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X-WR-CALDESC:Events for New Zealand Down Syndrome Association (NZDSA)
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BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261003T080000
DTEND;TZID=Pacific/Auckland:20261021T170000
DTSTAMP:20260812T060548Z
CREATED:20260812T060548Z
LAST-MODIFIED:20260812T060548Z
UID:18157-1791014400-1792602000@nzdsa.org.nz
SUMMARY:Save the Date: NZDSA Virtual Conference 3rd - 21st October 2026
DESCRIPTION:Celebrate Down Syndrome Awareness Month with NZDSA and join our online conference Together Against Loneliness. \nHear from national and international speakers as we explore connection\, belonging and support for people with Down syndrome and their whānau. \n3rd – 21st October 2026 \nWeekday lunchtime sessions: 12.00 pm–1.00 pm\nEvening sessions: 7.30 pm–8.30 pm\nSaturday sessions: 4.00 pm–5.00 pm \nFree registration. Sessions will not be recorded\, so make sure you register and join us live. Programme details TBC. Keep an eye on the NZDSA website for updates and registration details.
URL:https://nzdsa.org.nz/event/save-the-date-nzdsa-virtual-conference-3rd-21st-october-2026/
LOCATION:Zoom\, New Zealand
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261003T160000
DTEND;TZID=Pacific/Auckland:20261003T170000
DTSTAMP:20260906T061210Z
CREATED:20260904T231319Z
LAST-MODIFIED:20260906T061210Z
UID:18166-1791043200-1791046800@nzdsa.org.nz
SUMMARY:Alex's Good Life
DESCRIPTION:Alex’s Good Life – How Did It Happen?\nAlex will share his personal journey towards creating his Good Life and how he made it happen. He will share what a Good Life means to him\, the importance of having choice and control in his life\, and what he has learned along the way. Drawing on his experience\, strong voice and positive attitude\, Alex hopes to inspire others and help make the world better for everyone. \nPresenter\nAlex Snedden\nSelf-advocate and experienced public speaker \nBiography\nAlex Snedden is a proud man with Down syndrome. He uses his skills to help people with Down syndrome live better and have a good life.\nAlex is a self-advocate and experienced public speaker. He speaks about disability rights\, inclusion\, and treating everyone with respect. He has spoken at big and small events\, including at the United Nations in New York and\, in April 2025\, the Global Disability Summit in Berlin.\nAlex enjoys helping people understand that having Down syndrome does not stop what they can do. Helping other people is important to him\, and he thinks he is good at it. He values being part of his community and believes everyone should have that opportunity.\nAlex lives in his own home in Auckland\, and he chooses what he does and when he does it. He even chooses if he wants to do something or not. This was a big goal of his\, and he planned for his future with his circle of support\, who also support him with his decisions. His Catholic faith is also a very important part of who he is and his life.\nAlex works hard to show what is possible. He has many friends and knows what a good life means for him. He wants to use his experience\, strong voice\, and positive attitude so that the world is better for everyone. \nTheme: Self-advocacy\nAudience: All welcome\nJoin Zoom Meeting\nhttps://us02web.zoom.us/j/87356366041?pwd=saRr5E7irdbTsabkPG7PlamMPrU5Va.1\nMeeting ID: 873 5636 6041\nPasscode: 250069
URL:https://nzdsa.org.nz/event/alexs-good-life/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/alexs-good-life-1.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261003T163000
DTEND;TZID=Pacific/Auckland:20261003T170000
DTSTAMP:20260906T060704Z
CREATED:20260904T231630Z
LAST-MODIFIED:20260906T060704Z
UID:18169-1791045000-1791046800@nzdsa.org.nz
SUMMARY:My Life in the Far North
DESCRIPTION:My Life in The Far North\nWorking at Rawene hospital as a Patient Support Assistant and my life living in Taheke which is in the Hokianga. \nPresenter\nTalia Leach\nSelf-advocate \nBiography\nI am hard working and put my job first\, caring\, bright woman\, sensitive and supportive to my patients needs and respect my work managers. \n  \nTheme:  Self-advocacy \nAudience: All welcome \n  \nJoin Zoom Meeting \nhttps://us02web.zoom.us/j/83349906873?pwd=NX8d37EeNzJZHb1n8wmewE2sGqij2y.1 \nMeeting ID: 833 4990 6873 \nPasscode: 792670
URL:https://nzdsa.org.nz/event/my-life-in-the-far-north/
LOCATION:Zoom\, New Zealand
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/My-life-in-the-far-north.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261005T120000
DTEND;TZID=Pacific/Auckland:20261005T130000
DTSTAMP:20260906T060913Z
CREATED:20260904T232033Z
LAST-MODIFIED:20260906T060913Z
UID:18172-1791201600-1791205200@nzdsa.org.nz
SUMMARY:Leadership and Agency through Dance
DESCRIPTION:Leadership and agency through Dance\nOver 25 years Jolt has built a community of dancers with intellectual disabilities\, their whānau\, wider disability groups and mainstream organisations. Our work focuses on the individuality of the dancer\, rather than their diagnosis. We believe dance has the potential to empower\, create equitable spaces\, and challenge deficit perspectives about disability. This presentation will share our journey\, what we have learnt\, and the pathways we have created to embed agency and leadership. \nPresenters\nJacob Levington\nKaitiaki Whaikaha\, Jolt tutor\nCaitlin Fleming\nDisability Leader\nLyn Cotton\nFounder and Artistic Director of Jolt \nBiographies\nJacob Levington is an experienced dancer and teacher in Jolt. He is a member of Jolt Performance Company\, he is in charge of his own Jolt classes and is a member of the Kaitiaki Whaikaha team in charge of funding. He has taught and performed nationally and internationally in Glasgow\, Rarotonga\, and South Korea. \nCaitlin Fleming works as an assistant in Jolt Collective\, Drop in and Jolt zoom classes. She has danced with Jolt for 12 years and performed in professional theatres. Caitlin is a member of the Jolt Leadership team. \nLyn Cotton is the founder and Artistic Director of Jolt. Originally trained as a teacher\, Lyn became involved in inclusive dance in London and trained with Wolfgang Stange (Amici dance). In 2001 Lyn established Jolt which has grown to become the largest inclusive dance company in Aotearoa. As Artistic Director\, Lyn has built Jolt into a ground-breaking and fearlessly innovative dance company\, pioneering initiatives such as Jolt Interactive\, performances designed specifically for diverse audiences\, and Move\, New Zealand’s only dance teacher training programme for people with disabilities.\nIn 2014 Lyn won the Attitude TV Award for “Making a Difference” and in 2016 she received a Winston Churchill Fellowship. \nTheme: Performing Arts\nAudience: All welcome \n 
URL:https://nzdsa.org.nz/event/leadership-and-agency-through-dance/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/leadership-and-agency-through-dance.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261005T193000
DTEND;TZID=Pacific/Auckland:20261005T203000
DTSTAMP:20260906T061328Z
CREATED:20260904T232321Z
LAST-MODIFIED:20260906T061328Z
UID:18175-1791228600-1791232200@nzdsa.org.nz
SUMMARY:Finding Your People: How to Create Community
DESCRIPTION:Finding Your People: How to Create Community\nIn this presentation Brigit will tell us what the research says about the impact of loneliness on health and wellbeing. She is also going to talk about ways to find “your people” and create a sense of community in your own life. \nPresenter\nBrigit Mirfin-Veitch\, Kaiuruki Matua – Director\, Donald Beasley Institute \nBiography\nAssociate Professor Brigit Mirfin-Veitch is the Director of the Donald Beasley Institute (DBI). Brigit has led or been involved in a wide range of disability rights-based projects in the area of health and well-being\, access to justice\, violence and abuse\, parenting\, and the progressive realisation of the United Nations Convention on the Rights of Persons with Disabilities\, particularly Article 12 – Equal Recognition Before the Law – and Supported Decision Making. Brigit was centrally involved in the Royal Commission of Inquiry into Abuse in Care as a researcher\, expert witness\, and advisory group member. \nTheme: Research and advocacy \nAudience: Parents\, whānau and professionals
