BEGIN:VCALENDAR VERSION:2.0 PRODID:-//New Zealand Down Syndrome Association (NZDSA) - ECPv6.15.17//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://nzdsa.org.nz X-WR-CALDESC:Events for New Zealand Down Syndrome Association (NZDSA) REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Pacific/Auckland BEGIN:STANDARD TZOFFSETFROM:+1300 TZOFFSETTO:+1200 TZNAME:NZST DTSTART:20230401T140000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1200 TZOFFSETTO:+1300 TZNAME:NZDT DTSTART:20230923T140000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+1300 TZOFFSETTO:+1200 TZNAME:NZST DTSTART:20240406T140000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1200 TZOFFSETTO:+1300 TZNAME:NZDT DTSTART:20240928T140000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+1300 TZOFFSETTO:+1200 TZNAME:NZST DTSTART:20250405T140000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1200 TZOFFSETTO:+1300 TZNAME:NZDT DTSTART:20250927T140000 END:DAYLIGHT END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241004T160000 DTEND;TZID=Pacific/Auckland:20241004T170000 DTSTAMP:20260423T230927 CREATED:20240926T081357Z LAST-MODIFIED:20241003T013144Z UID:14575-1728057600-1728061200@nzdsa.org.nz SUMMARY:Hogwarts in our home DESCRIPTION:Register here URL:https://nzdsa.org.nz/event/hogwarts-in-our-home/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241003T193000 DTEND;TZID=Pacific/Auckland:20241003T213000 DTSTAMP:20260423T230928 CREATED:20240926T075015Z LAST-MODIFIED:20240926T081119Z UID:14562-1727983800-1727991000@nzdsa.org.nz SUMMARY:Assume I Can. Parents’ Journeys: Creating a Good Life for Their Children DESCRIPTION:This panel features parents sharing their experiences in striving to create a good life for their children. They will discuss the challenges they’ve faced\, the strategies that have supported them\, and the sources of resilience that have helped them persevere. This discussion aims to provide inspiration and ractical advice for parents facing their own challenges and to foster a supportive community of shared experiences and collective wisdom. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Angelique van der Velden\n \n I wear many hats. I have a background in Education (music\, economics and special ed)\, and I am a qualified communication therapist (use music\, colour\, movement and drama). My son Luka has Down Syndrome and he has big ideas about what he wishes to achieve and how he wants to live. I often feel I should take a leaf out of his book. He lives life like Aquaman – nothing is impossible and his life is rich and full. \nWhat does the future hold? I watch the world with wonder and hope for the best. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Dr Carey-Ann Morrison\n \n Dr Carey-Ann Morrison is the Chief Disability Advisor in Commissioning at Health New Zealand Te Whatu Ora. She joined Te Whatu Ora in February 2024 following 10 years working in the community/NGO space. Most recently\, she was the Chief Executive of SAMS and was a member of the National Enabling Good Lives Leadership Group. She also holds an honorary position at the University of Waikato. Underpinning her work is a commitment to prioritising the voice and self-determination of disabled people and their families as experts on their own lives and community needs. Carey-Ann is a proud parent to a young disabled son. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Dr Gretchen Good\n \n Gretchen Good\, PhD\, is Mum to two high school-aged children who live with Down syndrome.  She is a certified Orientation and Mobility Specialist and Vision Rehabilitation Therapist.  Gretchen’s research platform is related to disability advocacy\, inclusion and access; disability and disasters; and disability and mothering. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n James Lonsdale\n \n Hi\, I’m James Lonsdale – father to 3 kids\, the eldest\, Hannah has Downs Syndrome. We have lived in Christchurch for all of Hannah’s life apart from 2 years when we lived in Toulouse\, France  Hannah was aged 11 – 13. I enjoy the outdoors and try to drag Hannah out when I can. We have a tandem bike that we enjoy riding (especially when we ride it to a café). \nHannah turns 23 early October and has two younger siblings – Jasper 21 and Penelope 19. I am married to Rachel who is working full time as a primary school teacher doing the Nurture Class and Reading literacy. I work for Air NZ engineering as a Project Manager. