BEGIN:VCALENDAR VERSION:2.0 PRODID:-//New Zealand Down Syndrome Association (NZDSA) - ECPv6.15.17//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:New Zealand Down Syndrome Association (NZDSA) X-ORIGINAL-URL:https://nzdsa.org.nz X-WR-CALDESC:Events for New Zealand Down Syndrome Association (NZDSA) REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Pacific/Auckland BEGIN:STANDARD TZOFFSETFROM:+1300 TZOFFSETTO:+1200 TZNAME:NZST DTSTART:20230401T140000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1200 TZOFFSETTO:+1300 TZNAME:NZDT DTSTART:20230923T140000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+1300 TZOFFSETTO:+1200 TZNAME:NZST DTSTART:20240406T140000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1200 TZOFFSETTO:+1300 TZNAME:NZDT DTSTART:20240928T140000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+1300 TZOFFSETTO:+1200 TZNAME:NZST DTSTART:20250405T140000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1200 TZOFFSETTO:+1300 TZNAME:NZDT DTSTART:20250927T140000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+1300 TZOFFSETTO:+1200 TZNAME:NZST DTSTART:20260404T140000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1200 TZOFFSETTO:+1300 TZNAME:NZDT DTSTART:20260926T140000 END:DAYLIGHT END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241012T163000 DTEND;TZID=Pacific/Auckland:20241012T173000 DTSTAMP:20260407T131721 CREATED:20240926T090515Z LAST-MODIFIED:20241005T195129Z UID:14632-1728750600-1728754200@nzdsa.org.nz SUMMARY:Diving off the Blocks: Being a Pioneer on the S18 Swimming Competition Pathway DESCRIPTION:Register Here URL:https://nzdsa.org.nz/event/diving-off-the-blocks-being-a-pioneer-on-the-s18-swimming-competition-pathway/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241014T193000 DTEND;TZID=Pacific/Auckland:20241014T213000 DTSTAMP:20260407T131721 CREATED:20240926T090810Z LAST-MODIFIED:20240926T091125Z UID:14636-1728934200-1728941400@nzdsa.org.nz SUMMARY:Easy Tips for Home to Support Early Development Through Play and Connection DESCRIPTION:It is commonly known that ‘early intervention’ is key in ensuring the best possible outcomes for children with Down syndrome. And while access to a comprehensive team of therapists to support this is ideal\, it is often not an option in Aotearoa for all whānau. However\, there is a lot that families can do without specialist equipment or training that will naturally support their toddlers’ development. Through small changes to daily routines and play\, caregivers can lay a lifelong foundation of connection\, curiosity and independence. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Clare Pudney\n \n Clare Pudney is a Speech Language Therapist and Clinical Director of the Pudney Hub\, an early intervention centre based in the Hawke’s Bay for children under 6. She has over 15 years experience\, including time in early intervention services in Australia\, establishment of disability services in Laos and specialist schools in New Zealand. Her passion is nurturing communication and connection in whatever form works best for children and their whānau. Her approach has a strong emphasis on play being the best vehicle for supporting the development of the whole child. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Register here URL:https://nzdsa.org.nz/event/easy-tips-for-home-to-support-early-development-through-play-and-connection/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241015T120000 DTEND;TZID=Pacific/Auckland:20241015T130000 DTSTAMP:20260407T131722 CREATED:20240926T091308Z LAST-MODIFIED:20240926T091649Z UID:14641-1728993600-1728997200@nzdsa.org.nz SUMMARY:Brain Train: SMART Actions That Might Boost Cognition and Prevent Alzheimer's disease in people with Down syndrome DESCRIPTION:Two of the most common\, yet challenging\, questions that Dr Skotko is asked by caregivers: (1) How can you prevent Alzheimer’s disease in people with Down syndrome? and (2) How might we boost their cognition? While exciting research is unfolding in laboratories across the world\, there are strategies that caregivers can take right now in respect to these two questions. \nIn this presentation\, Dr Skotko reveals his recommendations. