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X-WR-CALNAME:New Zealand Down Syndrome Association (NZDSA)
X-ORIGINAL-URL:https://nzdsa.org.nz
X-WR-CALDESC:Events for New Zealand Down Syndrome Association (NZDSA)
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BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261006T193000
DTEND;TZID=Pacific/Auckland:20261006T203000
DTSTAMP:20260906T061641Z
CREATED:20260904T232956Z
LAST-MODIFIED:20260906T061641Z
UID:18182-1791315000-1791318600@nzdsa.org.nz
SUMMARY:Together\, Not Alone: Supporting Relationships\, Connection and Belonging for People with Down Syndrome
DESCRIPTION:Together\, Not Alone: Supporting Relationships\, Connection and Belonging for People with Down Syndrome\nLoneliness is more than being alone—it is often the result of barriers to belonging\, connection and meaningful relationships. In this session\, Claire Ryan from To Be Frank will explore how families\, whānau and professionals can support people with Down syndrome to build healthy relationships\, develop self-advocacy skills\, understand boundaries\, and make informed choices about their lives. Drawing on practical experience in disability\, sexuality and relationship education\, this presentation will provide accessible strategies\, resources and conversation starters that help create opportunities for connection\, reduce social isolation\, and uphold the rights of people with Down syndrome to participate fully in their communities. Attendees will leave with greater confidence to support relationship wellbeing in ways that are respectful\, rights-based and person-centred. \nPresenter\nClaire Ryan\nFounder To Be Frank \nBiography\nClaire (Ōtākau/Otago) believes that the prevention and elimination of violence\, abuse and neglect experienced by disabled people are paramount – and she’s committed to this kaupapa.\nWith a near 40-year career working in disability\, Claire brings passion and drive\, especially in relation to human rights. She’s creative and motivational\, thriving on the energy of like-minded people.\nClaire’s working life has been dedicated to pushing the boundaries. She’s a firm believer in everyone’s right to live fully in their skin\, without negativity or discrimination. Claire believes in the mahi of VisAble to ensure the protection of everyone’s rights to citizenship and self-determination. \nTheme: Relationships\nAudience: Parents\, whānau and professionals \n 
URL:https://nzdsa.org.nz/event/together-not-alone-supporting-relationships-connection-and-belonging-for-people-with-down-syndrome/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/together-not-alone.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261006T100000
DTEND;TZID=Pacific/Auckland:20261006T110000
DTSTAMP:20260906T061522Z
CREATED:20260904T232606Z
LAST-MODIFIED:20260906T061522Z
UID:18178-1791280800-1791284400@nzdsa.org.nz
SUMMARY:What your other children without Down syndrome are thinking
DESCRIPTION:What your other children without Down syndrome are thinking\nSibling Issues for Parents\nThrough a series of interactive exercises\, parents will explore what questions\, needs\, and concerns are often raised by children who have a brother or sister with Down syndrome. Parents will come away with practical answers to commonly raised questions. This presentation draws upon Brian Skotko and Sue Levine’s publication in American Journal of Medical Genetics and their new book\, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. This workshop is also available on YouTube and online for free. \nPresenters\nDr Brian Skotko\nEmma Campbell Endowed Chair on Down Syndrome\nDirector\, Down Syndrome Program\nMedical Geneticist\, Massachusetts General Hospital Associate Professor\, Harvard Medical School \nSusan Levine\nMA\, CSW\, is a co-founder and social worker at Family Resource Associates\, Inc.\, a private\, non-profit agency serving individuals with disabilities and their families in central New Jersey. \nBiographies\nDr Brian Skotko\nA Board-certified medical geneticist\, Dr Skotko is the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital. As the Director of the hospital’s Down Syndrome Program\, he has dedicated his professional energies toward children with cognitive and development disabilities. He co-authored the national award-winning books\, Common Threads: Celebrating Life with Down Syndrome and Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University\, Harvard Medical School\, and Harvard Kennedy School\, and he is currently an Associate Professor at Harvard Medical School. Dr Skotko is a leader on clinical and translational research about Down syndrome. He has been featured in The Wall Street Journal\, The New York Times\, The Washington Post\, The L.A. Times\, NPR’s “On Point\,” and ABC’s “Good Morning America.” Dr Skotko has a sister with Down syndrome and serves on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress. \nSusan Levine\nSusan earned a BA degree in psychology from Bucknell University and an MA degree in Child Development and Family Relations from the University of Connecticut. Susan has spent her entire professional career working with children with disabilities and their families. She has conducted support programs for parents and siblings of children with differing abilities for the past 30 years. Among those programs\, Susan has coordinated support groups specifically for parents of children with Down syndrome. She has presented on the needs of siblings at national and regional conferences on Down syndrome\, spina bifida\, and Rett syndrome\, as well as for New Jersey school system parent groups. Additionally\, she has written quarterly newsletters for brothers and sisters (For Siblings Only\, for children aged 4-9\, and Sibling Forum\, for children aged 10 through teen) which are available on the web at the agency website www.frainc.org.\nShe also co-authored the book\, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. \nTheme: Siblings\nAudience: Parents. Professionals and whānau are welcome.
