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X-WR-CALNAME:New Zealand Down Syndrome Association (NZDSA)
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X-WR-CALDESC:Events for New Zealand Down Syndrome Association (NZDSA)
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DTSTART;TZID=Pacific/Auckland:20261007T193000
DTEND;TZID=Pacific/Auckland:20261007T203000
DTSTAMP:20260904T233721Z
CREATED:20260904T233640Z
LAST-MODIFIED:20260904T233721Z
UID:18191-1791401400-1791405000@nzdsa.org.nz
SUMMARY:The Power of Sport: Connection\, Belonging and Participation
DESCRIPTION:The Power of Sport: Connection\, Belonging and Participation\nFran will share how sport creates opportunities for friendship\, belonging\, confidence and participation\, and the difference this can make in the lives of people with Down syndrome. \nPresenter\nFran Scholey\nChief Executive Officer of Special Olympics New Zealand. \nBiography\nFran Scholey is the Chief Executive Officer of Special Olympics New Zealand. In her role\, she focuses on elevating the organisation’s profile and fostering strategic relationships. Fran has re-established and strengthened relationships with Special Olympics clubs across New Zealand\, building trust and working together for the betterment of the community. She collaborates with stakeholders to redevelop the Special Olympics New Zealand Strategy\, ensuring alignment with the organisation’s mission. She is also working to diversify revenue streams to enhance financial stability and support athletes and volunteers. \nTheme: Health and Wellbeing\nAudience: All welcome
URL:https://nzdsa.org.nz/event/power-of-sport/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2026/09/Fran-Scholey.png
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261008T120000
DTEND;TZID=Pacific/Auckland:20261008T130000
DTSTAMP:20260904T233919Z
CREATED:20260904T233919Z
LAST-MODIFIED:20260904T233919Z
UID:18196-1791460800-1791464400@nzdsa.org.nz
SUMMARY:“Rights and Belonging” How practical understanding of rights can combat loneliness
DESCRIPTION:“Rights and Belonging” How practical understanding of rights can combat loneliness\nMatt and Brian will explore\, using practical examples\, how knowledge of rights and how to use them can reduce and combat loneliness. Whether it’s knowledge that you have the human right to connect together\, how you can use education to learn about friendship\, or even using culture to grow friendships\, human rights provide a powerful way of combatting loneliness. \nPresenters\nMatt Frost\nPrincipal Advisor in Whaikaha – the Ministry of Disabled People\nBrian Coffey\nChief Advisor to the Chief Executive at Whaikaha – Ministry of Disabled People. \nBiographies\nMatt Frost is a Principal Advisor in Whaikaha – the Ministry of Disabled People. Matt loves using his knowledge of world affairs and human rights to help enable good lives for disabled people. Matt also enjoys being on a range of boards and connecting with people through sport (especially cricket). \nBrian Coffey is Chief Advisor to the Chief Executive at Whaikaha – Ministry of Disabled People. He is passionate about building communities where disabled people feel welcome\, valued\, and connected. Brian works with disabled people\, whānau\, community organisations\, and government agencies to promote inclusion\, accessibility\, and equal opportunities for all. Brian started his career in education as a teacher and then in the Ministry of Education\, leading work on improving inclusive education. He loves rugby\, basketball and other sports. \nTheme: Advocacy\nAudience: All welcome
URL:https://nzdsa.org.nz/event/rights-and-belonging-how-practical-understanding-of-rights-can-combat-loneliness/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261008T193000
DTEND;TZID=Pacific/Auckland:20261008T203000
DTSTAMP:20260904T234136Z
CREATED:20260904T234106Z
LAST-MODIFIED:20260904T234136Z
UID:18198-1791487800-1791491400@nzdsa.org.nz
SUMMARY:Connecting with Volition
DESCRIPTION:Connecting with Volition\nWe all want connection. An important part of this is communicating to others the things that matter to you. This session will show how the Volition app can help you share what is important to you with other people. We will also look at the Whaimana website about Supported Decision Making and a new website for making Easy Read. \nPresenter\nErika Butters\nFounder of Volition \nBiography\nErika used to work as the Director of The Personal Advocacy and Safeguarding Adults Trust (PASAT)\, one of New Zealand’s only independent disability advocacy organisations.\nWhile continuing as an Advisor to PASAT\, she now is the Founder of Volition\, a social enterprise building digital tools for supported decision-making and self-determination. She also acts as the Chair of Whaimana\, the community and cross-government Supported Decision Making resource development group. \nTheme: Self-determination\nAudience: All welcome
URL:https://nzdsa.org.nz/event/connecting-with-volition/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/Erika-Butters.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261009T120000
DTEND;TZID=Pacific/Auckland:20261009T130000
DTSTAMP:20260904T234334Z
CREATED:20260904T234334Z
LAST-MODIFIED:20260904T234334Z
UID:18202-1791547200-1791550800@nzdsa.org.nz
SUMMARY:An introduction to the online independent living and money game Stand Tall
DESCRIPTION:An introduction to the online independent living and money game Stand Tall\nStand Tall was designed by the IHC Library for all young people in New Zealand including those with intellectual disabilities\, neurodiversity and autism.\nStand Tall is a free online money game available to play on the web – www.ihc-standtall.com or download from the Google Play or Apple App stores.\nPlayers create an avatar\, learn about budgeting\, and navigate various scenarios. Each scenario offers three choices\, impacting the avatar’s financial and wellbeing scores. Stand Tall has voiceover\, and the scenarios are examples of events that can happen in a shared flat.\nIt’s a fun\, free and engaging learning experience.\nPhil will run through some of the features of the game\, how to play it and the background of how it was developed. \nPresenter\nPhil Clarke is the Head of Library and Information Resourcing at IHC Library\, Wellington \n\nBiography\nPhil has worked in tertiary and special libraries in the UK and New Zealand. He’s keen for everyone to know about the IHC Library and the service it provides to anyone\, anywhere in New Zealand\, who needs to know about intellectual disability\, autism and associated conditions. \nTheme: Independence\nAudience: All welcome \n 