URL:https://nzdsa.org.nz/event/finding-your-people-how-to-create-community/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/finding-your-people.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261006T100000
DTEND;TZID=Pacific/Auckland:20261006T110000
DTSTAMP:20260906T061522Z
CREATED:20260904T232606Z
LAST-MODIFIED:20260906T061522Z
UID:18178-1791280800-1791284400@nzdsa.org.nz
SUMMARY:What your other children without Down syndrome are thinking
DESCRIPTION:What your other children without Down syndrome are thinking\nSibling Issues for Parents\nThrough a series of interactive exercises\, parents will explore what questions\, needs\, and concerns are often raised by children who have a brother or sister with Down syndrome. Parents will come away with practical answers to commonly raised questions. This presentation draws upon Brian Skotko and Sue Levine’s publication in American Journal of Medical Genetics and their new book\, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. This workshop is also available on YouTube and online for free. \nPresenters\nDr Brian Skotko\nEmma Campbell Endowed Chair on Down Syndrome\nDirector\, Down Syndrome Program\nMedical Geneticist\, Massachusetts General Hospital Associate Professor\, Harvard Medical School \nSusan Levine\nMA\, CSW\, is a co-founder and social worker at Family Resource Associates\, Inc.\, a private\, non-profit agency serving individuals with disabilities and their families in central New Jersey. \nBiographies\nDr Brian Skotko\nA Board-certified medical geneticist\, Dr Skotko is the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital. As the Director of the hospital’s Down Syndrome Program\, he has dedicated his professional energies toward children with cognitive and development disabilities. He co-authored the national award-winning books\, Common Threads: Celebrating Life with Down Syndrome and Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University\, Harvard Medical School\, and Harvard Kennedy School\, and he is currently an Associate Professor at Harvard Medical School. Dr Skotko is a leader on clinical and translational research about Down syndrome. He has been featured in The Wall Street Journal\, The New York Times\, The Washington Post\, The L.A. Times\, NPR’s “On Point\,” and ABC’s “Good Morning America.” Dr Skotko has a sister with Down syndrome and serves on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress. \nSusan Levine\nSusan earned a BA degree in psychology from Bucknell University and an MA degree in Child Development and Family Relations from the University of Connecticut. Susan has spent her entire professional career working with children with disabilities and their families. She has conducted support programs for parents and siblings of children with differing abilities for the past 30 years. Among those programs\, Susan has coordinated support groups specifically for parents of children with Down syndrome. She has presented on the needs of siblings at national and regional conferences on Down syndrome\, spina bifida\, and Rett syndrome\, as well as for New Jersey school system parent groups. Additionally\, she has written quarterly newsletters for brothers and sisters (For Siblings Only\, for children aged 4-9\, and Sibling Forum\, for children aged 10 through teen) which are available on the web at the agency website www.frainc.org.\nShe also co-authored the book\, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. \nTheme: Siblings\nAudience: Parents. Professionals and whānau are welcome.
URL:https://nzdsa.org.nz/event/what-your-other-children-without-down-syndrome-are-thinking/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/what-yoiur-other-children.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261006T193000
DTEND;TZID=Pacific/Auckland:20261006T203000
DTSTAMP:20260906T061641Z
CREATED:20260904T232956Z
LAST-MODIFIED:20260906T061641Z
UID:18182-1791315000-1791318600@nzdsa.org.nz
SUMMARY:Together\, Not Alone: Supporting Relationships\, Connection and Belonging for People with Down Syndrome
DESCRIPTION:Together\, Not Alone: Supporting Relationships\, Connection and Belonging for People with Down Syndrome\nLoneliness is more than being alone—it is often the result of barriers to belonging\, connection and meaningful relationships. In this session\, Claire Ryan from To Be Frank will explore how families\, whānau and professionals can support people with Down syndrome to build healthy relationships\, develop self-advocacy skills\, understand boundaries\, and make informed choices about their lives. Drawing on practical experience in disability\, sexuality and relationship education\, this presentation will provide accessible strategies\, resources and conversation starters that help create opportunities for connection\, reduce social isolation\, and uphold the rights of people with Down syndrome to participate fully in their communities. Attendees will leave with greater confidence to support relationship wellbeing in ways that are respectful\, rights-based and person-centred. \nPresenter\nClaire Ryan\nFounder To Be Frank \nBiography\nClaire (Ōtākau/Otago) believes that the prevention and elimination of violence\, abuse and neglect experienced by disabled people are paramount – and she’s committed to this kaupapa.\nWith a near 40-year career working in disability\, Claire brings passion and drive\, especially in relation to human rights. She’s creative and motivational\, thriving on the energy of like-minded people.\nClaire’s working life has been dedicated to pushing the boundaries. She’s a firm believer in everyone’s right to live fully in their skin\, without negativity or discrimination. Claire believes in the mahi of VisAble to ensure the protection of everyone’s rights to citizenship and self-determination. \nTheme: Relationships\nAudience: Parents\, whānau and professionals \n 
URL:https://nzdsa.org.nz/event/together-not-alone-supporting-relationships-connection-and-belonging-for-people-with-down-syndrome/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/together-not-alone.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261007T120000
DTEND;TZID=Pacific/Auckland:20261007T130000
DTSTAMP:20260906T061722Z
CREATED:20260904T233200Z
LAST-MODIFIED:20260906T061722Z
UID:18185-1791374400-1791378000@nzdsa.org.nz
SUMMARY:Empowering Support for Breastfeeding Mothers of Babies with Down Syndrome
DESCRIPTION:Empowering Support for Breastfeeding Mothers of Babies with Down Syndrome\nThe World Health Organization (WHO) recognises breastfeeding as a critical component of infant health and feeding\, and this offers numerous benefits to babies\, including those with Down syndrome (World Health Organization\, 2019). This presentation examines the evidence supporting the unique advantages of breastfeeding for infants with Down syndrome and its potential to optimise their health outcomes. Research indicates that breastfeeding can play a crucial role in supporting the health and development of babies with Down syndrome. Breast milk provides essential nutrients\, antibodies\, and bioactive factors that support immune function and protect against infections\, which may be particularly beneficial for infants with Down syndrome\, who may be more susceptible to respiratory and gastrointestinal issues. Breastfeeding has been linked to improved cognitive development and speech-language outcomes in children with Down syndrome. The act of breastfeeding fosters bonding between mother and baby\, promoting emotional well-being and enhancing the parent-child relationship. This presentation highlights the importance of promoting and supporting breastfeeding among mothers of babies with Down syndrome. Strategies for overcoming potential challenges and barriers to breastfeeding in this population will be discussed\, along with the role of healthcare providers and support networks in facilitating successful