URL:https://nzdsa.org.nz/event/what-your-other-children-without-down-syndrome-are-thinking/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/what-yoiur-other-children.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261005T193000
DTEND;TZID=Pacific/Auckland:20261005T203000
DTSTAMP:20260906T061328Z
CREATED:20260904T232321Z
LAST-MODIFIED:20260906T061328Z
UID:18175-1791228600-1791232200@nzdsa.org.nz
SUMMARY:Finding Your People: How to Create Community
DESCRIPTION:Finding Your People: How to Create Community\nIn this presentation Brigit will tell us what the research says about the impact of loneliness on health and wellbeing. She is also going to talk about ways to find “your people” and create a sense of community in your own life. \nPresenter\nBrigit Mirfin-Veitch\, Kaiuruki Matua – Director\, Donald Beasley Institute \nBiography\nAssociate Professor Brigit Mirfin-Veitch is the Director of the Donald Beasley Institute (DBI). Brigit has led or been involved in a wide range of disability rights-based projects in the area of health and well-being\, access to justice\, violence and abuse\, parenting\, and the progressive realisation of the United Nations Convention on the Rights of Persons with Disabilities\, particularly Article 12 – Equal Recognition Before the Law – and Supported Decision Making. Brigit was centrally involved in the Royal Commission of Inquiry into Abuse in Care as a researcher\, expert witness\, and advisory group member. \nTheme: Research and advocacy \nAudience: Parents\, whānau and professionals
URL:https://nzdsa.org.nz/event/finding-your-people-how-to-create-community/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/finding-your-people.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261005T120000
DTEND;TZID=Pacific/Auckland:20261005T130000
DTSTAMP:20260906T060913Z
CREATED:20260904T232033Z
LAST-MODIFIED:20260906T060913Z
UID:18172-1791201600-1791205200@nzdsa.org.nz
SUMMARY:Leadership and Agency through Dance
DESCRIPTION:Leadership and agency through Dance\nOver 25 years Jolt has built a community of dancers with intellectual disabilities\, their whānau\, wider disability groups and mainstream organisations. Our work focuses on the individuality of the dancer\, rather than their diagnosis. We believe dance has the potential to empower\, create equitable spaces\, and challenge deficit perspectives about disability. This presentation will share our journey\, what we have learnt\, and the pathways we have created to embed agency and leadership. \nPresenters\nJacob Levington\nKaitiaki Whaikaha\, Jolt tutor\nCaitlin Fleming\nDisability Leader\nLyn Cotton\nFounder and Artistic Director of Jolt \nBiographies\nJacob Levington is an experienced dancer and teacher in Jolt. He is a member of Jolt Performance Company\, he is in charge of his own Jolt classes and is a member of the Kaitiaki Whaikaha team in charge of funding. He has taught and performed nationally and internationally in Glasgow\, Rarotonga\, and South Korea. \nCaitlin Fleming works as an assistant in Jolt Collective\, Drop in and Jolt zoom classes. She has danced with Jolt for 12 years and performed in professional theatres. Caitlin is a member of the Jolt Leadership team. \nLyn Cotton is the founder and Artistic Director of Jolt. Originally trained as a teacher\, Lyn became involved in inclusive dance in London and trained with Wolfgang Stange (Amici dance). In 2001 Lyn established Jolt which has grown to become the largest inclusive dance company in Aotearoa. As Artistic Director\, Lyn has built Jolt into a ground-breaking and fearlessly innovative dance company\, pioneering initiatives such as Jolt Interactive\, performances designed specifically for diverse audiences\, and Move\, New Zealand’s only dance teacher training programme for people with disabilities.\nIn 2014 Lyn won the Attitude TV Award for “Making a Difference” and in 2016 she received a Winston Churchill Fellowship. \nTheme: Performing Arts\nAudience: All welcome \n 
URL:https://nzdsa.org.nz/event/leadership-and-agency-through-dance/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/leadership-and-agency-through-dance.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261003T163000
DTEND;TZID=Pacific/Auckland:20261003T170000
DTSTAMP:20260906T060704Z
CREATED:20260904T231630Z
LAST-MODIFIED:20260906T060704Z
UID:18169-1791045000-1791046800@nzdsa.org.nz
SUMMARY:My Life in the Far North