URL:https://nzdsa.org.nz/event/an-introduction-to-the-online-independent-living-and-money-game-stand-tall/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/phil-clarke.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261010T160000
DTEND;TZID=Pacific/Auckland:20261010T170000
DTSTAMP:20260904T234535Z
CREATED:20260904T234535Z
LAST-MODIFIED:20260904T234535Z
UID:18205-1791648000-1791651600@nzdsa.org.nz
SUMMARY:Friendship Matters: Building Real Connections
DESCRIPTION:Friendship Matters: Building Real Connections\nLearn more about the IHC Friendship Programme\, how it supports people to build genuine friendships and connections\, and how you can join the programme. \nPresenters\nHannah Verry\nOnline Volunteer Coordinator (National)\nIHC \nHamish Gilbert\nSelf-Advocate Ambassador for the Online Friendship Programme\nIHC \nBiographies\nHannah Verry is IHC’s Online Volunteer Coordinator\, supporting the national Online Friendship Programme. She helps connect people with intellectual disability with volunteers who share their interests\, supporting friendships and meaningful connections through online and phone-based activities. Hannah is passionate about creating opportunities for people to build friendships\, stay connected and be part of their communities\, wherever they live in Aotearoa New Zealand. \nHamish Gilbert is recognised for his achievements in education\, sport\, work\, and advocacy. He gained NCEA Levels 1 and 2 and the Duke of Edinburgh Gold Award\, and now works at Bunnings while running a recycling enterprise. A strong advocate for inclusion\, he has spoken nationally on accessibility. Hamish is also a decorated Special Olympics athlete\, named Athlete of the Year in 2022. He is also one of the NZDSA 2024 National Achievement Award recipients. \nTheme: Friendship\nAudience: All welcome\nJoin Zoom Meeting\nhttps://us02web.zoom.us/j/81766381423?pwd=MZIzcnvbtOAiWoxrbC2MZNqVB9PwOH.1\nMeeting ID: 817 6638 1423\nPasscode: 289952
URL:https://nzdsa.org.nz/event/friendship-matters-building-real-connections/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/hamish-gilbert.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261010T163000
DTEND;TZID=Pacific/Auckland:20261010T170000
DTSTAMP:20260904T234741Z
CREATED:20260904T234741Z
LAST-MODIFIED:20260904T234741Z
UID:18208-1791649800-1791651600@nzdsa.org.nz
SUMMARY:How I keep from being lonely
DESCRIPTION:How I keep from being lonely\nI’m talking about all of the activities I do to stay in touch with friends and feel like I’m part of the community. \nPresenter\nAmelia Eades\nSelf-advocate \nBiography\nI’m 29 and flatting with a friend in Auckland. I have two part time jobs\, I’m in Special Olympics Swimming\, I do activities with Recreate and I’m with a talent Agency called All Is For All. I have a busy life. \nTheme: Self-advocacy\nAudience: All welcome\nJoin Zoom Meeting\nhttps://us02web.zoom.us/j/82137026713?pwd=9Ity66UORsYL9lxVQQLm338hS0uhdD.1\nMeeting ID: 821 3702 6713\nPasscode: 611298
URL:https://nzdsa.org.nz/event/how-i-keep-from-being-lonely/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/amelia-eades.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261012T120000
DTEND;TZID=Pacific/Auckland:20261012T130000
DTSTAMP:20260904T234938Z
CREATED:20260904T234938Z
LAST-MODIFIED:20260904T234938Z
UID:18211-1791806400-1791810000@nzdsa.org.nz
SUMMARY:Friendship Matters: Planning Opportunities for Connection\, Capability and Wellbeing
DESCRIPTION:Friendship Matters: Planning Opportunities for Connection\, Capability and Wellbeing\nFriendship is a key part of wellbeing\, belonging and a good life\, yet opportunities for friendship and social connection do not always happen naturally for people with Down syndrome.\nDrawing on my PhD Theory of Wellbeing\, in which friendship is a key domain\, and my subsequent capability work\, I will explore how we can intentionally plan and organise opportunities for friendship\, social participation and connection.\nI will consider how building social capability — getting along with others\, communicating\, participating\, making choices and developing independence — can support people with Down syndrome to build and sustain relationships across school\, work and community life.\nLinking with the 2026 World Down Syndrome Day theme\, Together Against Loneliness\, I will move beyond simply recognising loneliness to consider what we can practically do to create the opportunities\, environments and supports in which friendship can grow.\nWe cannot manufacture friendship\, but we can plan opportunities and build the capability that make friendship possible. \nPresenter\nDr Maree Kirk\nDirector of the Bay of Plenty Down Syndrome Association and National Director of Supporting Teaching Practice for Students with Learning Disability and Down syndrome (STPDS) \n  \nBiography\nDr Maree Kirk is a wellbeing and capability consultant with extensive experience across health\, education\, disability\, and inclusive practice. She is the Director of the Bay of Plenty Down Syndrome Association and National Director of Supporting Teaching Practice for Students with Learning Disability and Down syndrome (STPDS)\, a professional learning and development programme reaching more than 600 participants annually. Dr Kirk led the first Ministry of Education pilot projects for professional development focused on students with learning disability and Down syndrome and served as Contract Director of the Network of Expertise (NEX)\, the first national contract of its kind. Her PhD research developed the theory of wellbeing for children and young people with disability\, centred on three principles — acceptance\, recognition\, and supported independence — which underpins her Capability Model for inclusive education in Aotearoa New Zealand \nTheme: Education and Wellbeing\nAudience: Parents\, whānau and professionals \n 
URL:https://nzdsa.org.nz/event/friendship-matters-planning-opportunities-for-connection-capability-and-wellbeing/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/maree-kirk.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261012T193000
DTEND;TZID=Pacific/Auckland:20261012T203000
DTSTAMP:20260904T235145Z
CREATED:20260904T235145Z
LAST-MODIFIED:20260904T235145Z
UID:18214-1791833400-1791837000@nzdsa.org.nz
SUMMARY:Helping Children with Down Syndrome Sleep Better: Poor Sleep Isn’t “Just Part of It”