breastfeeding experiences. This will also include services provided by the Australian Breastfeeding Association\, Australia’s leading authority on breastfeeding information\, education and support. By recognising the unique health benefits of breastfeeding for babies with Down syndrome and providing evidence-based support and guidance to mothers\, we can enhance the health and well-being of these infants and promote optimal developmental outcomes. \nPresenter\nHeather Miller\nA registered nurse specialising in intellectual disability nursing\, and a breastfeeding educator. \nBiography\nHeather Miller has worked in intellectual disability health for over 20 years and is a registered nurse specialising in intellectual disability nursing\, her initial nursing qualification. Her experience includes community learning disability nursing in the UK\, medical undergraduate teaching in developmental disability health\, content contributor in post-graduate nurse education on managing the heath needs of people with intellectual disability\, and disability case management in the non-government sector. She currently works as a disability practice nurse in general practice. \nHeather holds a Certificate IV in Breastfeeding Education (Community) and has been a breastfeeding educator with the Australian Breastfeeding Association for over 15 years. She provides education and support to expectant mothers\, and mothers who are breastfeeding their baby with Down syndrome\, and health professionals. She is a resource volunteer on breastfeeding and Down syndrome at ABA. Her most rewarding job however\, is being mum to her 11 year old son who has Down syndrome\, teaching her more than anything she has learnt in her career and training! \nTheme: Health and Development\nAudience: Parents\, whānau\, and professionals \n  \n  \n 
URL:https://nzdsa.org.nz/event/empowering-support-for-breastfeeding-mothers-of-babies-with-down-syndrome-2/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/empowering-support.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261007T160000
DTEND;TZID=Pacific/Auckland:20261007T180000
DTSTAMP:20260904T233428Z
CREATED:20260904T233428Z
LAST-MODIFIED:20260904T233428Z
UID:18188-1791388800-1791396000@nzdsa.org.nz
SUMMARY:IHC Disability Election Forum
DESCRIPTION:IHC Disability Election Forum\nRegister here IHC Election Event Registration 2026 – Join us at the Vote for Inclusive Futures Event \nTheme: Advocacy\nAudience: All welcome
URL:https://nzdsa.org.nz/event/ihc-disability-election-forum/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2026/09/Social-media-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261007T193000
DTEND;TZID=Pacific/Auckland:20261007T203000
DTSTAMP:20260906T061922Z
CREATED:20260904T233640Z
LAST-MODIFIED:20260906T061922Z
UID:18191-1791401400-1791405000@nzdsa.org.nz
SUMMARY:The Power of Sport: Connection\, Belonging and Participation
DESCRIPTION:The Power of Sport: Connection\, Belonging and Participation\nFran will share how sport creates opportunities for friendship\, belonging\, confidence and participation\, and the difference this can make in the lives of people with Down syndrome. \nPresenter\nFran Scholey\nChief Executive Officer of Special Olympics New Zealand. \nBiography\nFran Scholey is the Chief Executive Officer of Special Olympics New Zealand. In her role\, she focuses on elevating the organisation’s profile and fostering strategic relationships. Fran has re-established and strengthened relationships with Special Olympics clubs across New Zealand\, building trust and working together for the betterment of the community. She collaborates with stakeholders to redevelop the Special Olympics New Zealand Strategy\, ensuring alignment with the organisation’s mission. She is also working to diversify revenue streams to enhance financial stability and support athletes and volunteers. \nTheme: Health and Wellbeing\nAudience: All welcome
URL:https://nzdsa.org.nz/event/power-of-sport/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/the-power-of-sport.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261008T120000
DTEND;TZID=Pacific/Auckland:20261008T130000
DTSTAMP:20260906T062146Z
CREATED:20260904T233919Z
LAST-MODIFIED:20260906T062146Z
UID:18196-1791460800-1791464400@nzdsa.org.nz
SUMMARY:“Rights and Belonging” How practical understanding of rights can combat loneliness
DESCRIPTION:“Rights and Belonging” How practical understanding of rights can combat loneliness\nMatt and Brian will explore\, using practical examples\, how knowledge of rights and how to use them can reduce and combat loneliness. Whether it’s knowledge that you have the human right to connect together\, how you can use education to learn about friendship\, or even using culture to grow friendships\, human rights provide a powerful way of combatting loneliness. \nPresenters\nMatt Frost\nPrincipal Advisor in Whaikaha – the Ministry of Disabled People\nBrian Coffey\nChief Advisor to the Chief Executive at Whaikaha – Ministry of Disabled People. \nBiographies\nMatt Frost is a Principal Advisor in Whaikaha – the Ministry of Disabled People. Matt loves using his knowledge of world affairs and human rights to help enable good lives for disabled people. Matt also enjoys being on a range of boards and connecting with people through sport (especially cricket). \nBrian Coffey is Chief Advisor to the Chief Executive at Whaikaha – Ministry of Disabled People. He is passionate about building communities where disabled people feel welcome\, valued\, and connected. Brian works with disabled people\, whānau\, community organisations\, and government agencies to promote inclusion\, accessibility\, and equal opportunities for all. Brian started his career in education as a teacher and then in the Ministry of Education\, leading work on improving inclusive education. He loves rugby\, basketball and other sports. \nTheme: Advocacy\nAudience: All welcome
URL:https://nzdsa.org.nz/event/rights-and-belonging-how-practical-understanding-of-rights-can-combat-loneliness/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/matt-frost.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261008T193000
DTEND;TZID=Pacific/Auckland:20261008T203000
DTSTAMP:20260906T062116Z
CREATED:20260904T234106Z
LAST-MODIFIED:20260906T062116Z
UID:18198-1791487800-1791491400@nzdsa.org.nz
SUMMARY:Connecting with Volition
DESCRIPTION:Connecting with Volition\nWe all want connection. An important part of this is communicating to others the things that matter to you. This session will show how the Volition app can help you share what is important to you with other people. We will also look at the Whaimana website about Supported Decision Making and a new website for making Easy Read. \nPresenter\nErika Butters\nFounder of Volition \nBiography\nErika used to work as the Director of The Personal Advocacy and Safeguarding Adults Trust (PASAT)\, one of New Zealand’s only independent disability advocacy organisations.\nWhile continuing as an Advisor to PASAT\, she now is the Founder of Volition\, a social enterprise building digital tools for supported decision-making and self-determination. She also acts as the Chair of Whaimana\, the community and cross-government Supported Decision Making resource development group. \nTheme: Self-determination\nAudience: All welcome
URL:https://nzdsa.org.nz/event/connecting-with-volition/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/connecting-with-volition.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261009T120000
DTEND;TZID=Pacific/Auckland:20261009T130000
DTSTAMP:20260906T062255Z
CREATED:20260904T234334Z
LAST-MODIFIED:20260906T062255Z
UID:18202-1791547200-1791550800@nzdsa.org.nz
SUMMARY:An introduction to the online independent living and money game Stand Tall