DESCRIPTION:My Life in The Far North\nWorking at Rawene hospital as a Patient Support Assistant and my life living in Taheke which is in the Hokianga. \nPresenter\nTalia Leach\nSelf-advocate \nBiography\nI am hard working and put my job first\, caring\, bright woman\, sensitive and supportive to my patients needs and respect my work managers. \n  \nTheme:  Self-advocacy \nAudience: All welcome \n  \nJoin Zoom Meeting \nhttps://us02web.zoom.us/j/83349906873?pwd=NX8d37EeNzJZHb1n8wmewE2sGqij2y.1 \nMeeting ID: 833 4990 6873 \nPasscode: 792670
URL:https://nzdsa.org.nz/event/my-life-in-the-far-north/
LOCATION:Zoom\, New Zealand
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/My-life-in-the-far-north.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261003T160000
DTEND;TZID=Pacific/Auckland:20261003T170000
DTSTAMP:20260906T061210Z
CREATED:20260904T231319Z
LAST-MODIFIED:20260906T061210Z
UID:18166-1791043200-1791046800@nzdsa.org.nz
SUMMARY:Alex's Good Life
DESCRIPTION:Alex’s Good Life – How Did It Happen?\nAlex will share his personal journey towards creating his Good Life and how he made it happen. He will share what a Good Life means to him\, the importance of having choice and control in his life\, and what he has learned along the way. Drawing on his experience\, strong voice and positive attitude\, Alex hopes to inspire others and help make the world better for everyone. \nPresenter\nAlex Snedden\nSelf-advocate and experienced public speaker \nBiography\nAlex Snedden is a proud man with Down syndrome. He uses his skills to help people with Down syndrome live better and have a good life.\nAlex is a self-advocate and experienced public speaker. He speaks about disability rights\, inclusion\, and treating everyone with respect. He has spoken at big and small events\, including at the United Nations in New York and\, in April 2025\, the Global Disability Summit in Berlin.\nAlex enjoys helping people understand that having Down syndrome does not stop what they can do. Helping other people is important to him\, and he thinks he is good at it. He values being part of his community and believes everyone should have that opportunity.\nAlex lives in his own home in Auckland\, and he chooses what he does and when he does it. He even chooses if he wants to do something or not. This was a big goal of his\, and he planned for his future with his circle of support\, who also support him with his decisions. His Catholic faith is also a very important part of who he is and his life.\nAlex works hard to show what is possible. He has many friends and knows what a good life means for him. He wants to use his experience\, strong voice\, and positive attitude so that the world is better for everyone. \nTheme: Self-advocacy\nAudience: All welcome\nJoin Zoom Meeting\nhttps://us02web.zoom.us/j/87356366041?pwd=saRr5E7irdbTsabkPG7PlamMPrU5Va.1\nMeeting ID: 873 5636 6041\nPasscode: 250069
URL:https://nzdsa.org.nz/event/alexs-good-life/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/alexs-good-life-1.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20260912T160000
DTEND;TZID=Pacific/Auckland:20260912T170000
DTSTAMP:20260812T060037Z
CREATED:20260812T060037Z
LAST-MODIFIED:20260812T060037Z
UID:18153-1789228800-1789232400@nzdsa.org.nz
SUMMARY:STRIVE Afternoon Tea Club
DESCRIPTION:A session run by people with Down syndrome for people with Down syndrome.  All are welcome but focussed on +16 participants \nThe second Saturday of the month. \n  \nJoin Zoom meeting  https://us02web.zoom.us/j/84754295278?pwd=9SKad6AF4On4UwAFJBao7P2waBMhc4.1 \nMeeting ID: 847 5429 5278 \nPasscode: 754340
URL:https://nzdsa.org.nz/event/strive-afternoon-tea-club-8/
LOCATION:Zoom\, New Zealand
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20260909T193000
DTEND;TZID=Pacific/Auckland:20260909T203000
DTSTAMP:20260812T005154Z
CREATED:20260812T004929Z
LAST-MODIFIED:20260812T005154Z
UID:18149-1788982200-1788985800@nzdsa.org.nz
SUMMARY:Down syndrome and Autism support group
DESCRIPTION:Connect with other parents and whānau who support people with both Down syndrome and autism.\nShare experiences\, learn from one another\, and enjoy a supportive and understanding environment. \nJoin Zoom Meeting \nhttps://us02web.zoom.us/j/82735264443?pwd=xB8uFzuNSZIwwfuRESN1oibRBXabP9.1 \nMeeting ID: 827 3526 4443\nPasscode: 502585
URL:https://nzdsa.org.nz/event/down-syndrome-and-autism-support-group/