DESCRIPTION:Helping Children with Down Syndrome Sleep Better: Poor Sleep Isn’t “Just Part of It”\nSleep problems are often normalised in children with Down syndrome. Families may not seek help\, thinking this is “part” of having a child with Down syndrome or may be dismissed when presenting to health professionals. However\, sleep is one of the few modifiable factors that can contribute to improved outcomes for children with Down syndrome and their families. This talk will focus on the importance of seeking support for sleep challenges in children with Down syndrome\, highlighting the debilitating impact on both child and family from chronic sleep disruption and outlining an approach to management of both respiratory and non-respiratory sleep problems. \nPresenter\nAssociate Professor Jasneek Chawla is a Paediatric Respiratory and Sleep Medicine Specialist at Queensland Children’s Hospital\, Brisbane. She also leads the Kids Sleep Research Group at the Child Health Research Centre and is President of the Australasian Sleep Association \n\nBiography\nAssociate Professor Jasneek Chawla is an experienced physician and a clinician researcher with an interest in sleep in children with complex disability and in developing emerging paediatric sleep technologies. In 2025\, she was awarded the CHQ Research in Excellence Award and acknowledged for her research by the Australian Institute of Policy and Science\, voted as one of Queensland’s ten Young Tall Poppies. Jas is the president of the Australasian Sleep Association\, the national peak body for sleep professionals- she is the first paediatric specialist to undertake this role. Jas is also part of the UQ disability collaboratory leadership group and is a strong advocate for children with disability and chronic illness. She collaborates widely with many consumer representative organisations\, including a long-standing relationship with Down Syndrome Australia. She works alongside individuals with lived experience through her research\, directing and translating her findings into clinical practice. \nTheme: Health\nAudience: Parents\, professionals and whānau \n 
URL:https://nzdsa.org.nz/event/helping-children-with-down-syndrome-sleep-better-poor-sleep-isnt-just-part-of-it/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/jasneek-chawla.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261013T120000
DTEND;TZID=Pacific/Auckland:20261013T130000
DTSTAMP:20260904T235342Z
CREATED:20260904T235342Z
LAST-MODIFIED:20260904T235342Z
UID:18217-1791892800-1791896400@nzdsa.org.nz
SUMMARY:Capacity\, Communication and Co-regulation
DESCRIPTION:Capacity\, Communication and Co-regulation\nThis interactive session explores behaviour as communication\, drawing on the principle that children do well when they can (Dr Ross Greene). Grounded in the conference theme of Together Against Loneliness\, we will discuss how reduced confidence in responding to expressions of distress can lead to families becoming more isolated and withdrawing from community connections.\nThe session will cover three key areas — Capacity\, Communication and Co-regulation — and will be relevant to both whānau and professionals supporting people with Down syndrome. We will explore how to recognise early signs of distress\, blocks that may arise from experience of overwhelm or communication differences\, and co-regulation as a foundational skill. We will also give a brief overview of Explore’s behaviour support services and how to access them. \nPresenters\nCarolyn Stobbs\nBehaviour Support\nExplore Hāpainga Ora \nJanieke de Graaf\nBehaviour Support / Registered Nurse\nExplore Hāpainga Ora \n\nBiographies\nCarolyn Stobbs has worked for Explore for just over two years\, and has a background working in disability through education and advocacy. In a previous role\, she worked with the Down Syndrome Association alongside the STRIVE Group. Carolyn is a strong advocate for people having a voice and genuine choice in their own lives and is particularly passionate about supported decision-making — ensuring people are well supported to make authentic choices about what matters to them. \n  \nJanieke de Graaf works in Behaviour Support at Explore Hāpainga Ora and has a background in holistic and integrative health\, nursing and nurse prescribing in general practice\, homeopathy\, and supervision. She is a mother of two neurodivergent children and is an ADHDer herself. Janieke particularly enjoys the detective work of understanding what drivers lie behind behavioural expressions\, and finding creative\, playful ways to work with them — supporting families to find what works for them to thrive. \n  \nTheme: Communication and Education\nAudience: Parents\, professionals and whānau \n 
URL:https://nzdsa.org.nz/event/capacity-communication-and-co-regulation/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2026/09/carolyn-stobbs.png
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261013T193000
DTEND;TZID=Pacific/Auckland:20261013T203000
DTSTAMP:20260904T235530Z
CREATED:20260904T235530Z
LAST-MODIFIED:20260904T235530Z
UID:18220-1791919800-1791923400@nzdsa.org.nz
SUMMARY:Manage My Health – Down Syndrome Style
DESCRIPTION:Manage My Health – Down Syndrome Style\nEmpowering Families/Whānau Every Step of the Way.\nAn interactive online session for parents\, family members\, and advocates. This session will provide you with information about where to find health advice and support services for children and young people with Down Syndrome. \nPresenters:\n• Anna Tiatia Fa’atoese Latu\nProgram Director for the Doctor of Medicine program within the New Zealand Graduate School of Medicine.\n• Heidi Meyer\nSpeech and Language Therapist\, Te Whatu Ora Hutt Valley\n• Merryn Robertson\nPaediatric Physiotherapist at Hope in Motion Paediatric Therapy (Private practice)\, with contracts to Habit Health (ACC rehab) and Te Whatu Ora (acute respiratory).\n• Rosemary Marks\nDevelopmental Paediatrician (Retired)\n• Sara Edwards\nPaediatric Physiotherapist at Habit Health \n\nBiographies\nKia ora. Ko Anna Tiatia Fa’atoese Latu toku ingoa (Kāi Tahu). I joined the University of Waikato in April 2024 and currently serve as the Program Director for the Doctor of Medicine program within the New Zealand Graduate School of Medicine. Previously holding the role of Associate Dean Māori within the Division of Health\, I led the equity curriculum development for innovative clinical programs\, including the Master of Pharmacy Practice and Master of Midwifery Practice\, alongside dedicated interprofessional teams. My academic leadership and research are anchored in Hauora Māori\, workforce development\, and a deep-seated commitment to transforming health equity across Aotearoa New Zealand. \nHeidi is a Speech-Language Therapist working at the Child Development Service\, Hutt Valley. In this role\, she is part of a multidisciplinary team working with young people through the developmental assessment process. She also works with tamariki to support safe feeding\, eating\, and drinking skills. Heidi is especially interested in working collaboratively with whānau and other professionals to provide holistic support for tamariki and rangatahi. Having an older sibling with Down syndrome has given her a