DESCRIPTION:An introduction to the online independent living and money game Stand Tall\nStand Tall was designed by the IHC Library for all young people in New Zealand including those with intellectual disabilities\, neurodiversity and autism.\nStand Tall is a free online money game available to play on the web – www.ihc-standtall.com or download from the Google Play or Apple App stores.\nPlayers create an avatar\, learn about budgeting\, and navigate various scenarios. Each scenario offers three choices\, impacting the avatar’s financial and wellbeing scores. Stand Tall has voiceover\, and the scenarios are examples of events that can happen in a shared flat.\nIt’s a fun\, free and engaging learning experience.\nPhil will run through some of the features of the game\, how to play it and the background of how it was developed. \nPresenter\nPhil Clarke is the Head of Library and Information Resourcing at IHC Library\, Wellington \nBiography\nPhil has worked in tertiary and special libraries in the UK and New Zealand. He’s keen for everyone to know about the IHC Library and the service it provides to anyone\, anywhere in New Zealand\, who needs to know about intellectual disability\, autism and associated conditions. \nTheme: Independence\nAudience: All welcome \n 
URL:https://nzdsa.org.nz/event/an-introduction-to-the-online-independent-living-and-money-game-stand-tall/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/an-introduction.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261010T160000
DTEND;TZID=Pacific/Auckland:20261010T170000
DTSTAMP:20260906T062521Z
CREATED:20260904T234535Z
LAST-MODIFIED:20260906T062521Z
UID:18205-1791648000-1791651600@nzdsa.org.nz
SUMMARY:Friendship Matters: Building Real Connections
DESCRIPTION:Friendship Matters: Building Real Connections\nLearn more about the IHC Friendship Programme\, how it supports people to build genuine friendships and connections\, and how you can join the programme. \nPresenters\nHannah Verry\nOnline Volunteer Coordinator (National)\nIHC \nHamish Gilbert\nSelf-Advocate Ambassador for the Online Friendship Programme\nIHC \nBiographies\nHannah Verry is IHC’s Online Volunteer Coordinator\, supporting the national Online Friendship Programme. She helps connect people with intellectual disability with volunteers who share their interests\, supporting friendships and meaningful connections through online and phone-based activities. Hannah is passionate about creating opportunities for people to build friendships\, stay connected and be part of their communities\, wherever they live in Aotearoa New Zealand. \nHamish Gilbert is recognised for his achievements in education\, sport\, work\, and advocacy. He gained NCEA Levels 1 and 2 and the Duke of Edinburgh Gold Award\, and now works at Bunnings while running a recycling enterprise. A strong advocate for inclusion\, he has spoken nationally on accessibility. Hamish is also a decorated Special Olympics athlete\, named Athlete of the Year in 2022. He is also one of the NZDSA 2024 National Achievement Award recipients. \nTheme: Friendship\nAudience: All welcome\nJoin Zoom Meeting\nhttps://us02web.zoom.us/j/81766381423?pwd=MZIzcnvbtOAiWoxrbC2MZNqVB9PwOH.1\nMeeting ID: 817 6638 1423\nPasscode: 289952
URL:https://nzdsa.org.nz/event/friendship-matters-building-real-connections/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/friendship-matters.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261010T163000
DTEND;TZID=Pacific/Auckland:20261010T170000
DTSTAMP:20260906T062517Z
CREATED:20260904T234741Z
LAST-MODIFIED:20260906T062517Z
UID:18208-1791649800-1791651600@nzdsa.org.nz
SUMMARY:How I keep from being lonely
DESCRIPTION:How I keep from being lonely\nI’m talking about all of the activities I do to stay in touch with friends and feel like I’m part of the community. \nPresenter\nAmelia Eades\nSelf-advocate \nBiography\nI’m 29 and flatting with a friend in Auckland. I have two part time jobs\, I’m in Special Olympics Swimming\, I do activities with Recreate and I’m with a talent Agency called All Is For All. I have a busy life. \nTheme: Self-advocacy\nAudience: All welcome\nJoin Zoom Meeting\nhttps://us02web.zoom.us/j/82137026713?pwd=9Ity66UORsYL9lxVQQLm338hS0uhdD.1\nMeeting ID: 821 3702 6713\nPasscode: 611298
URL:https://nzdsa.org.nz/event/how-i-keep-from-being-lonely/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/how-i-keep-from-being-lonely.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261012T120000
DTEND;TZID=Pacific/Auckland:20261012T130000
DTSTAMP:20260906T062734Z
CREATED:20260904T234938Z
LAST-MODIFIED:20260906T062734Z
UID:18211-1791806400-1791810000@nzdsa.org.nz
SUMMARY:Friendship Matters: Planning Opportunities for Connection\, Capability and Wellbeing
DESCRIPTION:Friendship Matters: Planning Opportunities for Connection\, Capability and Wellbeing\nFriendship is a key part of wellbeing\, belonging and a good life\, yet opportunities for friendship and social connection do not always happen naturally for people with Down syndrome.\nDrawing on my PhD Theory of Wellbeing\, in which friendship is a key domain\, and my subsequent capability work\, I will explore how we can intentionally plan and organise opportunities for friendship\, social participation and connection.\nI will consider how building social capability — getting along with others\, communicating\, participating\, making choices and developing independence — can support people with Down syndrome to build and sustain relationships across school\, work and community life.\nLinking with the 2026 World Down Syndrome Day theme\, Together Against Loneliness\, I will move beyond simply recognising loneliness to consider what we can practically do to create the opportunities\, environments and supports in which friendship can grow.\nWe cannot manufacture friendship\, but we can plan opportunities and build the capability that make friendship possible. \nPresenter\nDr Maree Kirk\nDirector of the Bay of Plenty Down Syndrome Association and National Director of Supporting Teaching Practice for Students with Learning Disability and Down syndrome (STPDS) \n  \nBiography\nDr Maree Kirk is a wellbeing and capability consultant with extensive experience across health\, education\, disability\, and inclusive practice. She is the Director of the Bay of Plenty Down Syndrome Association and National Director of Supporting Teaching Practice for Students with Learning Disability and Down syndrome (STPDS)\, a professional learning and development programme reaching more than 600 participants annually. Dr Kirk led the first Ministry of Education pilot projects for professional development focused on students with learning disability and Down syndrome and served as Contract Director of the Network of Expertise (NEX)\, the first national contract of its kind. Her PhD research developed the theory of wellbeing for children and young people with disability\, centred on three principles — acceptance\, recognition\, and supported independence — which underpins her Capability Model for inclusive education in Aotearoa New Zealand \nTheme: Education and Wellbeing\nAudience: Parents\, whānau and professionals \n 
URL:https://nzdsa.org.nz/event/friendship-matters-planning-opportunities-for-connection-capability-and-wellbeing/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/friendship-matters-maree-kirk.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261012T193000
DTEND;TZID=Pacific/Auckland:20261012T203000
DTSTAMP:20260904T235145Z
CREATED:20260904T235145Z
LAST-MODIFIED:20260904T235145Z
UID:18214-1791833400-1791837000@nzdsa.org.nz
SUMMARY:Helping Children with Down Syndrome Sleep Better: Poor Sleep Isn’t “Just Part of It”
