From Data to Dignity 2026: new insights and evidence

From Data to Dignity 2026: new insights and evidence

This presentation will explore what the latest data tells us about the lives and experiences of people with intellectual disability in Aotearoa New Zealand. It will provide an update on From Data to Dignity, highlighting key changes and ongoing inequalities, before turning to Untapped Potential, IHC’s new research into employment and the barriers that prevent people with intellectual disability from fully participating in the workforce. The presentation will also preview forthcoming research into special schools, examining educational experiences and outcomes and what the data tells us about different schooling settings. Together, these three pieces of research provide a picture of where people with intellectual disability are being excluded and where there are opportunities to do things differently.

Presenter

Shara Turner
Senior Advocate, IHC

Biography

Shara is a dedicated advocate for the rights of intellectually disabled people, with a robust background in law and a passion for fostering inclusivity. Transitioning from her legal practice in Australia to her current advocacy work in New Zealand, Shara leverages her expertise in privacy law and human rights to drive meaningful societal change.
Shara’s legal career focused on navigating complex privacy law landscapes, advising clients on data protection, compliance, and safeguarding sensitive information. Her deep understanding of privacy legislation across Australia and New Zealand has equipped her to champion the rights of marginalised individuals effectively.
Now fully immersed in advocacy, Shara is committed to dismantling ableism and creating a society that values the strengths and contributions of intellectually disabled people. She is particularly passionate about using data to highlight systemic barriers and promote evidence-based solutions, ensuring that the voices of those she represents are heard and respected.

Theme: Research and advocacy

Audience: Parents, whānau and professionals