valuable personal perspective and strengthened her passion for advocacy. \nMerryn is an experienced physiotherapist working across health\, education\, and private practice to support the physical development of tamariki and rangatahi within their homes\, schools\, and clinic. She is dedicated to helping young people reach their full potential by integrating engaging fitness activities with evidence-based clinical care. As a passionate advocate for mobility\, Merryn focuses on optimizing movement and reducing pain to enhance the overall wellbeing of the children and whānau she serves. \nRosie trained in Paediatrics in Auckland\, and in the UK. Since 2020 She has led the Down Syndrome Clinical Guidance workstream working to provide accessible quality information for health professionals working with children and young people with Down Syndrome. The team has also had substantial input into the updating of the information for whānau on the Kidshealth website. \nSara Edwards is a Paediatric Physiotherapist at Habit Health in Dunedin with experience working with young people with Down syndrome. When the opportunity arose to assist with updating the Down Syndrome clinical guidelines\, she readily agreed to contribute her expertise. Sara is passionate about the value of physiotherapy for people with Down syndrome and is committed to empowering families and individuals to advocate for physiotherapy support. \nTheme: Health\nAudience: Parents\, professionals and whānau \n 
URL:https://nzdsa.org.nz/event/manage-my-health-down-syndrome-style/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261014T120000
DTEND;TZID=Pacific/Auckland:20261014T130000
DTSTAMP:20260904T235737Z
CREATED:20260904T235737Z
LAST-MODIFIED:20260904T235737Z
UID:18222-1791979200-1791982800@nzdsa.org.nz
SUMMARY:From Data to Dignity 2026: new insights and evidence
DESCRIPTION:From Data to Dignity 2026: new insights and evidence\nThis presentation will explore what the latest data tells us about the lives and experiences of people with intellectual disability in Aotearoa New Zealand. It will provide an update on From Data to Dignity\, highlighting key changes and ongoing inequalities\, before turning to Untapped Potential\, IHC’s new research into employment and the barriers that prevent people with intellectual disability from fully participating in the workforce. The presentation will also preview forthcoming research into special schools\, examining educational experiences and outcomes and what the data tells us about different schooling settings. Together\, these three pieces of research provide a picture of where people with intellectual disability are being excluded and where there are opportunities to do things differently. \nPresenter\nShara Turner\nSenior Advocate\, IHC \nBiography\nShara is a dedicated advocate for the rights of intellectually disabled people\, with a robust background in law and a passion for fostering inclusivity. Transitioning from her legal practice in Australia to her current advocacy work in New Zealand\, Shara leverages her expertise in privacy law and human rights to drive meaningful societal change.\nShara’s legal career focused on navigating complex privacy law landscapes\, advising clients on data protection\, compliance\, and safeguarding sensitive information. Her deep understanding of privacy legislation across Australia and New Zealand has equipped her to champion the rights of marginalised individuals effectively.\nNow fully immersed in advocacy\, Shara is committed to dismantling ableism and creating a society that values the strengths and contributions of intellectually disabled people. She is particularly passionate about using data to highlight systemic barriers and promote evidence-based solutions\, ensuring that the voices of those she represents are heard and respected. \nTheme: Research and advocacy \nAudience: Parents\, whānau and professionals \n  \n 
URL:https://nzdsa.org.nz/event/from-data-to-dignity-2026-new-insights-and-evidence/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/shara-turner.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261014T130000
DTEND;TZID=Pacific/Auckland:20261014T140000
DTSTAMP:20260904T235932Z
CREATED:20260904T235932Z
LAST-MODIFIED:20260904T235932Z
UID:18225-1791982800-1791986400@nzdsa.org.nz
SUMMARY:Community connection: Shifting the inclusion focus
DESCRIPTION:Community connection: Shifting the inclusion focus\nThis workshop is designed for neighbours\, peers\, community leaders and local groups who want some simple\, actionable ways to be inclusive community members for the people who have Down Syndrome in their community.\nPolly Newton will share practical strategies for community-minded people to build meaningful\, two-way connections and communication with people who have Down syndrome.\nParents already have impossibly long to-do lists\, so this session isn’t about giving families more tasks. Instead\, it equips the wider community with the tools\, practical resources\, and points them towards existing programmes to support them to actively step in\, reduce isolation\, and share the joy of connection.\nPolly clearly remembers wanting to interact with people with Down Syndrome and other additional needs at her school and in her community\, prior to training as a Speech Language Therapist\, but she didn’t know how\, and nobody thought to show her. This workshop shares the information she wished she’d had\, all those years ago. \nPresenter\nPolly Newton\nSpeech Language Therapist\nExpert Adviser Speech Sound Disorders\, New Zealand Speech-Language Therapists Association \nMeet Polly\, the friendly face behind Speech Teacher! With a heart full of dedication\, Polly launched Speech Teacher to lend a helping hand to parents and children navigating speech challenges. As a seasoned Speech Language Therapist and a parent herself\, Polly understands the realities of family life. Her mission? Ensuring that everyone’s voice is heard loud and clear\, without any doubts. \nPolly holds a Bachelor of Speech Language Therapy from Massey University\, Auckland\, New Zealand\, though she jokes it sounds more like a delicious sandwich (mmm\, B.SLT!). She’s proudly affiliated with the New Zealand Speech-Language Therapists’ Association (NZSTA) as a registered member and expert adviser for speech sound disorders. \nWith over 20 years of expertise in the New Zealand education sector\, Polly’s journey has been remarkable. Her path includes roles with the Ministry of Education\, Accident Compensation Corporation (ACC)\, Rural Education Activities Programme (REAP)\, and Special Schools\, among others. She’s now been running and evolving Speech Teacher – her private practice (and third baby) for over 13 years. \nThrough the years\, Polly’s honed her craft to perfection. She’s not just about teaching and speeching; she’s about working collaboratively to achieve the best outcomes for everyone and in the process\, delivering an exceptional experience. By staying updated with the latest research\, listening and adapting to families’ needs\, and embracing newfound inspirations\, Polly ensures that her practice continues to evolve in the best possible way. Perfecting her approach is a top priority – all to serve families like yours\, in the most remarkable way. \nTheme: Communication\nAudience: Parents\, whānau and professionals