DESCRIPTION:Helping Children with Down Syndrome Sleep Better: Poor Sleep Isn’t “Just Part of It”\nSleep problems are often normalised in children with Down syndrome. Families may not seek help\, thinking this is “part” of having a child with Down syndrome or may be dismissed when presenting to health professionals. However\, sleep is one of the few modifiable factors that can contribute to improved outcomes for children with Down syndrome and their families. This talk will focus on the importance of seeking support for sleep challenges in children with Down syndrome\, highlighting the debilitating impact on both child and family from chronic sleep disruption and outlining an approach to management of both respiratory and non-respiratory sleep problems. \nPresenter\nAssociate Professor Jasneek Chawla is a Paediatric Respiratory and Sleep Medicine Specialist at Queensland Children’s Hospital\, Brisbane. She also leads the Kids Sleep Research Group at the Child Health Research Centre and is President of the Australasian Sleep Association \n\nBiography\nAssociate Professor Jasneek Chawla is an experienced physician and a clinician researcher with an interest in sleep in children with complex disability and in developing emerging paediatric sleep technologies. In 2025\, she was awarded the CHQ Research in Excellence Award and acknowledged for her research by the Australian Institute of Policy and Science\, voted as one of Queensland’s ten Young Tall Poppies. Jas is the president of the Australasian Sleep Association\, the national peak body for sleep professionals- she is the first paediatric specialist to undertake this role. Jas is also part of the UQ disability collaboratory leadership group and is a strong advocate for children with disability and chronic illness. She collaborates widely with many consumer representative organisations\, including a long-standing relationship with Down Syndrome Australia. She works alongside individuals with lived experience through her research\, directing and translating her findings into clinical practice. \nTheme: Health\nAudience: Parents\, professionals and whānau \n 
URL:https://nzdsa.org.nz/event/helping-children-with-down-syndrome-sleep-better-poor-sleep-isnt-just-part-of-it/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/jasneek-chawla.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261013T120000
DTEND;TZID=Pacific/Auckland:20261013T130000
DTSTAMP:20260904T235342Z
CREATED:20260904T235342Z
LAST-MODIFIED:20260904T235342Z
UID:18217-1791892800-1791896400@nzdsa.org.nz
SUMMARY:Capacity\, Communication and Co-regulation
DESCRIPTION:Capacity\, Communication and Co-regulation\nThis interactive session explores behaviour as communication\, drawing on the principle that children do well when they can (Dr Ross Greene). Grounded in the conference theme of Together Against Loneliness\, we will discuss how reduced confidence in responding to expressions of distress can lead to families becoming more isolated and withdrawing from community connections.\nThe session will cover three key areas — Capacity\, Communication and Co-regulation — and will be relevant to both whānau and professionals supporting people with Down syndrome. We will explore how to recognise early signs of distress\, blocks that may arise from experience of overwhelm or communication differences\, and co-regulation as a foundational skill. We will also give a brief overview of Explore’s behaviour support services and how to access them. \nPresenters\nCarolyn Stobbs\nBehaviour Support\nExplore Hāpainga Ora \nJanieke de Graaf\nBehaviour Support / Registered Nurse\nExplore Hāpainga Ora \n\nBiographies\nCarolyn Stobbs has worked for Explore for just over two years\, and has a background working in disability through education and advocacy. In a previous role\, she worked with the Down Syndrome Association alongside the STRIVE Group. Carolyn is a strong advocate for people having a voice and genuine choice in their own lives and is particularly passionate about supported decision-making — ensuring people are well supported to make authentic choices about what matters to them. \n  \nJanieke de Graaf works in Behaviour Support at Explore Hāpainga Ora and has a background in holistic and integrative health\, nursing and nurse prescribing in general practice\, homeopathy\, and supervision. She is a mother of two neurodivergent children and is an ADHDer herself. Janieke particularly enjoys the detective work of understanding what drivers lie behind behavioural expressions\, and finding creative\, playful ways to work with them — supporting families to find what works for them to thrive. \n  \nTheme: Communication and Education\nAudience: Parents\, professionals and whānau \n 
URL:https://nzdsa.org.nz/event/capacity-communication-and-co-regulation/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2026/09/carolyn-stobbs.png
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261013T193000
DTEND;TZID=Pacific/Auckland:20261013T203000
DTSTAMP:20260904T235530Z
CREATED:20260904T235530Z
LAST-MODIFIED:20260904T235530Z
UID:18220-1791919800-1791923400@nzdsa.org.nz
SUMMARY:Manage My Health – Down Syndrome Style
DESCRIPTION:Manage My Health – Down Syndrome Style\nEmpowering Families/Whānau Every Step of the Way.\nAn interactive online session for parents\, family members\, and advocates. This session will provide you with information about where to find health advice and support services for children and young people with Down Syndrome. \nPresenters:\n• Anna Tiatia Fa’atoese Latu\nProgram Director for the Doctor of Medicine program within the New Zealand Graduate School of Medicine.\n• Heidi Meyer\nSpeech and Language Therapist\, Te Whatu Ora Hutt Valley\n• Merryn Robertson\nPaediatric Physiotherapist at Hope in Motion Paediatric Therapy (Private practice)\, with contracts to Habit Health (ACC rehab) and Te Whatu Ora (acute respiratory).\n• Rosemary Marks\nDevelopmental Paediatrician (Retired)\n• Sara Edwards\nPaediatric Physiotherapist at Habit Health \n\nBiographies\nKia ora. Ko Anna Tiatia Fa’atoese Latu toku ingoa (Kāi Tahu). I joined the University of Waikato in April 2024 and currently serve as the Program Director for the Doctor of Medicine program within the New Zealand Graduate School of Medicine. Previously holding the role of Associate Dean Māori within the Division of Health\, I led the equity curriculum development for innovative clinical programs\, including the Master of Pharmacy Practice and Master of Midwifery Practice\, alongside dedicated interprofessional teams. My academic leadership and research are anchored in Hauora Māori\, workforce development\, and a deep-seated commitment to transforming health equity across Aotearoa New Zealand. \nHeidi is a Speech-Language Therapist working at the Child Development Service\, Hutt Valley. In this role\, she is part of a multidisciplinary team working with young people through the developmental assessment process. She also works with tamariki to support safe feeding\, eating\, and drinking skills. Heidi is especially interested in working collaboratively with whānau and other professionals to provide holistic support for tamariki and rangatahi. Having an older sibling with Down syndrome has given her a valuable personal perspective and strengthened her passion for advocacy. \nMerryn is an experienced physiotherapist working across health\, education\, and private practice to support the physical development of tamariki and rangatahi within their homes\, schools\, and clinic. She is dedicated to helping young people reach their full potential by integrating engaging fitness activities with evidence-based clinical care. As a passionate advocate for mobility\, Merryn focuses on optimizing movement and reducing pain to enhance the overall wellbeing of the children and whānau she serves. \nRosie trained in Paediatrics in Auckland\, and in the UK. Since 2020 She has led the Down Syndrome Clinical Guidance workstream working to provide accessible quality information for health professionals working with children and young people with Down Syndrome. The team has also had substantial input into the updating of the information for whānau on the Kidshealth website. \nSara Edwards is a Paediatric Physiotherapist at Habit Health in Dunedin with experience working with young people with Down syndrome. When the opportunity arose to assist with updating the Down Syndrome clinical guidelines\, she readily agreed to contribute her expertise. Sara is passionate about the value of physiotherapy for people with Down syndrome and is committed to empowering families and individuals to advocate for physiotherapy support. \nTheme: Health\nAudience: Parents\, professionals and whānau \n 
URL:https://nzdsa.org.nz/event/manage-my-health-down-syndrome-style/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261014T120000