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Dr Brian Skotko\n \n A Board-certified medical geneticist\, Dr. Skotko is the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital. As the Director of the hospital’s Down Syndrome Program\, he has dedicated his professional energies toward children with cognitive and development disabilities. \nHe co-authored the national award-winning books\, Common Threads: Celebrating Life with Down Syndrome and Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University\, Harvard Medical School\, and Harvard Kennedy School\, and he is currently a Professor of Pediatrics at Harvard Medical School. Dr. Skotko is a leader on clinical and translational research about Down syndrome. He has been featured in The Wall Street Journal\, The New York Times\, The washington Post\, The L.A. Times\, NPR’s “On Point\,” and ABC’s “Good Morning America.” Dr. Skotko has a sister with Down syndrome and serves on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Register Here URL:https://nzdsa.org.nz/event/brain-train-smart-actions-that-might-boost-cognition-and-prevent-alzheimers-disease-in-people-with-down-syndrome/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241016T120000 DTEND;TZID=Pacific/Auckland:20241016T130000 DTSTAMP:20260407T131722 CREATED:20240926T091906Z LAST-MODIFIED:20241006T082919Z UID:14646-1729080000-1729083600@nzdsa.org.nz SUMMARY:Empowering Support for Breastfeeding Mothers of Babies with Down Syndrome. DESCRIPTION:The World Health Organization (WHO) recognises breastfeeding as a critical component of infant health and feeding\, and this offers numerous benefits to babies\, including those with Down syndrome (World Health Organization\, 2019). This presentation examines the evidence supporting the unique advantages of breastfeeding for infants with Down syndrome and its potential to optimise their health outcomes. Research indicates that breastfeeding can play a crucial role in supporting the health and development of babies with Down syndrome \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Heather Miller\n \n Heather Miller has worked in intellectual disability health for over 20 years and is a registered nurse specialising in intellectual disability nursing\, her initial nursing qualification.  Her experience includes community learning disability nursing in the UK\, medical undergraduate teaching in developmental disability health\, content contributor in post graduate nurse education on managing the heath needs of people intellectual disability\, and disability case management in the non-government sector. She currently works as a disability practice nurse in general practice. Heather holds a Certificate IV in Breastfeeding Education (Community) and has been a breastfeeding educator with the Australian Breastfeeding Association for over 15 years. She provides education and support to expectant mothers\, and mothers who are breastfeeding their baby with Down syndrome\, health professionals and is a disability resource breastfeeding educator on breastfeeding and Down syndrome at ABA. \nHer most rewarding job however is being mum to her nine year old son who has Down syndrome\, teaching her more than anything she has learnt in her career and training! \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Register here URL:https://nzdsa.org.nz/event/empowering-support-for-breastfeeding-mothers-of-babies-with-down-syndrome/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241016T193000 DTEND;TZID=Pacific/Auckland:20241016T203000 DTSTAMP:20260407T131722 CREATED:20240926T092401Z LAST-MODIFIED:20240926T092720Z UID:14652-1729107000-1729110600@nzdsa.org.nz SUMMARY:Changing the Perspective - Together We Can DESCRIPTION:Gabrielle: ”What do you see when you look at me?” “I bet you see my disability. yet when I look at you I’m not looking for your disability because everyone has them.” “What you cannot see are my talents.” It’s time to change the erspective and together we can do just that. Molly “Guess what?” ” I have a superpower. Can you guess what it is?” “Don’t worry if you can’t because I’m going to tell you.” “My superpower is DOWN SYNDROME” Did you know that I can do everything that I want? And\, not only that but people with Down syndromehave specific qualities that make them excellent employees. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Gabrielle Salmon\n \n Gabrielle Salmon is a young woman living a very busy\, fulfilling and purposeful existence. Gabrielle would like to share a few aspects of her life and encourage us to think about how diverse we all are\,  we all are different\, we all have talents and we all need to be valued. Gabrielle has worked hard to achieve independence and contribute positively to society. She acknowledges the importance of the support network that has allowed her to become who she is today. Through her dedication to be prepared to speak publicly she brings passion about sharing her journey to inspire others to recognise and support diversity. Her dedication to spread this message reflects her commitment to fostering understanding and appreciation in our communities. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Register Here URL:https://nzdsa.org.nz/event/changing-the-perspective-together-we-can/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241017T120000 DTEND;TZID=Pacific/Auckland:20241017T130000 DTSTAMP:20260407T131722 CREATED:20240926T092915Z LAST-MODIFIED:20240926T093206Z UID:14658-1729166400-1729170000@nzdsa.org.nz SUMMARY:50 years of Music Therapy in Aotearoa DESCRIPTION:Music therapy has been transforming the lives of disabled people and those with mental health conditions in Aotearoa for 50 years this year. \nTo mark the occasion\, Registered Music Therapists from across the motu and beyond Aotearoa are converging on Wellington in September for a conference to share their insights and inspirations. Sarah works at Raukatauri Music Therapy Trust who operate New Zealand’s only dedicated music therapy centres and will be bringing up highlights from the conference and insights into how music therapy can support the development and wellbeing of people with Down syndrome. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Dr Sarah Paterson-Hamlin\n \n Dr. Sarah Paterson-Hamlin is the Editor of CHAT 21\, the NZDSA’s quarterly publication. A published poet specializing in political poetry\, she also serves as the Funding Coordinator for the Raukatauri Music Therapy Trust\, where she helps secure resources for music therapy programs \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Register Here URL:https://nzdsa.org.nz/event/50-years-of-music-therapy-in-aotearoa/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241017T193000 DTEND;TZID=Pacific/Auckland:20241017T203000 DTSTAMP:20260407T131722 CREATED:20240926T093548Z LAST-MODIFIED:20240926T093909Z UID:14662-1729193400-1729197000@nzdsa.org.nz SUMMARY:Volition and Supported Decision Making DESCRIPTION:Volition is on a mission to empower everyone to be a decision-maker in their own lives. It’s a human right! ​Volition champions supported decision making. This presentation will include an introduction to the principles of Supported Decision Making\, then take a closer look at Volition\, a new app to support Decision Makers and Supporters to collaborate in decision-making and care with confidence \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Erika Butters\n \n Erika Butters is the Founder of Volition\, and is committed to ensuring everyone has smart and simple tools for decision making and self determination. She has a background in disability advocacy and supported decision making\, and lives and works in Wellington. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Register Here URL:https://nzdsa.org.nz/event/volition-and-supported-decision-making/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20241018 DTEND;VALUE=DATE:20241019 DTSTAMP:20260407T131722 CREATED:20240926T094115Z LAST-MODIFIED:20240926T094327Z UID:14668-1729209600-1729295999@nzdsa.org.nz SUMMARY:STRIVE: our journey as self-advocates to work together to have a national voice and become champions of rights DESCRIPTION:Register Here URL:https://nzdsa.org.nz/event/strive-our-journey-as-self-advocates-to-work-together-to-have-a-national-voice-and-become-champions-of-rights/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20241019 DTEND;VALUE=DATE:20241020 DTSTAMP:20260407T131722 CREATED:20240926T094446Z LAST-MODIFIED:20240926T094628Z UID:14672-1729296000-1729382399@nzdsa.org.nz SUMMARY:My life\, my choice to create a good life DESCRIPTION:Register Here URL:https://nzdsa.org.nz/event/my-life-my-choice-to-create-a-good-life/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20241019 DTEND;VALUE=DATE:20241020 DTSTAMP:20260407T131722 CREATED:20240926T094846Z LAST-MODIFIED:20240926T095104Z UID:14676-1729296000-1729382399@nzdsa.org.nz SUMMARY:Hate to break it to You Mum DESCRIPTION:Register Here URL:https://nzdsa.org.nz/event/hate-to-break-it-to-you-mum/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20241021 DTEND;VALUE=DATE:20241022 DTSTAMP:20260407T131722 CREATED:20240411T103844Z LAST-MODIFIED:20240628T230410Z UID:13179-1729468800-1729555199@nzdsa.org.nz SUMMARY:NZDSA AGM via Zoom DESCRIPTION:Save the Date! Details and zoom link to come. URL:https://nzdsa.org.nz/event/nzdsa-agm-via-zoom/ ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241021T193000 DTEND;TZID=Pacific/Auckland:20241021T213000 DTSTAMP:20260407T131722 CREATED:20241001T051836Z LAST-MODIFIED:20241001T052416Z UID:14686-1729539000-1729546200@nzdsa.org.nz SUMMARY:This is me DESCRIPTION:This is me - Molly KateID: 862 4558 8856Passcode: 628 365 \n Join Zoom Meeting URL:https://nzdsa.org.nz/event/this-is-me/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20241114 