URL:https://nzdsa.org.nz/event/community-connection-shifting-the-inclusion-focus/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/polly-newton.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261014T190000
DTEND;TZID=Pacific/Auckland:20261014T193000
DTSTAMP:20260905T000046Z
CREATED:20260905T000046Z
LAST-MODIFIED:20260905T000046Z
UID:18228-1792004400-1792006200@nzdsa.org.nz
SUMMARY:Education For All Election Forum
DESCRIPTION:14th October\n7.00pm or 7.30pm TBC \nEducation For All Election Forum \nDetails to TBC via the NZDSA Website and Facebook \nTheme: Education and advocacy \nAudience: All welcome \n 
URL:https://nzdsa.org.nz/event/education-for-all-election-forum/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261015T120000
DTEND;TZID=Pacific/Auckland:20261015T130000
DTSTAMP:20260905T000224Z
CREATED:20260905T000224Z
LAST-MODIFIED:20260905T000224Z
UID:18230-1792065600-1792069200@nzdsa.org.nz
SUMMARY:Your health and disability Code of Rights
DESCRIPTION:Your health and disability Code of Rights\nThe Office of the Health and Disability Commissioner and the Independent Advocacy Service will discuss your rights and how to advocate for them when receiving health and disability services. \nPresenters\nRose Wall\nDeputy Health and Disability Commissioner\nOffice of the Health and Disability Commissioner\nDr Esther Woodbury\nPrincipal Advisor\nOffice of the Health and Disability Commissioner\nRandal Southee\nChief Executive\nNational Advocacy Trust \nBiographies\nRose Wall is focused on the rights of disabled people when using health and disability services and is committed to improving the accessibility and responsiveness of HDC’s complaints process for disabled people I tāngata whaikaha. \nDr Esther Woodbury is a disability and human rights researcher and advisor. Esther has worked in disability across government\, tertiary education and community sectors\, in research\, monitoring\, community engagement and governance. \nRandal Southee is the CEO for the National Advocacy Trust\, who are contracted through the Director of Advocacy and under the Code of Rights to provide free and independent health & disability consumer advocacy across the motu to all people who use a health or disability service. \nTheme: Health and advocacy\nAudience: Parents\, whānau and professionals \n 
URL:https://nzdsa.org.nz/event/your-health-and-disability-code-of-rights/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261015T193000
DTEND;TZID=Pacific/Auckland:20261015T203000
DTSTAMP:20260905T000419Z
CREATED:20260905T000419Z
LAST-MODIFIED:20260905T000419Z
UID:18232-1792092600-1792096200@nzdsa.org.nz
SUMMARY:Friendship as a bridge from loneliness to connection
DESCRIPTION:Friendship as a bridge from loneliness to connection\nSelf-advocates with Down syndrome explore friendships\nFriendship is a universal human experience that plays a significant role in shaping individual well-being\, social inclusion\, and our sense of belonging. Research consistently shows that friendship is among the most meaningful interpersonal relationships people form\, contributing to connection\, belonging\, and life satisfaction.\nThis presentation shares findings from a research project in which self-advocates with Down syndrome and activist researchers worked together as co-researchers to explore friendship formation and experiences. The research highlights what people with Down syndrome value in a friend\, the importance of friendship in their lives\, and the barriers they encounter in maintaining friendships. Importantly\, the project centres the voices and lived experiences of people with Down syndrome\, with self-advocates taking an active role in interviewing their peers and bringing their perspectives into the research process. In doing so\, the project demonstrates the value of inclusive research\, where people with lived experience are not only participants but also actively contribute to creating knowledge about issues that directly affect their lives. \nPresenters\nSTRIVE members and Dr Franco Vaccarino \nBiographies\nErin Smith is a founding member of STRIVE\, the NZDSA self- advocacy and leadership and advisory group. \nAndrew Oswin is a founding member of STRIVE\, now a founding member of STEP-UP and currently the New Zealand representative on the Down Syndrome International Ambassador programme. \nDr Franco Vaccarino is a researcher specialising in intercultural communication and has been involved in several international collaborative research projects. He is also passionate about inclusive research\, in which people with learning disabilities are actively involved as co-designers and co-researchers in research that concerns their lives and experiences. \nAs an activist researcher\, Franco seeks to challenge traditional power relationships between researchers and people with learning disabilities by supporting them to become active contributors\, leaders and producers of knowledge. Emerging research paradigms\, models and methodologies have increasingly opened the research process to people with learning disabilities\, recognising the value of their lived experience and expertise. \nFor Franco\, inclusive research means conducting research with and by people with learning disabilities\, rather than simply conducting research about them. It therefore places their voices\, experiences and active participation at the centre of the research process. \nTheme: Friendship\nAudience: All welcome \n 
URL:https://nzdsa.org.nz/event/friendship-as-a-bridge-from-loneliness-to-connection/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/strive.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261016T120000
DTEND;TZID=Pacific/Auckland:20261016T130000
DTSTAMP:20260905T000558Z
CREATED:20260905T000558Z
LAST-MODIFIED:20260905T000558Z
UID:18235-1792152000-1792155600@nzdsa.org.nz
SUMMARY:The Recreate Way – Across Aotearoa