LOCATION:Zoom\, New Zealand
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20260708T190000
DTEND;TZID=Pacific/Auckland:20260708T193000
DTSTAMP:20260624T100908Z
CREATED:20260624T100242Z
LAST-MODIFIED:20260624T100908Z
UID:18058-1783537200-1783539000@nzdsa.org.nz
SUMMARY:Plus One - Siblings of people with Down syndrome
DESCRIPTION:Because siblings need support too\nHave you ever wondered what your child without Down syndrome is carrying quietly?\nSiblings of people with Down syndrome often hold a unique mix of love\, pride\, responsibility\, worry\, and big questions about the future. But they don’t always have spaces to talk about it.\nPlus One is a new NZDSA project for siblings aged 18+\, offering online workshops to connect\, share\, and talk honestly about the good\, hard\, and complicated parts of sibling life.\nIf you have an adult child who has grown up alongside a sibling with Down syndrome\, this is a space for a much-needed debrief.\nOur first online session is Wednesday 8 July\, 7.00 to 7.45pm.\nTo register or ask questions\, email Siobhan hello@nzdsa.org.nz or fill in this form: https://forms.cloud.microsoft/r/yVSZhN2fJN
URL:https://nzdsa.org.nz/event/plus-one-siblings-of-people-with-down-syndrome/
LOCATION:Zoom\, New Zealand
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/06/plus_one.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20260401T193000
DTEND;TZID=Pacific/Auckland:20260401T203000
DTSTAMP:20260319T075513Z
CREATED:20260319T075513Z
LAST-MODIFIED:20260319T075513Z
UID:17944-1775071800-1775075400@nzdsa.org.nz
SUMMARY:Down Syndrome and Autism Support Group for Parents & Whanau
DESCRIPTION:Join us for a special online session to recognise International World Autism Awareness Day on 2 April.\nThis year’s theme is “Autism and Humanity – Every Life Has Value.”\nThis session is for parents and whānau supporting people with Down syndrome and autism. It is an opportunity to connect\, share experiences\, learn from one another\, and be part of a supportive and understanding space. \nWednesday 1 April 2026\n7.30pm – 8.30pm\nhttps://us02web.zoom.us/j/83004530090?pwd=6LJqxGqMvSizT96Eva5BV4hEb9dq9y.1 \nMeeting ID: 830 0453 0090\nPasscode: 578136 \n 
URL:https://nzdsa.org.nz/event/down-syndrome-and-autism-support-group-for-parents-whanau/
LOCATION:Zoom\, New Zealand
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260321
DTEND;VALUE=DATE:20260322
DTSTAMP:20260304T030110Z
CREATED:20260122T033137Z
LAST-MODIFIED:20260304T030110Z
UID:17803-1774051200-1774137599@nzdsa.org.nz
SUMMARY:World Down Syndrome Day!
DESCRIPTION:World Down Syndrome Day!
URL:https://nzdsa.org.nz/event/world-down-syndrome-day-2/
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20260320T190000
DTEND;TZID=Pacific/Auckland:20260320T203000
DTSTAMP:20260304T031034Z
CREATED:20260304T030328Z
LAST-MODIFIED:20260304T031034Z
UID:17845-1774033200-1774038600@nzdsa.org.nz
SUMMARY:The Big Connect
DESCRIPTION:You’re invited to The Big Connect on the eve of World Down Syndrome Day!Our community\, spread far and wide across Aotearoa\, will come together to celebrate the incredible people with Down syndrome and their whānau as we kick off World Down Syndrome Day. \nJoin us:Friday 20 March 2026\, 7.00pm – 8.30pmOnline via Zoom – https://us02web.zoom.us/j/89888084692…Meeting ID: 898 8808 4692Passcode: 684429 \nOr here is a link to our event:https://www.facebook.com/share/1GSEbsC1hP/ \nWorld Down Syndrome Day – Together Against Loneliness \nLoneliness is not just a feeling – it’s a human rights issue. Research in New Zealand shows many people with learning disabilities experience social isolation. When rights are upheld – to live in the community\, have relationships and be part of a family\, go to an inclusive school and job\, and take part in cultural life\, sport\, and play – loneliness is reduced and people are more able to experience a good life. \nWhat to Expect at The Big Connect \nAt The Big Connect\, you’ll hear from self-advocates\, parents\, and professionals about how real inclusion helps combat loneliness. You’ll have the opportunity to take the open mic and share your own stories\, joining others in standing against loneliness. Connect with people from across Aotearoa as we launch WDSD. \nLet’s do more than celebrate in 2026.Let’s strengthen advocacy.Let’s challenge exclusion.Let’s stand Together Against Loneliness.