DTEND;VALUE=DATE:20241115 DTSTAMP:20260407T131722 CREATED:20240411T104106Z LAST-MODIFIED:20240628T230410Z UID:13180-1731542400-1731628799@nzdsa.org.nz SUMMARY:National Achievement Awards DESCRIPTION:More details to come. URL:https://nzdsa.org.nz/event/national-achievement-awards/ LOCATION:Government House\, 1 Rugby Street\, Wellington\, New Zealand ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241122T080000 DTEND;TZID=Pacific/Auckland:20241124T170000 DTSTAMP:20260407T131722 CREATED:20240411T104301Z LAST-MODIFIED:20240707T235703Z UID:13181-1732262400-1732467600@nzdsa.org.nz SUMMARY:Youth Development Camp DESCRIPTION:NZDSA Youth Development Camp. More details to come. \n\nYouth and Self-Advocates Registration\, Release\, Consent and Risk Management FormsFull Name*GenderMaleFemaleDate of BirthMobileEmail AddressName of Parent/Primary carerCarer MobileCarer Home PhoneCarer EmailEmergency contacts when you are at campContact NameRelation to youContact Home NumberContact Mobile NumberTo attend the Outdoor camp\, you must be able to say YES to each highlighted question I am or my family is a member of the NZDSAYesNoI will be 18 or older by the date of the campYesNoI will complete all tasks before\, during and after the campYesNoI will share the information and experience with othersYesNoI am willing to follow instructions so we all have a positive time and minimise risksYesNoI have experience with air travel and overnight stays at a hotel/campYesNoI am vaccinated and my COVID-19 vaccinations are current YesNoI am fit and will participate in walking and adventure activitiesYesNoI am willing to fully participate in the training YesNoI am independent and can take care of my personal needs/cares YesNoI regularly participate in a social/recreation/leadership group\n (if there is one in your area)YesNoI have a support person who can assist me with post-course work. Their name isthey are myAcknowledgement of responsibilitiesTo attend the Outdoor camp\, you must be able to say YES to each highlighted question I have read and understood the attached Traffic Light Behaviour - Code of Expected Behaviour - and I know what behaviour is expected of me YesNoI know that I will need to follow the health and safety guidelines provided so that I can keep safe and to help others to be safeYesNoRelease and ConsentI agree that my story and/or photographs can be published in the NZDSA’s CHAT21 JournalYesNoI agree that my story and photographs can be used to promote the NZDSA’s workshops or projectsYesNoI give permission for my e-mail address to be circulated to the other participants who attend the campYesNoI give permission for my home number to be circulated to the other participants who attend the campYesNoI give permission for my mobile number to be circulated to the other participants who attend the campYesNoRisk Management and Emergency ContactNamePhone and MobileEmailDoctorPhoneMobilePhysical description\, please include the following:HeightWeightHair ColourEye ColourPlease attach a recent photographIf applicable: Let us know of any accessibility requirements: (Mobility\, hearing\, vision etc.)If applicable: Let us know of any specific support needs:Special Dietary Requirements: Please note all in this sectionYesNoDietary Requirement Details*What happens if you eat the wrong food?*What do you want us to do if you eat the wrong food?*Do you have any allergies\, e.g. bee stings\, penicillinYesNoAllergies Details*What happens if you have an allergic reaction?*What do you want us to do if you have an allergic reaction?*Do you have any medical conditions?YesNoMedical Conditions Details*Are you currently on medication?*Please provide full up-to-date details of what medication\, dosage\, when and who should administer? *Please indicate what we should do in the event of a medical issue. Call the doctor*Please read the following and then sign\n\nIn the event of an accident or illness\, I authorise the obtaining of any medical assistance on my behalf as may be deemed necessary by the staff of NZDSA.\n\nI understand and agree that I need to follow the Health and Safety Guidelines provided and that everyone attending is responsible for taking the necessary measures to ensure their own and others’ safety. \n\nI accept that whilst the New Zealand Down Syndrome Association Incorporated (NZDSA) staff\, volunteer support workers and other organisations will exercise due care and employ health and safety risk management techniques in both support and activities\, it will not be liable for injury\, damage or loss which a delegate may sustain to themselves or their property whilst attending the NZDSA Youth Development Camp.