DESCRIPTION:The Recreate Way – Across Aotearoa\nEmbodying and exemplifying the principles of EGL – the who\, how\, where\, and why of Recreate NZ.\nJourneying with and for disabled youth. \nPresenters\nBrent Jenkin\nGeneral Manager \nZoe Reining\nProgramme Coordinator and Facilitator at Recreate NZ \n\nBiographies\nBrent is an enthusiastic outdoorsman on the trails and the water. Brent has just celebrated 15 incredible years as the General Manager of Recreate NZ.\nPrior to Recreate NZ\, Brent led North Shore Riding for the Disabled for 5 years. \nZoe is a Programme Coordinator and Facilitator at Recreate NZ. She currently coordinates and facilitates Recreate’s work experience programmes as well as the Youth Board. Since July 2025\, she has also been the ADSA Social Club Coordinator. Zoe is bringing an international background with her and is passionate about topics of social and environmental justice. \nTheme: Connection\nAudience: Parents\, whānau and professionals
URL:https://nzdsa.org.nz/event/the-recreate-way-across-aotearoa/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261017T160000
DTEND;TZID=Pacific/Auckland:20261017T170000
DTSTAMP:20260905T000757Z
CREATED:20260905T000757Z
LAST-MODIFIED:20260905T000757Z
UID:18237-1792252800-1792256400@nzdsa.org.nz
SUMMARY:Safer Walking
DESCRIPTION:Safer Walking\nThis presentation introduces Safer Walking\, a free\, national programme that promotes independence\, choice\, and inclusion\, by providing tools and strategies that support people with disabilities like Down syndrome to independently navigate their community\, while reducing personal risk.\nLearn about Safer Walking’s practical safety strategies\, available resources\, and how families\, whānau\, and support networks can work together to help people be in their communities with confidence while maintaining their freedom and connection to their community. \nPresenters\nLiz Henderson\nNational Public Safety Manager/Safer Walking Coordinator-New Zealand Land Search and Rescue \nSamantha Richards\nSafer Walking Ambassador \nNick Richards\nSafer Walking Ambassador \nBiographies\nLiz Henderson is the National Public Safety Manager for New Zealand Land Search and Rescue. With a background in disability\, health\, sport\, and emergency response\, Liz is passionate about helping people live active\, connected\, and independent lives while reducing risks to their safety and wellbeing. Liz leads Land Search and Rescue’s Safer Walking Initiative\, a national programme that provides practical tools\, resources\, and strategies to support people who may be at risk of becoming lost or going missing in the community. The disability community is a key focus for the initiative. Liz leads a range of stakeholders and organisations to promote approaches that balance safety with independence and quality of life. \nSamantha Richards and Nick Richards are proud to be ambassadors for the Safer Walking Initiative. Samantha’s younger brother Nick\, who is 25 and has Down Syndrome\, has been the driving force behind her passion for creating a safer and more inclusive world. As a family\, they are committed to learning\, growing\, and supporting Nick to live as safely and independently as possible. Being part of Safer Walking is a meaningful step in helping raise awareness and ensuring that people of all abilities can navigate their communities with confidence. \nTheme: Connections\nAudience: All welcome \nJoin Zoom Meeting\nhttps://us02web.zoom.us/j/85391346886?pwd=8frdFakcplaJrKq8tl9fTrlWLu8zN0.1\nMeeting ID: 853 9134 6886\nPasscode: 632855
URL:https://nzdsa.org.nz/event/safer-walking/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2026/09/samantha-and-nick.png
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261017T163000
DTEND;TZID=Pacific/Auckland:20261017T170000
DTSTAMP:20260905T000940Z
CREATED:20260905T000940Z
LAST-MODIFIED:20260905T000940Z
UID:18240-1792254600-1792256400@nzdsa.org.nz
SUMMARY:Through My Eyes: My Latest Photographic Project in Collaboration with the NZDSA
DESCRIPTION:Through My Eyes: My Latest Photographic Project in Collaboration with the NZDSA\nPhotography allows me to see the beauty in the world through my own eyes and share it with others. In my latest project\, I want to capture the beauty\, personality and uniqueness of people with Down syndrome through photographs and their stories. I hope this project will help people see the person behind the photograph and encourage others with Down syndrome to follow their dreams and share their own talents with the world. \nPresenter\nCarlos Biggemann\nInternational Award-winning photographer\, poet\, STEP-UP member \nBiography\nCarlos is a renowned photographer who has received numerous international awards. He is also a poet and has numerous publications. You may recognise him as he has appeared on a few television programmes\, most recently\, he was one of the cast members on Down For Love. Carlos is a public speaker and an active self-advocate. Carlos has received a range of awards including winning the Attitude Creative Award at the Attitude Awards in 2021. \nTheme: Self-advocacy\nAudience: All welcome\nJoin Zoom Meeting\nhttps://us02web.zoom.us/j/81223265710?pwd=JJ0yQHX5CASLoLKlbq4d5zdZKETnSn.1\nMeeting ID: 812 2326 5710\nPasscode: 615830 \n 
URL:https://nzdsa.org.nz/event/through-my-eyes-my-latest-photographic-project-in-collaboration-with-the-nzdsa/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/carlos-biggeman.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261019T120000
DTEND;TZID=Pacific/Auckland:20261019T130000
DTSTAMP:20260905T001111Z
CREATED:20260905T001111Z
LAST-MODIFIED:20260905T001111Z
UID:18243-1792411200-1792414800@nzdsa.org.nz
SUMMARY:Tools and tips for talking about sexual wellbeing
DESCRIPTION:Tools and tips for talking about sexual wellbeing\nThis session introduces Sexual Wellbeing Aotearoa (formally Family Planning). Resources available\, include Easy Read; Consent for Sex; and a new sexual wellbeing programme ‘Bodies\, Boundaries and Being Me’. Attendees will come away with an understanding of resources available and a clearer sense of how to support open\, confident conversations about sexual wellbeing. \nPresenter\nLeah Rothman\nHealth Promotion Specialist\nSexual Wellbeing Aotearoa \nBiography\nI’ve been working in the social services world for over 20 years\, walking alongside young people\, their whānau\, communities and the people that support them. \nI have a background in Social Work\, Youth Work\, Development Studies\, and Social Service Supervision\, providing direct client work\, programme development and facilitation\, project management and clinical supervision. Most recently\, I have worked in the alcohol and drug and sexual wellbeing space. \nI love working with people and communities to help create positive change where it’s needed most. My mahi is client- and community-led\, strengths-based and designed to spark reflection\, action and change.\nI’m currently based in the Wairarapa with my partner\, our small children\, a dog\, and some spirited chickens. I’ve spent a lot of my life travelling but always return to living in the Wellington region. \nTheme: Health and Sexual wellbeing\nAudience: Parents\, whānau and professionals
