involve your children as soon
as possible. Its OK to show them you hurt - they realise
Tell your children in an honest and
open way. They may not understand or remember all the information,
so follow their lead, keep listening and answer their questions.
Your children will follow your lead.
If you treat the Down syndrome as just one aspect of your babys
life, your children will too.
You could read the Welcoming your baby leaflet
together or a specially written book.
You could say something like
Mummy and daddy are sad because we wanted a baby like
most other babies and our baby has Down syndrome.
Follow your childrens lead in
deciding what else to tell them. You may want to cover things
Its not your fault the baby has Down syndrome.
Babies with Down syndrome find it hard to learn new things.
The baby will always have Down syndrome.
You cant catch Down syndrome.
Brothers and sisters are very important to a baby.
We love you very much and we love the baby too.
Telling family and friends can be very hard. Only you
know when and how it is best to tell other people.
Sometimes you need to tell close friends or family so
you have someone to cry with.
Sometimes it is easier to tell the most gossipy of your
friends and ask them to pass the information around so that
people know before they talk to you.
Sometimes it is best to wait until you have come to terms
with the news yourself and are able to cope with the other persons
Give your family and friends copies
of the NZDSA leaflets Welcoming your baby and I
dont know what to say. You can get extra copies
by phoning 0800 NZDSAI (0800 693724).
You may find you are very sensitive
to people you meet when you are out and about.
Sometimes you may not be sure if other people realise
your baby has Down syndrome. You can choose whether or not to
Only you can decide how much of your babys story
to tell someone and which words to use.
Sometimes family, friends and people
you meet say very insensitive and hurtful things. Try to ignore
these comments. They are often based on misunderstandings.
People will follow your lead. If you
are open, honest and positive about Down syndrome, they will