\n\nI accept responsibility for my own actions and safety. \n\nI understand that the NZDSA will not accept responsibility for loss or damage of personal property. \n\nI have completed these forms to the best of my knowledge. I have read and understood the statement with regard to risk management and the privacy portion of this form. I have completed the criteria for attendance list. I agree to participate in the assigned tasks.\n\nPrivacy\n\nThe information provided will only be used for risk management purposes and for our records. \nYour information will not be given to any other agency or person without your permission. Type Full Name to Digitally Sign*Submit URL:https://nzdsa.org.nz/event/youth-development-camp/ ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250312T193000 DTEND;TZID=Pacific/Auckland:20250312T213000 DTSTAMP:20260407T131722 CREATED:20250306T073850Z LAST-MODIFIED:20250306T073850Z UID:16608-1741807800-1741815000@nzdsa.org.nz SUMMARY:Disability Support Services Community Consultation DESCRIPTION:The Disability Support Services (DSS) community consultation is open and will run through 24 March 2025. This consultation builds upon the feedback DSS received from their 2024 survey and submissions.\nIn alignment with World Down Syndrome Day this year\, the NZDSA calls on all governments to Improve Our Support Systems. We strongly encourage you to take part in the consultation process to help shape future support frameworks.\nThe NZDSA will also host two online forums to provide a space for our community to come together and share their insights. These contributions will play a key role in shaping the NZDSA’s official response to the consultation. \nTopic: NZDSA – DSS Consultation\nDate: 12 March 2025\nTime: 07:30 PM Auckland\, Wellington \nMeeting ID: 846 4073 2262\nPasscode: 144715 \nRead here for all the details  on DSS Consultation\nhttps://www.disabilitysupport.govt.nz/consultation URL:https://nzdsa.org.nz/event/disability-support-services-community-consultation/ LOCATION:Zoom\, New Zealand ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250317T090000 DTEND;TZID=Pacific/Auckland:20250317T163000 DTSTAMP:20260407T131722 CREATED:20250306T073606Z LAST-MODIFIED:20250306T073606Z UID:16604-1742202000-1742229000@nzdsa.org.nz SUMMARY:ASID Aotearoa NZ Conference DESCRIPTION:ASID Aotearoa NZ conference – Data\, Design and Delivery: Research to support people with a learning (intellectual) disability – Australasian Society for Intellectual Disability \nMonday 17 March 2025\n9am – 4:40pm NZDT\nIn person: Harbourside Function Venue (Shed 22)\, Wellington\nThis conference will be of interest to: \n\nPeople with lived experience of learning (intellectual) disability\nWhānau and family members\nResearchers (including student researchers)\nService providers\nHealth and disability professionals\nGovernment officials URL:https://nzdsa.org.nz/event/asid-aotearoa-nz-conference/ LOCATION:Harbourside Function Centre\, 4 Taranaki Street\, Wellington\, New Zealand END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250321 DTEND;VALUE=DATE:20250322 DTSTAMP:20260407T131722 CREATED:20250306T064933Z LAST-MODIFIED:20250306T064933Z UID:16578-1742515200-1742601599@nzdsa.org.nz SUMMARY:ADSA Rock your Socks DESCRIPTION: URL:https://nzdsa.org.nz/event/adsa-rock-your-socks/ ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2025/03/ADSA-No-donation.png ORGANIZER;CN="Auckland Down Syndrome Association":MAILTO:clo@adsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250321T190000 DTEND;TZID=Pacific/Auckland:20250321T210000 DTSTAMP:20260407T131722 CREATED:20250306T063656Z LAST-MODIFIED:20250306T065109Z UID:16570-1742583600-1742590800@nzdsa.org.nz SUMMARY:The Big Connect DESCRIPTION:Join us online on Friday\, March 21\, 2025\, at 7:00 PM for The Big Connect as we come together to celebrate World Down Syndrome Day!\nThis year\, Down syndrome communities worldwide are calling on governments to improve support systems for people with Down syndrome and their families. Now is the time to connect\, advocate\, and take action!\nWhy Support MattersSupport isn’t just helpful—it’s a human right.• People with Down syndrome deserve the opportunity to live\, thrive\, and fully participate in their communities.• Families need the right resources to provide meaningful support to their loved ones.• The right support at the right time ensures dignity\, choice\, and independence.\nWhat to Expect at The Big ConnectExpert Panel & Discussion – Hear from a diverse group of experts and leaders as they discuss what a strong\, inclusive support system should look like.