DTEND;TZID=Pacific/Auckland:20261014T130000
DTSTAMP:20260904T235737Z
CREATED:20260904T235737Z
LAST-MODIFIED:20260904T235737Z
UID:18222-1791979200-1791982800@nzdsa.org.nz
SUMMARY:From Data to Dignity 2026: new insights and evidence
DESCRIPTION:From Data to Dignity 2026: new insights and evidence\nThis presentation will explore what the latest data tells us about the lives and experiences of people with intellectual disability in Aotearoa New Zealand. It will provide an update on From Data to Dignity\, highlighting key changes and ongoing inequalities\, before turning to Untapped Potential\, IHC’s new research into employment and the barriers that prevent people with intellectual disability from fully participating in the workforce. The presentation will also preview forthcoming research into special schools\, examining educational experiences and outcomes and what the data tells us about different schooling settings. Together\, these three pieces of research provide a picture of where people with intellectual disability are being excluded and where there are opportunities to do things differently. \nPresenter\nShara Turner\nSenior Advocate\, IHC \nBiography\nShara is a dedicated advocate for the rights of intellectually disabled people\, with a robust background in law and a passion for fostering inclusivity. Transitioning from her legal practice in Australia to her current advocacy work in New Zealand\, Shara leverages her expertise in privacy law and human rights to drive meaningful societal change.\nShara’s legal career focused on navigating complex privacy law landscapes\, advising clients on data protection\, compliance\, and safeguarding sensitive information. Her deep understanding of privacy legislation across Australia and New Zealand has equipped her to champion the rights of marginalised individuals effectively.\nNow fully immersed in advocacy\, Shara is committed to dismantling ableism and creating a society that values the strengths and contributions of intellectually disabled people. She is particularly passionate about using data to highlight systemic barriers and promote evidence-based solutions\, ensuring that the voices of those she represents are heard and respected. \nTheme: Research and advocacy \nAudience: Parents\, whānau and professionals \n  \n 
URL:https://nzdsa.org.nz/event/from-data-to-dignity-2026-new-insights-and-evidence/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/shara-turner.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261014T130000
DTEND;TZID=Pacific/Auckland:20261014T140000
DTSTAMP:20260904T235932Z
CREATED:20260904T235932Z
LAST-MODIFIED:20260904T235932Z
UID:18225-1791982800-1791986400@nzdsa.org.nz
SUMMARY:Community connection: Shifting the inclusion focus
DESCRIPTION:Community connection: Shifting the inclusion focus\nThis workshop is designed for neighbours\, peers\, community leaders and local groups who want some simple\, actionable ways to be inclusive community members for the people who have Down Syndrome in their community.\nPolly Newton will share practical strategies for community-minded people to build meaningful\, two-way connections and communication with people who have Down syndrome.\nParents already have impossibly long to-do lists\, so this session isn’t about giving families more tasks. Instead\, it equips the wider community with the tools\, practical resources\, and points them towards existing programmes to support them to actively step in\, reduce isolation\, and share the joy of connection.\nPolly clearly remembers wanting to interact with people with Down Syndrome and other additional needs at her school and in her community\, prior to training as a Speech Language Therapist\, but she didn’t know how\, and nobody thought to show her. This workshop shares the information she wished she’d had\, all those years ago. \nPresenter\nPolly Newton\nSpeech Language Therapist\nExpert Adviser Speech Sound Disorders\, New Zealand Speech-Language Therapists Association \nMeet Polly\, the friendly face behind Speech Teacher! With a heart full of dedication\, Polly launched Speech Teacher to lend a helping hand to parents and children navigating speech challenges. As a seasoned Speech Language Therapist and a parent herself\, Polly understands the realities of family life. Her mission? Ensuring that everyone’s voice is heard loud and clear\, without any doubts. \nPolly holds a Bachelor of Speech Language Therapy from Massey University\, Auckland\, New Zealand\, though she jokes it sounds more like a delicious sandwich (mmm\, B.SLT!). She’s proudly affiliated with the New Zealand Speech-Language Therapists’ Association (NZSTA) as a registered member and expert adviser for speech sound disorders. \nWith over 20 years of expertise in the New Zealand education sector\, Polly’s journey has been remarkable. Her path includes roles with the Ministry of Education\, Accident Compensation Corporation (ACC)\, Rural Education Activities Programme (REAP)\, and Special Schools\, among others. She’s now been running and evolving Speech Teacher – her private practice (and third baby) for over 13 years. \nThrough the years\, Polly’s honed her craft to perfection. She’s not just about teaching and speeching; she’s about working collaboratively to achieve the best outcomes for everyone and in the process\, delivering an exceptional experience. By staying updated with the latest research\, listening and adapting to families’ needs\, and embracing newfound inspirations\, Polly ensures that her practice continues to evolve in the best possible way. Perfecting her approach is a top priority – all to serve families like yours\, in the most remarkable way. \nTheme: Communication\nAudience: Parents\, whānau and professionals
URL:https://nzdsa.org.nz/event/community-connection-shifting-the-inclusion-focus/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/polly-newton.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261014T190000
DTEND;TZID=Pacific/Auckland:20261014T193000
DTSTAMP:20260905T000046Z
CREATED:20260905T000046Z
LAST-MODIFIED:20260905T000046Z
UID:18228-1792004400-1792006200@nzdsa.org.nz
SUMMARY:Education For All Election Forum
DESCRIPTION:14th October\n7.00pm or 7.30pm TBC \nEducation For All Election Forum \nDetails to TBC via the NZDSA Website and Facebook \nTheme: Education and advocacy \nAudience: All welcome \n 
URL:https://nzdsa.org.nz/event/education-for-all-election-forum/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261015T120000
DTEND;TZID=Pacific/Auckland:20261015T130000
DTSTAMP:20260905T000224Z
CREATED:20260905T000224Z
LAST-MODIFIED:20260905T000224Z
UID:18230-1792065600-1792069200@nzdsa.org.nz
SUMMARY:Your health and disability Code of Rights
DESCRIPTION:Your health and disability Code of Rights\nThe Office of the Health and Disability Commissioner and the Independent Advocacy Service will discuss your rights and how to advocate for them when receiving health and disability services. \nPresenters\nRose Wall\nDeputy Health and Disability Commissioner\nOffice of the Health and Disability Commissioner\nDr Esther Woodbury\nPrincipal Advisor\nOffice of the Health and Disability Commissioner\nRandal Southee\nChief Executive\nNational Advocacy Trust \nBiographies\nRose Wall is focused on the rights of disabled people when using health and disability services and is committed to improving the accessibility and responsiveness of HDC’s complaints process for disabled people I tāngata whaikaha. \nDr Esther Woodbury is a disability and human rights researcher and advisor. Esther has worked in disability across government\, tertiary education and community sectors\, in research\, monitoring\, community engagement and governance. \nRandal Southee is the CEO for the National Advocacy Trust\, who are contracted through the Director of Advocacy and under the Code of Rights to provide free and independent health & disability consumer advocacy across the motu to all people who use a health or disability service. \nTheme: Health and advocacy\nAudience: Parents\, whānau and professionals \n 
