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X-WR-CALDESC:Events for New Zealand Down Syndrome Association (NZDSA)
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DTSTART;TZID=Pacific/Auckland:20241004T160000
DTEND;TZID=Pacific/Auckland:20241004T170000
DTSTAMP:20260501T040817
CREATED:20240926T081357Z
LAST-MODIFIED:20241003T013144Z
UID:14575-1728057600-1728061200@nzdsa.org.nz
SUMMARY:Hogwarts in our home
DESCRIPTION:Register here
URL:https://nzdsa.org.nz/event/hogwarts-in-our-home/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20241003T193000
DTEND;TZID=Pacific/Auckland:20241003T213000
DTSTAMP:20260501T040817
CREATED:20240926T075015Z
LAST-MODIFIED:20240926T081119Z
UID:14562-1727983800-1727991000@nzdsa.org.nz
SUMMARY:Assume I Can. Parents’ Journeys: Creating a Good Life for Their Children
DESCRIPTION:This panel features parents sharing their experiences in striving to create a good life for their children. They will discuss the challenges they’ve faced\, the strategies that have supported them\, and the sources of resilience that have helped them persevere. This discussion aims to provide inspiration and ractical advice for parents facing their own challenges and to foster a supportive community of shared experiences and collective wisdom. \n			\n			\n				\n				\n				\n				\n			\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n					Angelique van der Velden\n					\n					I wear many hats. I have a background in Education (music\, economics and special ed)\, and I am a qualified communication therapist (use music\, colour\, movement and drama). My son Luka has Down Syndrome and he has big ideas about what he wishes to achieve and how he wants to live. I often feel I should take a leaf out of his book. He lives life like Aquaman – nothing is impossible and his life is rich and full. \nWhat does the future hold? I watch the world with wonder and hope for the best. \n					\n				\n			\n			\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n					Dr Carey-Ann Morrison\n					\n					Dr Carey-Ann Morrison is the Chief Disability Advisor in Commissioning at Health New Zealand Te Whatu Ora. She joined Te Whatu Ora in February 2024 following 10 years working in the community/NGO space. Most recently\, she was the Chief Executive of SAMS and was a member of the National Enabling Good Lives Leadership Group. She also holds an honorary position at the University of Waikato. Underpinning her work is a commitment to prioritising the voice and self-determination of disabled people and their families as experts on their own lives and community needs. Carey-Ann is a proud parent to a young disabled son. \n					\n				\n			\n			\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n					Dr Gretchen Good\n					\n					Gretchen Good\, PhD\, is Mum to two high school-aged children who live with Down syndrome.  She is a certified Orientation and Mobility Specialist and Vision Rehabilitation Therapist.  Gretchen’s research platform is related to disability advocacy\, inclusion and access; disability and disasters; and disability and mothering. \n					\n				\n			\n			\n				\n				\n				\n				\n			\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n					James Lonsdale\n					\n					Hi\, I’m James Lonsdale – father to 3 kids\, the eldest\, Hannah has Downs Syndrome. We have lived in Christchurch for all of Hannah’s life apart from 2 years when we lived in Toulouse\, France  Hannah was aged 11 – 13. I enjoy the outdoors and try to drag Hannah out when I can. We have a tandem bike that we enjoy riding (especially when we ride it to a café). \nHannah turns 23 early October and has two younger siblings – Jasper 21 and Penelope 19. I am married to Rachel who is working full time as a primary school teacher doing the Nurture Class and Reading literacy. I work for Air NZ engineering as a Project Manager. \n					\n				\n			\n			\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n					Kaye Young\n					\n					My name is Kaye and my husband Roger and I\, are the proud parents of three sons\, all of whom live in Christchurch. Our second son – James has Down syndrome\, Autism and Coeliac disease and for the last 7 years has lived in a house 5 minutes away from us. We purchased the house for him\, and 3 classmates moved in with James\, when they all finished school at the age of 21. James and his flatmates are still living together successfully and enjoying a good life in the community. Staff from a local residential provider provide 24/7 support through EGL Funding. \nRoger and I live on a lifestyle property on the outskirts of Christchurch\, which keeps us busy\, alongside pursuing our own interests. For the last 8 years I have been a keen tramper and love being out in the mountains. When our sons were still at home\, I was very involved in charity work as a volunteer with the Canterbury Down Syndrome Association\, founded the UP Club in Christchurch\, was instrumental in getting Sunshine Football going for children with a disability and for a couple of years I worked for Parent to Parent. Prior to that I did a commerce degree at Canterbury University and majored in accountancy. \n  \n					\n				\n			\n			\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n					Paula Beguely\n					\n					I live in Auckland\, with husband Tom\, and two beautiful daughters Harriet (11) and Charlotte (8). \nOur journey with the Down syndrome community started with Charlotte was born in 2016.  I have been the Community Liaison with Auckland Down Syndrome Association for 5 years. This role is home based – but I’m out in the community a lot! I’m very passionate about changing the narrative for people with Down syndrome by highlighting their strengths and capabilities\, and showing others the joy that Charlotte brings to whanau.  I’m currently building my advocacy skills as Charlotte journeys through our local primary school.  I’m also the coordinator and a presenter for the ADSA Success in School education workshop. \n					\n				\n			\n			\n				\n				\n				\n				\n			\n				\n				\n				\n				\n				\n				\n				Register here
URL:https://nzdsa.org.nz/event/assume-i-can-parents-journeys-creating-a-good-life-for-their-children/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20241003T120000
DTEND;TZID=Pacific/Auckland:20241003T130000
DTSTAMP:20260501T040817
CREATED:20240926T065730Z
LAST-MODIFIED:20240926T070841Z
UID:14557-1727956800-1727960400@nzdsa.org.nz
SUMMARY:Keeping Children and Adolescents with Down Syndrome Healthy
DESCRIPTION:In this presentation\, Dr Brian Skotko reviews all of the questions and concerns that parents most often have about their sons and daughters with Down syndrome. He provides the answers and action steps\, stemming from the latest clinical research on people with Down syndrome. Based on his clinical experience in the Down Syndrome Program at Massachusetts General Hospital\, Dr Skotko makes sure that every parent can anticipate medical conditions so that the potentials of all people with Down syndrome are maximized. \n			\n				\n				\n				\n				\n				\n				\n					Dr Brian Skotko\n					\n					A Board-certified medical geneticist\, Dr. Skotko is the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital. As the Director of the hospital’s Down Syndrome Program\, he has dedicated his professional energies toward children with cognitive and development disabilities. He co-authored the national award-winning books\, Common Threads: Celebrating Life with Down Syndrome and Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University\, Harvard Medical School\, and Harvard Kennedy School\, and he is currently a Professor of Pediatrics at Harvard Medical School. Dr. Skotko is a leader on clinical and translational research about Down syndrome. He has been featured in The Wall Street Journal\, The New York Times\, The Washington Post\, The L.A. Times\, NPR’s “On Point\,” and ABC’s “Good Morning America.” Dr. Skotko has a sister with Down syndrome and serves on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress. \n					\n				\n			\n				Register here
URL:https://nzdsa.org.nz/event/keeping-children-and-adolescents-with-down-syndrome-healthy/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
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