\nThe panel experts include:• Prudence Walker\, Kaihautū Tika Hauātanga Disability Rights Commissioner• Bridget Snedden President of Down Syndrome International• Paul Gibson\, Chief Executive\, VisAble former commissioner on the Abuse in Care Inquiry. As the first Human Rights Commissioner with responsibility for disability rights• Loren Savage\, Senior Advisor to the Chief Executive\, Whaikaha\, Ministry of Disabled People• Juliana Carvalho\, Project Manager\, Access Matters Aotearoa Trust• Shara Turner\, Advocate\, IHC New Zealand• Trish Grant\, Inclusive Education Lead\, IHC• Dr Maree Kirk\, Director of Networks of Expertise– Supporting Teachers Practice• Jennifer Del Bel\, Managing Director\, Downlights• Grant Cleland\, Managing Director\, Creative Solutions• Andrew Oswin\, STEP-UP member and Ambassador on Down Syndrome International\,• Erin Smith\, Abigail Knight\, Vinnie Vaccarino\, Rochelle Waters\, Peter Rees\, Mohit Chand\, all STRIVE members• Laurie Hilsgen\, CEO\, Carers New Zealand• Associate Professor Brigit Mirfin-Veitch\, Kaiwhakahaere – Director\, Donald Beasley Institute\nCommunity Voices – Share your insights\, learn from others\, and help shape the conversation.\nAlthough our community is spread across the country\, The Big Connect is our chance to unite\, celebrate\, and make our voices heard.\nTogether\, we can send a powerful message to our government about real actions needed to improve support for people with Down syndrome.\nLet’s make a difference! Mark your calendar and join us at The Big Connect. URL:https://nzdsa.org.nz/event/the-big-connect/ LOCATION:Zoom\, New Zealand ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/03/NZDSA_WDSD25_Web-2_Primary-Use-2.jpg ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250322T110000 DTEND;TZID=Pacific/Auckland:20250322T140000 DTSTAMP:20260407T131722 CREATED:20250306T070206Z LAST-MODIFIED:20250306T070206Z UID:16585-1742641200-1742652000@nzdsa.org.nz SUMMARY:ABCD Group Lido Get Together DESCRIPTION: URL:https://nzdsa.org.nz/event/abcd-group-lido-get-together/ LOCATION:Lido Aquatic Centre\, Park Road\, Palmerston North\, New Zealand ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/03/Lido-Get-Together-2025-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250323T110000 DTEND;TZID=Pacific/Auckland:20250323T143000 DTSTAMP:20260407T131722 CREATED:20250306T065609Z LAST-MODIFIED:20250306T065609Z UID:16581-1742727600-1742740200@nzdsa.org.nz SUMMARY:ADSA Big Picnic DESCRIPTION: URL:https://nzdsa.org.nz/event/adsa-big-picnic/ LOCATION:Papatoetoe East Primary\, 138 Tui Road\, Auckland\, New Zealand ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2025/03/Big-Picnic-A4-2025-e1734495387360.png ORGANIZER;CN="Auckland Down Syndrome Association":MAILTO:clo@adsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250402T190000 DTEND;TZID=Pacific/Auckland:20250402T203000 DTSTAMP:20260407T131722 CREATED:20250403T073536Z LAST-MODIFIED:20250403T073536Z UID:17230-1743620400-1743625800@nzdsa.org.nz SUMMARY:Care Matters & NZDSA Future Planning Workshop 1 DESCRIPTION: URL:https://nzdsa.org.nz/event/care-matters-nzdsa-future-planning-workshop-1/ LOCATION:Zoom\, New Zealand ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250409T190000 DTEND;TZID=Pacific/Auckland:20250409T203000 DTSTAMP:20260407T131722 CREATED:20250403T081420Z LAST-MODIFIED:20250403T081420Z UID:17249-1744225200-1744230600@nzdsa.org.nz SUMMARY:CDSA - Navigating the transition from school into employment DESCRIPTION: URL:https://nzdsa.org.nz/event/cdsa-navigating-the-transition-from-school-into-employment/ LOCATION:The Village Presbyterian Church & Community Centre\, 460 Papanui Road\, 460 Papanui Road\, Christchurch\, New Zealand ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/04/485364027_1052342116925521_6896020444276580944_n.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250412T160000 DTEND;TZID=Pacific/Auckland:20250412T170000 DTSTAMP:20260407T131722 CREATED:20250403T080040Z LAST-MODIFIED:20250403T080040Z UID:17241-1744473600-1744477200@nzdsa.org.nz SUMMARY:STRIVE Afternoon Tea Club DESCRIPTION:Join us at the STRIVE Afternoon Tea Club\nA session run by people with Down syndrome for people with Down syndrome.  All are welcome but focussed on +16 participants. \nTopic: STRIVE Afternoon Tea Club\nDate: 12 April 2025\nTime: 04:00 PM Auckland\, Wellington\nZoom Meeting – https://us02web.zoom.us/j/84558163827?pwd=MEO0APhA6XPQ3mYUbRaEKvVbWZkE3o.1\nMeeting ID: 845 5816 3827\nPasscode: 591910 \nThis time we will talk about what you did for World Down Syndrome Day URL:https://nzdsa.org.nz/event/strive-afternoon-tea-club/ LOCATION:Zoom\, New Zealand ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/04/542ddb74-c92c-1452-50dd-cf7cbaef1008.