Focus: Improved Health - Improved Lives Audience: Parents, whānau and professionals This presentation will cover what the current level of knowledge is on Down Syndrome Regression Disorder (DSRD), including what it is and what to do about it.
Focus: Improved Supported Decision-Making-Improved Lives Audience: All This session will introduce you to Whaimana | Support My Decisions. Whaimana is a new website for decision-makers, supporters, and support agencies to learn about Supported Decision-Making. It has been built by the community in partnership with government, and is the first place to get started with supported decision-making.
Focus: Improved Data-Improved Lives Audience: Parents, whānau and professionals In 2023, IHC released a landmark report using New Zealand’s Integrated Data Infrastructure (IDI), a large government database holding information on nine million people. This research exposed stark inequities faced by people with intellectual disability, including much poorer health outcomes, higher rates of chronic illness, and […]
Focus: Improved Health-Improved Lives Audience: All In this presentation, Dr Brian Skotko reviews all of the questions and concerns that parents most often have about their sons and daughters with Down syndrome. He provides the answers and action steps, stemming from the latest clinical research on people with Down syndrome. Based on his clinical experience […]
Focus: Improved Education/Employment-Improved Lives Audience: Parents, whānau and professionals This presentation explores how education and employment systems can better support people with Down syndrome. Grant will highlight systemic barriers and share practical strategies to create equitable opportunities that value their strengths and contributions of the people we support. He will also spend time exploring ideas that […]
Meeting ID: 861 7365 3928Passcode: 776200
Meeting ID: 883 0045 4710Passcode: 720444
Focus: Improved Information-Improved Lives Audience: Parents, whānau and professionals Krissy is the National Librarian at the CCS Disability Action Library and Information Service. Krissy will talk about her passion in sharing information to empower people. Krissy will share the different accessible forms of information and talk about sharing information through community radio and podcast.
Focus: Improved Wellbeing and Resilience-Improved Lives Audience: All
Focus: Improved Education–Improved Lives Audience: Parents, whānau and professionals I’m presenting in my capacity as a parent, not in a professional capacity. My daughter Charlotte is in Year 4 at our local primary school. I’ll be sharing with you about this journey so far and how we work together with our school to ensure that we have […]
Focus: Improved Advocacy-Improved Lives Audience: Parents, whānau and professionals How do we transform lived experience into political influence? In her talk, Juliana Carvalho will share the story and strategy behind the Access Matters campaign, a grassroots movement working to make accessibility a political priority in Aotearoa New Zealand. Drawing on lessons from collective action, community organising, and […]
Focus: Improved Information-Improved Lives Audience: Parents, whānau and professionals A brief look at what the IHC Library is and how it can support parents, caregivers and anyone with an interest in intellectual disability.