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Kaye Young\n \n My name is Kaye and my husband Roger and I\, are the proud parents of three sons\, all of whom live in Christchurch. Our second son – James has Down syndrome\, Autism and Coeliac disease and for the last 7 years has lived in a house 5 minutes away from us. We purchased the house for him\, and 3 classmates moved in with James\, when they all finished school at the age of 21. James and his flatmates are still living together successfully and enjoying a good life in the community. Staff from a local residential provider provide 24/7 support through EGL Funding. \nRoger and I live on a lifestyle property on the outskirts of Christchurch\, which keeps us busy\, alongside pursuing our own interests. For the last 8 years I have been a keen tramper and love being out in the mountains. When our sons were still at home\, I was very involved in charity work as a volunteer with the Canterbury Down Syndrome Association\, founded the UP Club in Christchurch\, was instrumental in getting Sunshine Football going for children with a disability and for a couple of years I worked for Parent to Parent. Prior to that I did a commerce degree at Canterbury University and majored in accountancy. \n  \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Paula Beguely\n \n I live in Auckland\, with husband Tom\, and two beautiful daughters Harriet (11) and Charlotte (8). \nOur journey with the Down syndrome community started with Charlotte was born in 2016.  I have been the Community Liaison with Auckland Down Syndrome Association for 5 years. This role is home based – but I’m out in the community a lot! I’m very passionate about changing the narrative for people with Down syndrome by highlighting their strengths and capabilities\, and showing others the joy that Charlotte brings to whanau.  I’m currently building my advocacy skills as Charlotte journeys through our local primary school.  I’m also the coordinator and a presenter for the ADSA Success in School education workshop. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Register here URL:https://nzdsa.org.nz/event/assume-i-can-parents-journeys-creating-a-good-life-for-their-children/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20241003T120000 DTEND;TZID=Pacific/Auckland:20241003T130000 DTSTAMP:20260423T230928 CREATED:20240926T065730Z LAST-MODIFIED:20240926T070841Z UID:14557-1727956800-1727960400@nzdsa.org.nz SUMMARY:Keeping Children and Adolescents with Down Syndrome Healthy DESCRIPTION:In this presentation\, Dr Brian Skotko reviews all of the questions and concerns that parents most often have about their sons and daughters with Down syndrome. He provides the answers and action steps\, stemming from the latest clinical research on people with Down syndrome. Based on his clinical experience in the Down Syndrome Program at Massachusetts General Hospital\, Dr Skotko makes sure that every parent can anticipate medical conditions so that the potentials of all people with Down syndrome are maximized. \n \n \n \n \n \n \n \n Dr Brian Skotko\n \n A Board-certified medical geneticist\, Dr. Skotko is the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital. As the Director of the hospital’s Down Syndrome Program\, he has dedicated his professional energies toward children with cognitive and development disabilities. He co-authored the national award-winning books\, Common Threads: Celebrating Life with Down Syndrome and Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University\, Harvard Medical School\, and Harvard Kennedy School\, and he is currently a Professor of Pediatrics at Harvard Medical School. Dr. Skotko is a leader on clinical and translational research about Down syndrome. He has been featured in The Wall Street Journal\, The New York Times\, The Washington Post\, The L.A. Times\, NPR’s “On Point\,” and ABC’s “Good Morning America.” Dr. Skotko has a sister with Down syndrome and serves on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress. \n \n \n \n Register here URL:https://nzdsa.org.nz/event/keeping-children-and-adolescents-with-down-syndrome-healthy/ LOCATION:Zoom\, New Zealand CATEGORIES:Virtual Conference ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20240805T080000 DTEND;TZID=Pacific/Auckland:20240806T170000 DTSTAMP:20260423T230928 CREATED:20240402T193147Z LAST-MODIFIED:20240628T230408Z UID:13170-1722844800-1722963600@nzdsa.org.nz SUMMARY:Success in Schools Workshop DESCRIPTION:Success in Schools\n \n \n \n \n \n \n \n \n \n \n \n Success in School for children who learn differently —Providing detailed information\, practical guidance\, and strategiesfor educating students with Down syndrome and other special learning needs. \nWho is it for?SENCO’s\, teachers\, teacher aides\, specialist staff\, and parent educators\, and anyone involved in educating of students with Down syndrome and other special learning needs. \nTopics covered include:Inclusion\, Learning Profile of students with Down syndrome\, Behaviour\, Friendships\, Numeracy\, Literacy\, using Visual Aids to Access the Curriculum\, and Collaboration for Success – IEP’s.In addition you will hear from 3 adults with Down syndrome who talk about their school experiences. \n \n Register here URL:https://nzdsa.org.nz/event/success-in-schools-workshop/ ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2024/06/430002766_797401829100053_7494622100773132039_n-1.jpg ORGANIZER;CN="Auckland Down Syndrome Association":MAILTO:clo@adsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20240730T123000 DTEND;TZID=Pacific/Auckland:20240730T133000 DTSTAMP:20260423T230928 CREATED:20240705T084233Z LAST-MODIFIED:20240705T084233Z UID:14289-1722342600-1722346200@nzdsa.org.nz SUMMARY:NZDSA and Kindred Video Launch Event DESCRIPTION:The NZDSA and