URL:https://nzdsa.org.nz/event/the-big-connect-2/
LOCATION:Zoom\, New Zealand
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/03/NZDSA_WDSD26_TBCSq.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20260314T160000
DTEND;TZID=Pacific/Auckland:20260314T170000
DTSTAMP:20260122T032941Z
CREATED:20260122T032941Z
LAST-MODIFIED:20260122T032941Z
UID:17801-1773504000-1773507600@nzdsa.org.nz
SUMMARY:STRIVE Afternoon Tea Club
DESCRIPTION:Join us at the STRIVE Afternoon Tea Club—a fun social session run by people with Down syndrome\, for people with Down syndrome. \nDate:     Saturday 14th March 2026 \nTime:     4pm -5pm \nThis session is open to everyone\, but especially for participants aged 16 and over. \nhttps://us02web.zoom.us/j/82442809092?pwd=x5wTnmRZHclyLWLOhvy4K0HK4IKwKb.1 \nMeeting ID: 824 4280 9092 \nPasscode: 548545
URL:https://nzdsa.org.nz/event/strive-afternoon-tea-club-7/
LOCATION:Zoom\, New Zealand
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/04/542ddb74-c92c-1452-50dd-cf7cbaef1008.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20260224T193000
DTEND;TZID=Pacific/Auckland:20260224T203000
DTSTAMP:20260122T032735Z
CREATED:20260122T031136Z
LAST-MODIFIED:20260122T032735Z
UID:17799-1771961400-1771965000@nzdsa.org.nz
SUMMARY:Regression Disorder Support Group for Parents and Whānau
DESCRIPTION:Join us for a special online gathering to connect with other parents and whānau who support people experiencing Regression Disorder.\nThis is a chance to share experiences\, learn from one another\, and be part of a supportive and understanding community. \nTopic: Down Syndrome Regression Disorder (DSRD)\nWe will be viewing a recording of Dr Cathy Franklin’s presentation from the recent Virtual Conference.\nThis is an excellent opportunity to catch up if you missed the live session or to discuss the recording together. \nAbout the Speaker:\nDr Cathy Franklin is the Director of the Queensland Centre of Excellence in Intellectual Disability and Autism Health at Mater Hospital\, South Brisbane.\nShe also leads a Down syndrome clinic for adolescents and adults. \nTuesday 24 February 2026 \n7.30pm -8.30pm \nJoin Zoom Meeting – https://us02web.zoom.us/j/85698082370?pwd=G6azWJer5gmPw9yYmh3EK0ScQHYV8W.1 \nMeeting ID: 856 9808 2370 \nPasscode: 465489
URL:https://nzdsa.org.nz/event/regression-disorder-support-group-for-parents-and-whanau/
LOCATION:Zoom\, New Zealand
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20260214T160000
DTEND;TZID=Pacific/Auckland:20260214T170000
DTSTAMP:20260122T030906Z
CREATED:20260122T030906Z
LAST-MODIFIED:20260122T030906Z
UID:17797-1771084800-1771088400@nzdsa.org.nz
SUMMARY:Strive Afternoon Tea Club
DESCRIPTION:STRIVE Afternoon Tea Club \nJoin us for our first STRIVE Afternoon Tea Club of the year — a fun social session run by people with Down syndrome\, for people with Down syndrome. \nThis session is open to everyone\, but especially for participants aged 16 and over. \nDate:     Saturday 14th February  2026 \nTime:     4pm -5pm \nhttps://us02web.zoom.us/j/84054182031?pwd=8KdJZRFo6IAjN34JCuxggo3XWYJSWl.1 \nMeeting ID: 840 5418 2031 \nPasscode: 442637
URL:https://nzdsa.org.nz/event/strive-afternoon-tea-club-6/
LOCATION:Zoom\, New Zealand
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/04/542ddb74-c92c-1452-50dd-cf7cbaef1008.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251206T160000
DTEND;TZID=Pacific/Auckland:20251206T170000
DTSTAMP:20250718T014737Z
CREATED:20250718T014737Z
LAST-MODIFIED:20250718T014737Z
UID:17372-1765036800-1765040400@nzdsa.org.nz
SUMMARY:Strive Afternoon Tea Club
DESCRIPTION:6th December at 4pm – 5pm \nSTRIVE Afternoon Tea Club \nA session run by people with Down syndrome for people with Down syndrome.  All are welcome but focussed on +16 participants \nJoin Zoom Meeting \nhttps://us02web.zoom.us/j/84924519282?pwd=D2jHmQ96Mn6btiJLA02gAtq9QzLbbn.1 \nMeeting ID: 849 2451 9282 \nPasscode: 008473
URL:https://nzdsa.org.nz/event/strive-afternoon-tea-club-5/
LOCATION:Zoom\, New Zealand
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/04/542ddb74-c92c-1452-50dd-cf7cbaef1008.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251125T183000
DTEND;TZID=Pacific/Auckland:20251125T213000
DTSTAMP:20250306T071627Z
CREATED:20250306T071525Z
LAST-MODIFIED:20250306T071627Z
UID:16597-1764095400-1764106200@nzdsa.org.nz
SUMMARY:ADSA Parents Dinner
DESCRIPTION:This is a dinner for ADSA parents. Come along to connect with other families and meet friends – new and old. Share some delicious food\, and plenty of laughs.\nCome for a drink\, dinner\, dessert or everything – The GOOD HOME do fantastic food. (Please note: this meal is not funded by ADSA).\nPlease RSVP to Angela on 027 605 4496.