URL:https://nzdsa.org.nz/event/tools-and-tips-for-talking-about-sexual-wellbeing/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/leah-rothman.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261019T193000
DTEND;TZID=Pacific/Auckland:20261019T200000
DTSTAMP:20260905T001302Z
CREATED:20260905T001302Z
LAST-MODIFIED:20260905T001302Z
UID:18246-1792438200-1792440000@nzdsa.org.nz
SUMMARY:Home & School: Joyful connections and a strong relationship
DESCRIPTION:Home & School: Joyful connections and a strong relationship\nI’m presenting in my capacity as a parent\, not in a professional capacity. My daughter Charlotte is in Year 5 at our local primary school. I’ll be sharing with you about this journey so far\, and how we work together with our school to ensure that we have a strong relationship. It’s a long-term relationship\, and it’s not always smooth – but I’ve learned some important things along the way.\nI’ll talk about how we communicate\, plan and solve problems together. And how our focus has changed over the last 5 years.\nThis year\, we have been focusing on friendships and building social connections through school and outside of school. I’m passionate about ensuring Charlotte’s continued participation in school and community life. And educating those around her to best support\, understand and include her.\nThis is suitable for anyone who has a child starting school soon or who has already started primary \nPresenter\nPaula Beguely\nParent\nADSA Education & Information Facilitator \nBiography\nI live in Auckland\, with my husband Tom\, and two beautiful daughters\, Harriet (13) and Charlotte (10). Our journey with the Down syndrome community started when Charlotte was born in 2016. I was the Community Liaison with Auckland Down Syndrome Association for 6 years\, and now I’m in a new role as Education & Information Facilitator. \n  \nTheme: Education and advocacy\nAudience: Parents\, whānau and professionals \n 
URL:https://nzdsa.org.nz/event/home-school-joyful-connections-and-a-strong-relationship-2/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/paula-beguely.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261020T120000
DTEND;TZID=Pacific/Auckland:20261020T130000
DTSTAMP:20260905T001457Z
CREATED:20260905T001457Z
LAST-MODIFIED:20260905T001457Z
UID:18247-1792497600-1792501200@nzdsa.org.nz
SUMMARY:Brain Train: SMART Actions That Might Boost Cognition and Prevent Alzheimer’s Disease in People with Down Syndrome
DESCRIPTION:Brain Train:\nSMART Actions That Might Boost Cognition and Prevent Alzheimer’s Disease in People with Down Syndrome\nTwo of the most common\, yet challenging\, questions that Dr. Skotko is asked by caregivers: (1) How can you prevent Alzheimer’s disease in people with Down syndrome? (2) How might we boost their cognition? While exciting research is unfolding in laboratories across the world\, there are strategies that caregivers can take right now in respect to these two questions. In this presentation\, Dr. Skotko reveals his recommendations\, which must meet all of the following criteria: (a) supported\, in part\, by quality science\, (b) have practical applications for home\, (c) be adaptable to people with Down syndrome\, and (d) pose no risk to people with Down syndrome. This is not a presentation on how best to educate people with Down syndrome. This is not a presentation about supplements or nutraceuticals. Instead\, Dr. Skotko provides a set of actions that caregivers can take that might improve the long-term wellness for their loved one with Down syndrome. Attendees will come away with immediate steps that can be implemented in their homes. \nPresenter\nDr Brian Skotko\nA Board-certified medical geneticist\, Dr Skotko is the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital. Director of the hospital’s Down Syndrome Program. \nBiography\nDr Brian Skotko\nA Board-certified medical geneticist\, Dr Skotko is the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital. As the Director of the hospital’s Down Syndrome Program\, he has dedicated his professional energies toward children with cognitive and development disabilities. He co-authored the national award-winning books\, Common Threads: Celebrating Life with Down Syndrome and Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University\, Harvard Medical School\, and Harvard Kennedy School\, and he is currently an Associate Professor at Harvard Medical School. Dr Skotko is a leader on clinical and translational research about Down syndrome. He has been featured in The Wall Street Journal\, The New York Times\, The Washington Post\, The L.A. Times\, NPR’s “On Point\,” and ABC’s “Good Morning America.” Dr Skotko has a sister with Down syndrome and serves on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress. \nTheme: Health\nAudience: All welcome \n  \n 
URL:https://nzdsa.org.nz/event/brain-train-smart-actions-that-might-boost-cognition-and-prevent-alzheimers-disease-in-people-with-down-syndrome-2/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2026/09/brian.png
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261020T193000
DTEND;TZID=Pacific/Auckland:20261020T203000
DTSTAMP:20260905T001648Z
CREATED:20260905T001648Z
LAST-MODIFIED:20260905T001648Z
UID:18251-1792524600-1792528200@nzdsa.org.nz
SUMMARY:Planet Puberty: Helping Your Young Person Navigate Puberty with Confidence
DESCRIPTION:Planet Puberty: Helping Your Young Person Navigate Puberty with Confidence\nThis session provides an introduction to Planet Puberty\, a practical resource designed to provide parents and carers with information and resources to support their young people in navigating puberty with confidence. \nTogether\, we will explore the foundational skills that help young people feel confident and stay safe\, including concepts such as consent and understanding public and private. We will explore ways to develop and build on these skills as your young person grows. \nThe session will also cover effective strategies and resources for supporting physical developments\, including menstruation\, hygiene\, and erections. It will equip parents and carers to have open\, age-appropriate conversations throughout the puberty journey. \nPresenter\nEmily McCarthy\nLeads Planet Puberty\nHealth Promotion Team Leader\nFamily Planning Australia \nBiography\nEmily McCarthy is the Health Promotion Team Leader at Family Planning NSW and leads the Planet Puberty team\, which develops accessible\, evidence-based resources for parents and carers of young people with autism and intellectual disability.\nWith a Master’s degree in Teaching and Learning and more than nine years’ experience in education. \nEmily specialises in sexual and reproductive health and rights education. She has worked with international Ministries of Education to strengthen Comprehensive Sexuality Education curricula and is passionate about ensuring all young people have access to inclusive\, accessible\, and evidence-based health education. \nEmily likes ocean swimming\, playing board games (especially Mahjong)\, and vegetarian cooking. \nTheme: Health and Puberty\nAudience: Parents\, whānau and professionals