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250416T190000 DTEND;TZID=Pacific/Auckland:20250416T203000 DTSTAMP:20260407T131722 CREATED:20250403T074001Z LAST-MODIFIED:20250403T074001Z UID:17232-1744830000-1744835400@nzdsa.org.nz SUMMARY:Care Matters & NZDSA Future Planning Workshop 2 DESCRIPTION:Care Matters and the New Zealand Down Syndrome Association (NZDSA) are excited to collaborate and bring you a free four-part online workshop series designed to empower whānau in planning for the future. Rooted in the Enabling Good Lives (EGL) principles\, these sessions provide practical tools\, insights\, and connections to help you navigate the journey ahead. \nAttend all four for the full experience or join individual sessions as they suit you!\nThese sessions\, led by facilitators with lived experience\, will cover: \n2 April – Understanding how EGL principles support future planning\n16 April – Discovering ways to envision the future for your loved one\n30 April – Turning your vision into actionable steps\n14 May – Developing skills to overcome challenges along the way\nThese workshops have been designed specifically for parents and whānau who have family members with Down syndrome \nRegister here: https://carematters.org.nz/events/vision-planning/ URL:https://nzdsa.org.nz/event/care-matters-nzdsa-future-planning-workshop-2/ LOCATION:Zoom\, New Zealand ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/04/Essence-1.jpg ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250429T193000 DTEND;TZID=Pacific/Auckland:20250429T203000 DTSTAMP:20260407T131722 CREATED:20250403T080348Z LAST-MODIFIED:20250403T080348Z UID:17245-1745955000-1745958600@nzdsa.org.nz SUMMARY:Autism Awareness Month Online Support Session DESCRIPTION:This April\, the New Zealand Down Syndrome Association (NZDSA) is proud to support Autism Awareness Month and raise awareness of the co-occurrence of Down syndrome and autism. April begins with World Autism Awareness Day on April 2nd\, marking the 18th annual United Nations-recognised day of advocacy and understanding. \nThis year’s theme\, “Celebrate Differences\,” highlights the importance of embracing neurodiversity and ensuring equitable support for all. \nNZDSA Online Support Session for Parents & Whānau\nTo celebrate Autism Awareness Month\, NZDSA is hosting an online support session for parents and whānau of people with Down syndrome and Autism.. We’re thrilled to welcome Geraldine Whatnell\, Nurse Practitioner and Director of Down Right Healthcare\, who will answer questions and share valuable insights.\nDid you know? Research suggests that a significant percentage of people with Down syndrome also have autism (with estimates ranging from 16-18% or even higher. Navigating a dual diagnosis can be complex\, and we’re here to support families on this journey. \nDate:     29 April  2025\nTime:     7.30pm -8.30pm\nWhere:   Zoom \nMeeting ID: 821 3899 8023\nPasscode: 477535 URL:https://nzdsa.org.nz/event/autism-awareness-month-online-support-session/ LOCATION:Zoom\, New Zealand ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/04/487775776_1071855684987998_5416311855361986782_n.jpg ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250430T190000 DTEND;TZID=Pacific/Auckland:20250430T203000 DTSTAMP:20260407T131722 CREATED:20250403T074506Z LAST-MODIFIED:20250403T074551Z UID:17235-1746039600-1746045000@nzdsa.org.nz SUMMARY:Care Matters & NZDSA Future Planning Workshop 3 DESCRIPTION:Care Matters and the New Zealand Down Syndrome Association (NZDSA) are excited to collaborate and bring you a free four-part online workshop series designed to empower whānau in planning for the future. Rooted in the Enabling Good Lives (EGL) principles\, these sessions provide practical tools\, insights\, and connections to help you navigate the journey ahead. \nAttend all four for the full experience or join individual sessions as they suit you!\nThese sessions\, led by facilitators with lived experience\, will cover: \n2 April – Understanding how EGL principles support future planning\n16 April – Discovering ways to envision the future for your loved one\n30 April – Turning your vision into actionable steps\n14 May – Developing skills to overcome challenges along the way\nThese workshops have been designed specifically for parents and whānau who have family members with Down syndrome \nRegister here: https://carematters.org.nz/events/turning-your-vision-into-action/ URL:https://nzdsa.org.nz/event/care-matters-nzdsa-future-planning-workshop-3/ LOCATION:Zoom\, New Zealand ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/04/Couch-8.jpg ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250504T140000 DTEND;TZID=Pacific/Auckland:20250504T170000 DTSTAMP:20260407T131722 CREATED:20250306T070903Z LAST-MODIFIED:20250306T070903Z UID:16590-1746367200-1746378000@nzdsa.org.nz SUMMARY:ADSA Under 12's Get Together DESCRIPTION:A great way for our under 12’s community to mix and mingle. Bring the whole whanau.