URL:https://nzdsa.org.nz/event/adsa-parents-dinner-2/
LOCATION:The Good Home\, 37 Normandy Road\, Mt Eden\, Auckland\, New Zealand
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/03/477238275_1072180381621029_4042831231382227936_n.jpg
ORGANIZER;CN="Auckland Down Syndrome Association":MAILTO:clo@adsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251108T170000
DTEND;TZID=Pacific/Auckland:20251108T180000
DTSTAMP:20250718T014427Z
CREATED:20250718T014427Z
LAST-MODIFIED:20250718T014427Z
UID:17368-1762621200-1762624800@nzdsa.org.nz
SUMMARY:NZDSA AGM
DESCRIPTION:8th November at 5pm \nNZDSA AGM \nJoin Zoom Meeting \nhttps://us02web.zoom.us/j/82780897188?pwd=CUqgXvMdUecIHZUpE7yQbVXhfLOqSP.1 \nMeeting ID: 827 8089 7188 \nPasscode: 206417
URL:https://nzdsa.org.nz/event/nzdsa-agm/
LOCATION:Zoom\, New Zealand
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251029T190000
DTEND;TZID=Pacific/Auckland:20251029T203000
DTSTAMP:20251017T220045Z
CREATED:20251017T220045Z
LAST-MODIFIED:20251017T220045Z
UID:17714-1761764400-1761769800@nzdsa.org.nz
SUMMARY:Care and Wellbeing Workshop
DESCRIPTION:Care Matters and the New Zealand Down Syndrome Association (NZDSA) are excited to bring the Down syndrome community a care and wellbeing workshop!\nTo mark the UN International Day of Care and Support\, we invite parents\, family\, whānau\, and aiga carers to a special workshop honouring your incredible mahi.\nThis free wellbeing workshop is designed as a calm\, welcoming space where you can pause\, connect\, and focus on you. Together we’ll explore tools and ideas to strengthen resilience\, nurture balance\, and support you in the important role you play.\nDate: Wednesday 29 October 2025\nTime: 7.00-8.30pm
URL:https://nzdsa.org.nz/event/care-and-wellbeing-workshop/
LOCATION:Zoom\, New Zealand
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/10/560607204_1230333005806931_5182930830507019469_n.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251021T193000
DTEND;TZID=Pacific/Auckland:20251021T210000
DTSTAMP:20250927T104707Z
CREATED:20250927T092245Z
LAST-MODIFIED:20250927T104707Z
UID:17622-1761075000-1761080400@nzdsa.org.nz
SUMMARY:Empowering Self-determination with Volition
DESCRIPTION:21st October at 7.30pmFocus: Improved Supported Decision-Making-Improved Lives \nAudience: All \nHaving choice and control in your life starts with knowing what is important to you and then telling others. This session will walk through Volition\, a new app that empowers Decision Makers to work with their Supporters to understand and communicate the things that matter to them. \n				Register here
URL:https://nzdsa.org.nz/event/empowering-self-determination-with-volition/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/09/empowering-self-determination.jpeg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251021T120000
DTEND;TZID=Pacific/Auckland:20251021T140000
DTSTAMP:20250927T104538Z
CREATED:20250927T091525Z
LAST-MODIFIED:20250927T104538Z
UID:17617-1761048000-1761055200@nzdsa.org.nz
SUMMARY:Building Capability Through Supported Independence
DESCRIPTION:21st October at 12pmFocus: Improved Wellbeing and Resilience–Improved Lives \nAudience: Parents\, whānau and professionals   \nDr Maree Kirk’s presentation situates the World Down Syndrome 2025 theme — Improved Support\, Improved Lives — within the New Zealand context. Drawing on her PhD research\, she developed the theory of wellbeing for children with a disability\, which identified three principles of acceptance\, recognition\, and supported independence. She highlights how capability must be intentionally built across home\, school\, and community. Supported independence is not about doing everything alone\, but about balancing autonomy and support to enable full participation in education\, family\, and community life. Maree also shares insights from recent Ministry of Education pilot projects and the national Network of Expertise (NEX) contract\, alongside findings from her action research on the Transition Capability Pathway. Her presentation shows how family-led\, holistic\, and rights-based approaches to support can transform independence and inclusion for learners with Down syndrome. \n				Register here
URL:https://nzdsa.org.nz/event/building-capability-through-supported-independence/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/09/building-capability.jpeg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251020T193000