Kindred are excited to invite you to join our video launch event\, complementing our current Employment Resources. This event will feature videos of employers and employees sharing their thoughts and experiences on successful inclusive hiring and employment. \nGeorgina Kirk and Kate Maroulis from Kindred – Psychology at Work will also provide an overview of the Employer Resource Toolkit\, a guide for employers on hiring people with Down syndrome\, and the Career Plan Workbook\, a guide for job seekers. \nThe event will take place online on the 30th July 2024 from 12:30 pm to 1:15 pm. You can access the Zoom link below and view the promotional video. \nThis resource has pan-disability relevance. Please share the information with your networks. \nTopic: Launch of Employment Stories \nTime: July 30\, 2024 12:30 -1.15PM Auckland\, Wellington \nJoin Zoom Meeting \nhttps://us02web.zoom.us/j/87813848158?pwd=BaB4JueHam9Bu8pjG4hf5k7cCjXaSu.1 \nMeeting ID: 878 1384 8158 \nPasscode: 348256 URL:https://nzdsa.org.nz/event/nzdsa-and-kindred-video-launch-event/ LOCATION:Zoom\, New Zealand ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20240709T080000 DTEND;TZID=Pacific/Auckland:20240712T170000 DTSTAMP:20260423T230928 CREATED:20240705T082504Z LAST-MODIFIED:20240705T082947Z UID:14278-1720512000-1720803600@nzdsa.org.nz SUMMARY:World Down Syndrome Congress 2024 DESCRIPTION: URL:https://nzdsa.org.nz/event/world-down-syndrome-congress-2024/ LOCATION:brisbane australia\, Brisbane\, Australia END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20240528T183000 DTEND;TZID=Pacific/Auckland:20240528T213000 DTSTAMP:20260423T230928 CREATED:20240411T105322Z LAST-MODIFIED:20240628T230410Z UID:13182-1716921000-1716931800@nzdsa.org.nz SUMMARY:ADSA Parents Night Out DESCRIPTION:ADSA Parents Night OutThis is an event for ADSA parents! A great chance to catch up socially with other parents in a relaxing setting. You are welcome for as little or long as you like. Just a drink\, or dinner as well – its up to you.Its a great way to take some time to fill your bucket\, sharing stories with other parents in the community and ALWAYS having a great laugh too.RSVPs are to Angela – 027 605 4496 \n View Facebook Event here URL:https://nzdsa.org.nz/event/adsa-parents-night-out/ LOCATION:Brothers Brewery Mt Eden\, 5 Akiraho St\, Mt Eden\, Auckland\, New Zealand ORGANIZER;CN="Auckland Down Syndrome Association":MAILTO:clo@adsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240528 DTEND;VALUE=DATE:20240529 DTSTAMP:20260423T230928 CREATED:20240411T102102Z LAST-MODIFIED:20240628T230409Z UID:13176-1716854400-1716940799@nzdsa.org.nz SUMMARY:Korero & Kai Napier DESCRIPTION: URL:https://nzdsa.org.nz/event/korero-kai-napier/ LOCATION:Havelock North Function Centre\, 30 Te Mata Road\, Havelock North\, New Zealand ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2024/06/NZDSA_KK_Napier-scaled-1.jpg ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;TZID=Pacific/Auckland:20240517T080000 DTEND;TZID=Pacific/Auckland:20240519T170000 DTSTAMP:20260423T230928 CREATED:20240411T103512Z LAST-MODIFIED:20240628T230409Z UID:13178-1715932800-1716138000@nzdsa.org.nz SUMMARY:STRIVE Funshop DESCRIPTION: URL:https://nzdsa.org.nz/event/strive-funshop/ LOCATION:Christchurch ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240505 DTEND;VALUE=DATE:20240506 DTSTAMP:20260423T230928 CREATED:20240411T105558Z LAST-MODIFIED:20240628T230411Z UID:13183-1714867200-1714953599@nzdsa.org.nz SUMMARY:ADSA Under 12's Get Together DESCRIPTION: URL:https://nzdsa.org.nz/event/adsa-under-12s-get-together/ LOCATION:Grey Lynn Community Centre\, 510 Richmond Road\, Grey Lynn\, Auckland\, New Zealand ORGANIZER;CN="Auckland Down Syndrome Association":MAILTO:clo@adsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240502 DTEND;VALUE=DATE:20240503 DTSTAMP:20260423T230928 CREATED:20240410T092630Z LAST-MODIFIED:20240628T230408Z UID:13172-1714608000-1714694399@nzdsa.org.nz SUMMARY:Korero & Kai Dunedin DESCRIPTION: URL:https://nzdsa.org.nz/event/korero-kai-dunedin/ LOCATION:Scenic Hotel Southern Cross\, 118 High Street\, Dunedin\, New Zealand ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2024/06/NZDSA_KoreroKai_Dunedin-scaled-1.jpg ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240430 DTEND;VALUE=DATE:20240501 DTSTAMP:20260423T230928 CREATED:20240411T092308Z LAST-MODIFIED:20240628T230409Z UID:13174-1714435200-1714521599@nzdsa.org.nz SUMMARY:Korero & Kai Invercargill DESCRIPTION: URL:https://nzdsa.org.nz/event/korero-kai-invercargill/ LOCATION:Langlands Hotel\, 59 Dee Street\, Invercargill\, New Zealand ATTACH;FMTTYPE=image/jpeg:https://nzdsa.org.nz/wp-content/uploads/2024/06/NZDSA_KoreroKai_Invercagill-scaled-1.jpg ORGANIZER;CN="New Zealand Down Syndrome Association":MAILTO:na@nzdsa.org.nz END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240321 DTEND;VALUE=DATE:20240322 DTSTAMP:20260423T230928 CREATED:20240227T131901Z LAST-MODIFIED:20240628T230408Z UID:13169-1710979200-1711065599@nzdsa.org.nz SUMMARY:World Down Syndrome Day DESCRIPTION: URL:https://nzdsa.org.nz/event/world-down-syndrome-day/ END:VEVENT END:VCALENDAR