URL:https://nzdsa.org.nz/event/your-health-and-disability-code-of-rights/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261015T193000
DTEND;TZID=Pacific/Auckland:20261015T203000
DTSTAMP:20260905T000419Z
CREATED:20260905T000419Z
LAST-MODIFIED:20260905T000419Z
UID:18232-1792092600-1792096200@nzdsa.org.nz
SUMMARY:Friendship as a bridge from loneliness to connection
DESCRIPTION:Friendship as a bridge from loneliness to connection\nSelf-advocates with Down syndrome explore friendships\nFriendship is a universal human experience that plays a significant role in shaping individual well-being\, social inclusion\, and our sense of belonging. Research consistently shows that friendship is among the most meaningful interpersonal relationships people form\, contributing to connection\, belonging\, and life satisfaction.\nThis presentation shares findings from a research project in which self-advocates with Down syndrome and activist researchers worked together as co-researchers to explore friendship formation and experiences. The research highlights what people with Down syndrome value in a friend\, the importance of friendship in their lives\, and the barriers they encounter in maintaining friendships. Importantly\, the project centres the voices and lived experiences of people with Down syndrome\, with self-advocates taking an active role in interviewing their peers and bringing their perspectives into the research process. In doing so\, the project demonstrates the value of inclusive research\, where people with lived experience are not only participants but also actively contribute to creating knowledge about issues that directly affect their lives. \nPresenters\nSTRIVE members and Dr Franco Vaccarino \nBiographies\nErin Smith is a founding member of STRIVE\, the NZDSA self- advocacy and leadership and advisory group. \nAndrew Oswin is a founding member of STRIVE\, now a founding member of STEP-UP and currently the New Zealand representative on the Down Syndrome International Ambassador programme. \nDr Franco Vaccarino is a researcher specialising in intercultural communication and has been involved in several international collaborative research projects. He is also passionate about inclusive research\, in which people with learning disabilities are actively involved as co-designers and co-researchers in research that concerns their lives and experiences. \nAs an activist researcher\, Franco seeks to challenge traditional power relationships between researchers and people with learning disabilities by supporting them to become active contributors\, leaders and producers of knowledge. Emerging research paradigms\, models and methodologies have increasingly opened the research process to people with learning disabilities\, recognising the value of their lived experience and expertise. \nFor Franco\, inclusive research means conducting research with and by people with learning disabilities\, rather than simply conducting research about them. It therefore places their voices\, experiences and active participation at the centre of the research process. \nTheme: Friendship\nAudience: All welcome \n 
URL:https://nzdsa.org.nz/event/friendship-as-a-bridge-from-loneliness-to-connection/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/strive.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261016T120000
DTEND;TZID=Pacific/Auckland:20261016T130000
DTSTAMP:20260905T000558Z
CREATED:20260905T000558Z
LAST-MODIFIED:20260905T000558Z
UID:18235-1792152000-1792155600@nzdsa.org.nz
SUMMARY:The Recreate Way – Across Aotearoa
DESCRIPTION:The Recreate Way – Across Aotearoa\nEmbodying and exemplifying the principles of EGL – the who\, how\, where\, and why of Recreate NZ.\nJourneying with and for disabled youth. \nPresenters\nBrent Jenkin\nGeneral Manager \nZoe Reining\nProgramme Coordinator and Facilitator at Recreate NZ \n\nBiographies\nBrent is an enthusiastic outdoorsman on the trails and the water. Brent has just celebrated 15 incredible years as the General Manager of Recreate NZ.\nPrior to Recreate NZ\, Brent led North Shore Riding for the Disabled for 5 years. \nZoe is a Programme Coordinator and Facilitator at Recreate NZ. She currently coordinates and facilitates Recreate’s work experience programmes as well as the Youth Board. Since July 2025\, she has also been the ADSA Social Club Coordinator. Zoe is bringing an international background with her and is passionate about topics of social and environmental justice. \nTheme: Connection\nAudience: Parents\, whānau and professionals
URL:https://nzdsa.org.nz/event/the-recreate-way-across-aotearoa/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261017T160000
DTEND;TZID=Pacific/Auckland:20261017T170000
DTSTAMP:20260905T000757Z
CREATED:20260905T000757Z
LAST-MODIFIED:20260905T000757Z
UID:18237-1792252800-1792256400@nzdsa.org.nz
SUMMARY:Safer Walking
DESCRIPTION:Safer Walking\nThis presentation introduces Safer Walking\, a free\, national programme that promotes independence\, choice\, and inclusion\, by providing tools and strategies that support people with disabilities like Down syndrome to independently navigate their community\, while reducing personal risk.\nLearn about Safer Walking’s practical safety strategies\, available resources\, and how families\, whānau\, and support networks can work together to help people be in their communities with confidence while maintaining their freedom and connection to their community. \nPresenters\nLiz Henderson\nNational Public Safety Manager/Safer Walking Coordinator-New Zealand Land Search and Rescue \nSamantha Richards\nSafer Walking Ambassador \nNick Richards\nSafer Walking Ambassador \nBiographies\nLiz Henderson is the National Public Safety Manager for New Zealand Land Search and Rescue. With a background in disability\, health\, sport\, and emergency response\, Liz is passionate about helping people live active\, connected\, and independent lives while reducing risks to their safety and wellbeing. Liz leads Land Search and Rescue’s Safer Walking Initiative\, a national programme that provides practical tools\, resources\, and strategies to support people who may be at risk of becoming lost or going missing in the community. The disability community is a key focus for the initiative. Liz leads a range of stakeholders and organisations to promote approaches that balance safety with independence and quality of life. \nSamantha Richards and Nick Richards are proud to be ambassadors for the Safer Walking Initiative. Samantha’s younger brother Nick\, who is 25 and has Down Syndrome\, has been the driving force behind her passion for creating a safer and more inclusive world. As a family\, they are committed to learning\, growing\, and supporting Nick to live as safely and independently as possible. Being part of Safer Walking is a meaningful step in helping raise awareness and ensuring that people of all abilities can navigate their communities with confidence. \nTheme: Connections\nAudience: All welcome \nJoin Zoom Meeting\nhttps://us02web.zoom.us/j/85391346886?pwd=8frdFakcplaJrKq8tl9fTrlWLu8zN0.1\nMeeting ID: 853 9134 6886\nPasscode: 632855
URL:https://nzdsa.org.nz/event/safer-walking/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2026/09/samantha-and-nick.png
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261017T163000
DTEND;TZID=Pacific/Auckland:20261017T170000
DTSTAMP:20260905T000940Z
CREATED:20260905T000940Z
LAST-MODIFIED:20260905T000940Z
UID:18240-1792254600-1792256400@nzdsa.org.nz
SUMMARY:Through My Eyes: My Latest Photographic Project in Collaboration with the NZDSA