DTEND;TZID=Pacific/Auckland:20251020T210000
DTSTAMP:20250927T104038Z
CREATED:20250927T091113Z
LAST-MODIFIED:20250927T104038Z
UID:17613-1760988600-1760994000@nzdsa.org.nz
SUMMARY:Improving Brain Health for people with Down syndrome
DESCRIPTION:20th October at 7.30pmFocus: Improved Aging-Improved Lives \nAudience: Parents\, whānau and professionals   \nPeople with Down syndrome are at increased risk of Alzheimer’s disease. This talk will discuss common symptoms of dementia\, and how medical specialists can assess memory and brain health. It will cover current and emerging treatments. Lastly\, it will cover how to optimise brain health across all life stages. \n				Register here
URL:https://nzdsa.org.nz/event/improving-brain-health-for-people-with-down-syndrome/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/09/improving-brain-health-for-people.jpeg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251020T120000
DTEND;TZID=Pacific/Auckland:20251020T140000
DTSTAMP:20250927T103919Z
CREATED:20250927T090458Z
LAST-MODIFIED:20250927T103919Z
UID:17608-1760961600-1760968800@nzdsa.org.nz
SUMMARY:Ageing and future aspirations: Navigating Ever-Changing Seas
DESCRIPTION:20th October at 12pmFocus: Improved Aging-Improved Lives \nAudience: Parents\, whānau and professionals  \nNavigating Ever-Changing Seas is a new model for understanding the experiences of ageing people with intellectual (learning) disabilities and the family/whānau who support them. These relationships can be complex and change over time\, often involving multiple generations. Everyone’s experience is shaped by their identity\, relationships\, past and present support\, and the wider community and social context. Understanding these perspectives helps guide future planning\, support practices\, service development\, research\, and inclusive policies. \n				Register here
URL:https://nzdsa.org.nz/event/ageing-and-future-aspirations-navigating-ever-changing-seas/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/09/ageing-and-future-aspirations.jpeg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251016T193000
DTEND;TZID=Pacific/Auckland:20251016T210000
DTSTAMP:20250927T103642Z
CREATED:20250927T084021Z
LAST-MODIFIED:20250927T103642Z
UID:17603-1760643000-1760648400@nzdsa.org.nz
SUMMARY:Health equity for people with Down syndrome and intellectual disabilities
DESCRIPTION:16th October at 7.30pmFocus: Improved Health-Improved Lives \nAudience: Parents\, whānau and professionals  \nThis talk will cover the unfair health outcomes faced by people with Down syndrome and intellectual disabilities\, including findings from Down Syndrome International’s ‘Our Say in Our Health’ report. We will also discuss work happening on this topic from the World Health Organization\, and actions that we can all take to make things better.  \n				Register here
URL:https://nzdsa.org.nz/event/health-equity-for-people-with-down-syndrome-and-intellectual-disabilities/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/09/health-equity-for-people-with-down-syndrome.jpeg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251015T193000
DTEND;TZID=Pacific/Auckland:20251015T210000
DTSTAMP:20250927T103511Z
CREATED:20250927T083321Z
LAST-MODIFIED:20250927T103511Z
UID:17597-1760556600-1760562000@nzdsa.org.nz
SUMMARY:Babble Boot Camp
DESCRIPTION:15th October at 7.30pmFocus: Improved Communications-Improved Lives \nAudience: Parents\, whānau and professionals  \nThis presentation shares a pilot study of Babble Boot Camp\, a caregiver-led programme that supports early speech and language development in infants with Down syndrome\, offering insights into proactive strategies for lifelong communication \n				Register here
URL:https://nzdsa.org.nz/event/babble-boot-camp/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/09/babble-boot-camp.jpeg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251015T120000
DTEND;TZID=Pacific/Auckland:20251015T140000
DTSTAMP:20250927T103326Z
CREATED:20250927T082916Z
LAST-MODIFIED:20250927T103326Z
UID:17592-1760529600-1760536800@nzdsa.org.nz
SUMMARY:The IHC Library - Responding to Change
DESCRIPTION:15th October at 12pmFocus: Improved Information-Improved Lives \nAudience: Parents\, whānau and professionals  \nA brief look at what the IHC Library is and how it can support parents\, caregivers and anyone with an interest in intellectual disability. \n				Register here