URL:https://nzdsa.org.nz/event/planet-puberty-helping-your-young-person-navigate-puberty-with-confidence/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/png:https://nzdsa.org.nz/wp-content/uploads/2026/09/emily-mccarthy.png
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261021T120000
DTEND;TZID=Pacific/Auckland:20261021T130000
DTSTAMP:20260905T001829Z
CREATED:20260905T001829Z
LAST-MODIFIED:20260905T001829Z
UID:18254-1792584000-1792587600@nzdsa.org.nz
SUMMARY:Turn and face the strange changes” – managing puberty
DESCRIPTION:Turn and face the strange changes” – managing puberty\nKrissy will talk about the topic of puberty as it relates to her experience of raising a son with Down syndrome\, and she will make some recommendations of resources that can help young people transitioning through this important stage of life. \nPresenter\nKrissy Wright\nNational Librarian\, CCS Disability Action Library & Information Service \n\nBiography\nKrissy considers her most significant role to be a mother. Krissy believes her son Joel\, who has Down syndrome\, to be her greatest educator. Krissy brings to her role as librarian a diverse range of knowledge and lived experience relating to disability and disability related issues.\nKrissy has worked at CCS Disability Action for eight years in separate roles including: Service Coordinator\, National Administrator and\, more recently\, National Librarian for the CCS Disability Action Library and Information Service based in Ōtepoti Dunedin.\nKrissy’s past roles include managing the research library at the Donald Beasley Institute\, administration for a Paediatric Ward and Needs Assessor and Coordinator for the Otago NASC. \nTheme: Health and Puberty\nAudience: Parents\, whānau and professionals \n 
URL:https://nzdsa.org.nz/event/turn-and-face-the-strange-changes-managing-puberty/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/krissy-wright.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261021T193000
DTEND;TZID=Pacific/Auckland:20261021T203000
DTSTAMP:20260905T002018Z
CREATED:20260905T002018Z
LAST-MODIFIED:20260905T002018Z
UID:18257-1792611000-1792614600@nzdsa.org.nz
SUMMARY:Creating a Vision for a Good Life
DESCRIPTION:Creating a Vision for a Good Life – We envisioned a meaningful and good life\, and 38 years on\, our son continues to embody that vision each day.\nSoon after the birth of her son in 1988\, Bridget was determined to create a life for Alex that would follow the same ordinary path as all children. She and Alex’s dad\, Garry\, wanted him to have a strong sense of belonging in his local neighbourhood. That he would be known and cared about because he contributed to community life. Alex would be educated and play with the local children\, work\, and eventually live in his own home. Today Alex has his own house and lives his life on his terms. The decisions made over 30 years ago continue to be lived out today. Alex lives a good life because of the vision we held for him; he has a wide circle of friends\, and he has choice and control over his daily life and decisions that he considers to be good for him. He has lived in his own home and independent of his parents for over 10 years. He is deeply loved by his family and wide circle of friends. His faith is what defines him.\nBridget understands what it takes for parents to create a vision for the future\, plan for that future\, and then make it happen. She understands that it is not easy navigating a system that doesn’t always work for you. We have never deviated from our belief in a full and inclusive life. Other parents and allies with the same commitment to inclusion have influenced our lives.\nIt has been a very intentional journey\, and like all of us\, it takes time to grow and build a good life\, and today is a good place to start if you haven’t already. \n\nPresenter\nBridget Snedden ONZM\nDown Syndrome International President\nInternational Disability Alliance Board Member \nBiography\nBridget has worked in the disability sector for almost 30 years and is President of Down Syndrome International. She is a Board Member of International Disability Alliance.\nThrough her work\, she shares what she has learned so that other parents can have every opportunity to know what’s possible for their family member with intellectual impairment and\, in particular\, people with Down syndrome. \nBridget has three adult children\, and her eldest son Alex\, has Down syndrome. Alex has a good life doing what he decides gives him meaning in his life. He has lived independently of his parents for over a decade alongside neighbours and friends. Bridget and her husband Garry have never deviated from their commitment to inclusion. Other parents and allies with the same commitment to inclusion have influenced their lives. She understands that it is not easy navigating a system that doesn’t always work for you. They have always held a strong vision for Alex. Because of this vision\, they have a good life like every other empty nester\, but with a difference. \n  \nTheme: Creating a vision\nAudience: Parents\, whānau and professionals
URL:https://nzdsa.org.nz/event/creating-a-vision-for-a-good-life/
LOCATION:Zoom\, New Zealand
CATEGORIES:Virtual Conference 2026
ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2026/09/bridget-sneedon.jpg
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20261119T193000
DTEND;TZID=Pacific/Auckland:20261119T203000
DTSTAMP:20260812T060342Z
CREATED:20260812T060342Z
LAST-MODIFIED:20260812T060342Z
UID:18155-1795116600-1795120200@nzdsa.org.nz
SUMMARY:NZDSA AGM
DESCRIPTION:Join us to celebrate NZDSA’s 45th anniversary at our 2026 Annual General Meeting as we reflect on our journey\, achievements and the people who have helped shape our organisation. This special milestone is a chance for our members to come together\, share their stories and celebrate the community we have built over 45 years. \nZoom: https://us02web.zoom.us/j/85886768191?pwd=9eCqzPWoRAmxO7j3NwgRJet6CLDffK.1 \nMeeting ID: 858 8676 8191 \nPasscode: 289008
URL:https://nzdsa.org.nz/event/nzdsa-agm-2/
LOCATION:Zoom\, New Zealand
ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz
END:VEVENT
END:VCALENDAR