DESCRIPTION:Through My Eyes: My Latest Photographic Project in Collaboration with the NZDSA\nPhotography allows me to see the beauty in the world through my own eyes and share it with others. In my latest project\, I want to capture the beauty\, personality and uniqueness of people with Down syndrome through photographs and their stories. I hope this project will help people see the person behind the photograph and encourage others with Down syndrome to follow their dreams and share their own talents with the world. \nPresenter\nCarlos Biggemann\nInternational Award-winning photographer\, poet\, STEP-UP member \nBiography\nCarlos is a renowned photographer who has received numerous international awards. He is also a poet and has numerous publications. You may recognise him as he has appeared on a few television programmes\, most recently\, he was one of the cast members on Down For Love. Carlos is a public speaker and an active self-advocate. Carlos has received a range of awards including winning the Attitude Creative Award at the Attitude Awards in 2021. \nTheme: Self-advocacy\nAudience: All welcome\nJoin Zoom Meeting\nhttps://us02web.zoom.us/j/81223265710?pwd=JJ0yQHX5CASLoLKlbq4d5zdZKETnSn.1\nMeeting ID: 812 2326 5710\nPasscode: 615830 \n 
URL:https://nzdsa.org.nz/event/through-my-eyes-my-latest-photographic-project-in-collaboration-with-the-nzdsa/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/carlos-biggeman.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
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BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261019T120000
DTEND;TZID=Pacific/Auckland:20261019T130000
DTSTAMP:20260905T001111Z
CREATED:20260905T001111Z
LAST-MODIFIED:20260905T001111Z
UID:18243-1792411200-1792414800@nzdsa.org.nz
SUMMARY:Tools and tips for talking about sexual wellbeing
DESCRIPTION:Tools and tips for talking about sexual wellbeing\nThis session introduces Sexual Wellbeing Aotearoa (formally Family Planning). Resources available\, include Easy Read; Consent for Sex; and a new sexual wellbeing programme ‘Bodies\, Boundaries and Being Me’. Attendees will come away with an understanding of resources available and a clearer sense of how to support open\, confident conversations about sexual wellbeing. \nPresenter\nLeah Rothman\nHealth Promotion Specialist\nSexual Wellbeing Aotearoa \nBiography\nI’ve been working in the social services world for over 20 years\, walking alongside young people\, their whānau\, communities and the people that support them. \nI have a background in Social Work\, Youth Work\, Development Studies\, and Social Service Supervision\, providing direct client work\, programme development and facilitation\, project management and clinical supervision. Most recently\, I have worked in the alcohol and drug and sexual wellbeing space. \nI love working with people and communities to help create positive change where it’s needed most. My mahi is client- and community-led\, strengths-based and designed to spark reflection\, action and change.\nI’m currently based in the Wairarapa with my partner\, our small children\, a dog\, and some spirited chickens. I’ve spent a lot of my life travelling but always return to living in the Wellington region. \nTheme: Health and Sexual wellbeing\nAudience: Parents\, whānau and professionals
URL:https://nzdsa.org.nz/event/tools-and-tips-for-talking-about-sexual-wellbeing/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/leah-rothman.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
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BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261019T193000
DTEND;TZID=Pacific/Auckland:20261019T200000
DTSTAMP:20260905T001302Z
CREATED:20260905T001302Z
LAST-MODIFIED:20260905T001302Z
UID:18246-1792438200-1792440000@nzdsa.org.nz
SUMMARY:Home & School: Joyful connections and a strong relationship
DESCRIPTION:Home & School: Joyful connections and a strong relationship\nI’m presenting in my capacity as a parent\, not in a professional capacity. My daughter Charlotte is in Year 5 at our local primary school. I’ll be sharing with you about this journey so far\, and how we work together with our school to ensure that we have a strong relationship. It’s a long-term relationship\, and it’s not always smooth – but I’ve learned some important things along the way.\nI’ll talk about how we communicate\, plan and solve problems together. And how our focus has changed over the last 5 years.\nThis year\, we have been focusing on friendships and building social connections through school and outside of school. I’m passionate about ensuring Charlotte’s continued participation in school and community life. And educating those around her to best support\, understand and include her.\nThis is suitable for anyone who has a child starting school soon or who has already started primary \nPresenter\nPaula Beguely\nParent\nADSA Education & Information Facilitator \nBiography\nI live in Auckland\, with my husband Tom\, and two beautiful daughters\, Harriet (13) and Charlotte (10). Our journey with the Down syndrome community started when Charlotte was born in 2016. I was the Community Liaison with Auckland Down Syndrome Association for 6 years\, and now I’m in a new role as Education & Information Facilitator. \n  \nTheme: Education and advocacy\nAudience: Parents\, whānau and professionals \n 
URL:https://nzdsa.org.nz/event/home-school-joyful-connections-and-a-strong-relationship-2/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/paula-beguely.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
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BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261020T120000
DTEND;TZID=Pacific/Auckland:20261020T130000
DTSTAMP:20260905T001457Z
CREATED:20260905T001457Z
LAST-MODIFIED:20260905T001457Z
UID:18247-1792497600-1792501200@nzdsa.org.nz
SUMMARY:Brain Train: SMART Actions That Might Boost Cognition and Prevent Alzheimer’s Disease in People with Down Syndrome
DESCRIPTION:Brain Train:\nSMART Actions That Might Boost Cognition and Prevent Alzheimer’s Disease in People with Down Syndrome\nTwo of the most common\, yet challenging\, questions that Dr. Skotko is asked by caregivers: (1) How can you prevent Alzheimer’s disease in people with Down syndrome? (2) How might we boost their cognition? While exciting research is unfolding in laboratories across the world\, there are strategies that caregivers can take right now in respect to these two questions. In this presentation\, Dr. Skotko reveals his recommendations\, which must meet all of the following criteria: (a) supported\, in part\, by quality science\, (b) have practical applications for home\, (c) be adaptable to people with Down syndrome\, and (d) pose no risk to people with Down syndrome. This is not a presentation on how best to educate people with Down syndrome. This is not a presentation about supplements or nutraceuticals. Instead\, Dr. Skotko provides a set of actions that caregivers can take that might improve the long-term wellness for their loved one with Down syndrome. Attendees will come away with immediate steps that can be implemented in their homes. \nPresenter\nDr Brian Skotko\nA Board-certified medical geneticist\, Dr Skotko is the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital. Director of the hospital’s Down Syndrome Program. \nBiography\nDr Brian Skotko\nA Board-certified medical geneticist\, Dr Skotko is the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital. As the Director of the hospital’s Down Syndrome Program\, he has dedicated his professional energies toward children with cognitive and development disabilities. He co-authored the national award-winning books\, Common Threads: Celebrating Life with Down Syndrome and Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University\, Harvard Medical School\, and Harvard Kennedy School\, and he is currently an Associate Professor at Harvard Medical School. Dr Skotko is a leader on clinical and translational research about Down syndrome. He has been featured in The Wall Street Journal\, The New York Times\, The Washington Post\, The L.A. Times\, NPR’s “On Point\,” and ABC’s “Good Morning America.” Dr Skotko has a sister with Down syndrome and serves on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress. \nTheme: Health\nAudience: All welcome \n  \n 
URL:https://nzdsa.org.nz/event/brain-train-smart-actions-that-might-boost-cognition-and-prevent-alzheimers-disease-in-people-with-down-syndrome-2/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2026/09/brian.png
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
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END:VCALENDAR