Stunning Virtual Down Syndrome Conference programme announced
You do not want to miss this.
Make sure you check out the long list of world-leading presenters, who will cover most key topics that may be important to people with Down Syndrome as part of the NZDSA Virtual Down Syndrome Conference.
The NZDSA this month will celebrate its 40th anniversary by hosting the largest Virtual Down Syndrome Conference ever organised in this country, to coincide with World Down Syndrome Month.
The virtual conference will offer a stunning variety of high-profile Kiwi and international expert speakers who will cover a wide range of topics including education, health, speech, relationships, ageing and legal issues.
The conference will have several presentations focused on health with Andrea Simonlehner from Natural Equilibrium doing two sessions on gut health and fussy eaters, while Geraldine Whatnell will share her expertise on growing old with Down syndrome.
One session that will be exciting to parents as well as younger adults with Down syndrome will be relationship expert Dave Hicks talking about the theory and practicalities of getting into a relationship. Dave is likely to become a familiar face on New Zealand television as he was the expert on the upcoming television series Down With Love.
One of the speakers from the United States will be Kavita Krell from Massachusetts General Hospital who will explain how you can develop an innovative online health plan from anywhere in the world, while her colleague Dr Brian Skotko will do a presentation about and for siblings of people with Down syndrome.
The conference will also offer sessions wellbeing, speech therapy, advocacy and educations, so there will be there something for all stages of life and every member of our community.
The NZDSA has hosted many conferences, seminars and workshops during its history, but geographical and financial restraints often restricted the number of people who were able to attend.
All those barriers have now been removed by modern technology and the new digital skills we have learned during lockdown.
With modern video conferencing technology, there is no reason to miss out so keep an eye on our E-new and Facebook page for upcoming details how to register.
To get all this information, make sure we can send you our newsletters, so please register your details on the NZDSA website FOR FREE, at www.nzdsa.org.nz
Some sessions will be recorded as a future resource, but many others will not, so make sure you do not miss out on the webinars you are interested.
The NZDSA is non-for-profit charity that receives no Government funding and fully depends on grants and donations, so when you register or think the webinars are of value to you and your community, please remember to make a donation, so we can continue to offer these services to raise the awareness and knowledge around Down syndrome.
THE FULL PROGRAMME OF THE VIRTUAL DOWN SYNDROME CONFERENCE
Tuesday 5th October, 7pm – 8pm
Bridget Snedden, President of Down Syndrome International(DSi)
Theme: Wellbeing and Rights
Title: Getting to the good life – The importance of having a vision
Audience: Everyone
Wednesday 6th October, 7pm – 8pm
Dr Mark Sinclair, Private Practice
Theme: Wellbeing
Title: Keeping an Emotional Balance (At home with children and teens)
Audience: Parents, whānau, professionals – all ages
Thursday, 7th October, 7pm – 8pm
Trish Grant, Director of Advocacy IHC
Theme: Education and Rights
Title: Are we there yet?
Audience: Parents, whānau, professionals with a focus on school-aged children
Saturday, 9th October, 10am – 11am
Sir Robert Martin
Theme: Rights and Wellbeing
Title: From Institution to Knighthood
Audience: Everyone
Tuesday, 12th October , 7pm – 8pm
Erika Butters, Director, The Personal Advocacy and Safeguarding Adults Trust
Theme: Rights
Title: Supported Decision Making – a Human Right
Audience: Parents, whānau, professionals with a focus on youth and adults
Wednesday, 13th October, 7pm – 8pm
Dr Maree Kirk, Director, STPDS NZ
Theme: Education
Title: Individual Education Plan – The capabilities approach
Audience: Parents, whānau, professionals with a focus on school-aged children
Wednesday, 14th October, 12pm-1pm
Andrea Simonlehner, Natural Equilibrium
Theme: Health
Title: Brain and Gut Health for people with Down syndrome
Please note this session will view the recorded session hosted in September (there will be no Q&A)
It will be beneficial to view this for the session with Andrea on the 27th October
Audience: Parents, whānau, professionals – all ages
Thursday, 14th October, 7pm – 8pm
Who: Erika Butters, Director, The Personal Advocacy and Safeguarding Adults Trust
Theme: Rights
What: Supported Decision Making – a Human Right.
Audience: People with Down syndrome
Saturday, 16th October, 10am – 11am
Dr Brian Skotko, Director of the Down Syndrome Program at Massachusetts General Hospital
and Susan Levine, Co-founder and social worker at Family Resource Associates, Inc.
Theme: Siblings 18+
Title: Adult brothers and sisters of siblings with Down syndrome: Exploring past experiences and current roles
Audience: Siblings 18+
Tuesday, 19th October, 7pm – 8pm
Fiona Kenworthy, Speech & language therapist
Clinical Director /Small Talk Therapy
Theme: Speech and Language Therapy
Title: Early literacy skills for children with Down syndrome – Families making a difference
Audience: Parents, whānau, professionals with a focus on early literacy skills (not age specific)
Hosted by UpsideDowns Education Trust and the NZDSA
Wednesday, 20th October, 7pm – 8pm
Dave Hicks, Academic Programme Manager – Unitec
Theme: Wellbeing
Title: Relationships – Theories and Practicalities
Audience: Parents, whānau, professionals – all ages
Thursday,21st October, 12pm -1pm
Gretchen A. Good, PhD, Senior Lecturer in Rehabilitation and Disability Studies, Massey University and Jane Lee, MSW, Tutor in Rehabilitation and Disability Studies, Massey University
Theme: Wellbeing and Rights
Title: Parenting during a pandemic: Have any lessons been learned?
Audience: Parents, whānau, professionals – all ages
Thursday 21st October, 7pm – 8pm
Who: Dr Mark Sinclair, Private Practice
What: Managing your feelings
Audience: People with Down syndrome
Saturday, 23rd October, 10am – 11am
Kavita Krell, Director of Customer Experience for Down Syndrome Clinic to You (DSC2U)
Theme: Health
Title: DSC2U: An online personal care plan for caregivers and primary care physicians
Audience: Parents, whānau, professionals – all ages
Tuesday, 26th October, 7pm – 8pm
Andrea Simonlehner, Natural Equilibrium
Theme: Health
Title: Fussy Eaters
Audience: Parents, whānau, professionals – relevant for all ages
Wednesday, 27th October, 7pm – 8pm
Geraldine (Dina) Whatnell, Nurse Practitioner Mental Health and Addictions Service Palmerston North Hospital
Theme: Health
Title: The Golden Years: Ageing and Down Syndrome
Audience: Parents, whānau, professionals – focus on adults who are 25+
Thursday, 28th October, 7pm – 8pm
Who: Libby Hunsdale, Michael Holdsworth, Rochelle Waters, Amelia Eades, Luka Willems, Lily Harper, Carlos Biggemann, Bradley Lewis, Jacob Dombroski, Alfie Linn
What: Meet the Stars!
Audience: People with Down syndrome, but others are welcome to join
Saturday, 30th October, 10am – 11am
Dr Maree Kirk, Director, STPDS NZ
Theme: Education/Wellbeing
Title: Making visions work – Social skill development for identity across the lifespan
Audience: Parents, whānau, professionals with a focus on school-aged children