\nParents/Caregivers will have plenty of time to meet people and catch up\, while their kids play.\nPLEASE do not come if you feel unwell .\nPlease note: this is a very secure environment\, however your children are still your responsibility at all times!\nPlease BYO food and drinks for afternoon tea. We will provide potato chips!\nPlease RSVP on this invitation – or email Sue on adminsupport@adsa.org.nz. RSVP is important – so that we can ensure we have enough volunteers and resources. URL:https://nzdsa.org.nz/event/adsa-under-12s-get-together-2/ LOCATION:Grey Lynn Community Centre\, 510 Richmond Road\, Grey Lynn\, Auckland\, New Zealand ORGANIZER;CN="Auckland Down Syndrome Association":MAILTO:clo@adsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250514T190000 DTEND;TZID=Pacific/Auckland:20250514T203000 DTSTAMP:20260407T131722 CREATED:20250403T074936Z LAST-MODIFIED:20250403T074936Z UID:17238-1747249200-1747254600@nzdsa.org.nz SUMMARY:Care Matters & NZDSA Future Planning Workshop 4 DESCRIPTION:Care Matters and the New Zealand Down Syndrome Association (NZDSA) are excited to collaborate and bring you a free four-part online workshop series designed to empower whānau in planning for the future. Rooted in the Enabling Good Lives (EGL) principles\, these sessions provide practical tools\, insights\, and connections to help you navigate the journey ahead. \nAttend all four for the full experience or join individual sessions as they suit you!\nThese sessions\, led by facilitators with lived experience\, will cover: \n2 April – Understanding how EGL principles support future planning\n16 April – Discovering ways to envision the future for your loved one\n30 April – Turning your vision into actionable steps\n14 May – Developing skills to overcome challenges along the way\nThese workshops have been designed specifically for parents and whānau who have family members with Down syndrome \nRegister here: https://carematters.org.nz/events/skills-to-overcome-challenges/ URL:https://nzdsa.org.nz/event/care-matters-nzdsa-future-planning-workshop-4/ LOCATION:Zoom\, New Zealand ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2025/04/Employer-4.jpg ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250526T183000 DTEND;TZID=Pacific/Auckland:20250526T213000 DTSTAMP:20260407T131722 CREATED:20250306T071200Z LAST-MODIFIED:20250516T031507Z UID:16592-1748284200-1748295000@nzdsa.org.nz SUMMARY:ADSA Parent Dinner DESCRIPTION:This is a dinner for ADSA parents. Come along to connect with other families and meet friends – new and old. Share some delicious food\, and plenty of laughs.\nCome for a drink\, dinner\, dessert or everything – The GOOD HOME do fantastic food. (Please note: this meal is not funded by ADSA).\nPlease RSVP to Angela on 027 605 4496. URL:https://nzdsa.org.nz/event/adsa-parent-dinner/ LOCATION:The Good Home\, 37 Normandy Road\, Mt Eden\, Auckland\, New Zealand ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2025/03/Parent-Night-May.png ORGANIZER;CN="Auckland Down Syndrome Association":MAILTO:clo@adsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20250527T193000 DTEND;TZID=Pacific/Auckland:20250527T210000 DTSTAMP:20260407T131722 CREATED:20250403T081932Z LAST-MODIFIED:20250403T081932Z UID:17254-1748374200-1748379600@nzdsa.org.nz SUMMARY:Introduction to the IHC Online Friendship Programme DESCRIPTION:27th May at 7.30pm \nJoin Us for an Introduction to the IHC Online Friendship Programme! \nGuest Speaker: Hannah Verry – Online Friendship Coordinator\, IHC \nThis session is for parents and whānau who want to learn more about the IHC Online Friendship Programme\, which connects people across the country by phone or online to build friendships and have fun. Whether it’s virtual exercise sessions\, online games\, movie nights\, or simply catching up\, this programme helps create meaningful connections. \nJoin us to learn:\nWhy we have an online friendship programme\nHow it works in practice\nHow to apply if you’re interested\nHeartwarming stories from current friendships \nJoin Zoom Meeting \nhttps://us02web.zoom.us/j/87117188178?pwd=onFXiWfIx4u7Ph3PCsvXUtzLO4eqkH.1 \nMeeting ID: 871 1718 8178 \nPasscode: 928203 URL:https://nzdsa.org.nz/event/introduction-to-the-ihc-online-friendship-programme/ LOCATION:Zoom\, New Zealand END:VEVENT END:VCALENDAR