URL:https://nzdsa.org.nz/event/the-ihc-library-responding-to-change/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/09/the-ihc-library.jpeg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251014T193000
DTEND;TZID=Pacific/Auckland:20251014T210000
DTSTAMP:20250927T103147Z
CREATED:20250927T082354Z
LAST-MODIFIED:20250927T103147Z
UID:17587-1760470200-1760475600@nzdsa.org.nz
SUMMARY:From Voices to Power: Making Accessibility a Political Priority
DESCRIPTION:14th October at 7.30pmFocus: Improved Advocacy-Improved Lives \nAudience: Parents\, whānau and professionals  \nHow do we transform lived experience into political influence? In her talk\, Juliana Carvalho will share the story and strategy behind the Access Matters campaign\, a grassroots movement working to make accessibility a political priority in Aotearoa New Zealand. Drawing on lessons from collective action\, community organising\, and coalition-building\, Juliana will explore how diverse voices can be amplified into a united call for change. She will highlight practical steps the campaign is taking to engage policymakers\, mobilise supporters\, and shift public narratives—demonstrating the power of collaboration to create a more inclusive society for all. \n				Register here
URL:https://nzdsa.org.nz/event/from-voices-to-power-making-accessibility-a-political-priority/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/09/from-voices-to-power.jpeg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251014T120000
DTEND;TZID=Pacific/Auckland:20251014T140000
DTSTAMP:20250927T103013Z
CREATED:20250927T082005Z
LAST-MODIFIED:20250927T103013Z
UID:17583-1760443200-1760450400@nzdsa.org.nz
SUMMARY:Home & School: Joyful connections and a strong relationship
DESCRIPTION:14th October at 12pmFocus: Improved Education–Improved Lives \nAudience: Parents\, whānau and professionals  \nI’m presenting in my capacity as a parent\, not in a professional capacity. My daughter Charlotte is in Year 4 at our local primary school.  I’ll be sharing with you about this journey so far and how we work together with our school to ensure that we have a strong relationship.  It’s a long-term relationship\, and it’s not always smooth – but I’ve learned some important things along the way. \nI’ll talk about how we communicate\, plan and solve problems together\, and how our focus has changed over the last 4 years. \nThis is suitable for anyone who is starting school in the next few years or who has already started primary school. \n				Register here
URL:https://nzdsa.org.nz/event/home-school-joyful-connections-and-a-strong-relationship/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/09/NZDSA_WDSM25_Zoom_Headers16-scaled.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251013T193000
DTEND;TZID=Pacific/Auckland:20251013T210000
DTSTAMP:20250927T102853Z
CREATED:20250927T081540Z
LAST-MODIFIED:20250927T102853Z
UID:17579-1760383800-1760389200@nzdsa.org.nz
SUMMARY:Supporting people with learning difficulties experiencing grief
DESCRIPTION:13th October at 7.30pmFocus: Improved Wellbeing and Resilience-Improved Lives \nAudience: All \n				Register here
URL:https://nzdsa.org.nz/event/supporting-people-with-learning-difficulties-experiencing-grief/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/09/supporting-people-with-learning-disabilities-experiencing-grief.jpeg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20251013T120000
DTEND;TZID=Pacific/Auckland:20251013T140000
DTSTAMP:20250927T102729Z
CREATED:20250927T080639Z
LAST-MODIFIED:20250927T102729Z
UID:17573-1760356800-1760364000@nzdsa.org.nz
SUMMARY:Books Beyond Barriers and more!
DESCRIPTION:13th October at 12pmFocus: Improved Information-Improved Lives \nAudience: Parents\, whānau and professionals  \nKrissy is the National Librarian at the CCS Disability Action Library and Information Service. Krissy will talk about her passion in sharing information to empower people. Krissy will share the different accessible forms of information and talk about sharing information through community radio and podcast.   \n				Register here
URL:https://nzdsa.org.nz/event/books-beyond-barriers-and-more/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/09/books-beyond-barriers-and-more.jpeg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
END:VCALENDAR