Parents

Information and support for every stage of your parenting journey
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Parents usually know their children better than any other person, including health professionals and teachers, and need to trust their own instincts.

Parents are the best and most important advocates for their children, but like all parents, those who have children with Down syndrome need some help. In this section, we provide background information that may be helpful for parents at different stages of their child’s life; including health, early intervention, education, employment, and housing.

These sections include generic information, but also real-life examples of people around New Zealand who are on the same path as you.

It is vital that you reach out for help as any parent will need some level of support as they raise their children.

When you are having a difficult day, it is important to remember you are not alone. Thousands of families are on the same path, with the same concerns, hurdles and challenges as your family. The NZDSA and the wider Down syndrome community are always ready to help out and provide advice in a caring and non-judgemental way.

Most important of all, celebrate the milestones and cherish the joy your child brings to your family and your wider community.

Resources and information for parents

Employment – Mohit and Amelia Compass

Employment – Mohit and Amelia Compass

NZDSA Essence

NZDSA Essence

Young adults guide to flatting

Young adults guide to flatting

NZDSA & Kindred launch employment series

NZDSA & Kindred launch employment series

Employment – Kindred – Internship (Video)

Employment – Kindred – Internship (Video)

Employment – Downlights (Video)

Employment – Downlights (Video)

Employment – Abigail – WOOP (Video)

Employment – Abigail – WOOP (Video)

Employment – Gabrielle – Alvarium (Video)

Employment – Gabrielle – Alvarium (Video)

Employment – Spencer – Nandos (Video)

Employment – Spencer – Nandos (Video)

Employer Resource Kit (Video)

Employer Resource Kit (Video)

Down syndrome and Autism spectrum disorder (WEBINAR)

Down syndrome and Autism spectrum disorder (WEBINAR)

Strengthening my skill set (WEBINAR)

Strengthening my skill set (WEBINAR)

Coping with change (WEBINAR)

Coping with change (WEBINAR)

Mindfulness (WEBINAR)

Mindfulness (WEBINAR)

Music therapy at home (WEBINAR)

Music therapy at home (WEBINAR)

Wellbeing STRIVE and self-advocacy group (WEBINAR)

Wellbeing STRIVE and self-advocacy group (WEBINAR)

Strengthening ourselves through challenging times (WEBINAR)

Strengthening ourselves through challenging times (WEBINAR)

Lets talk attachment (WEBINAR)

Lets talk attachment (WEBINAR)

Managing your feelings (WEBINAR)

Managing your feelings (WEBINAR)

Down syndrome in New Zealand

Down syndrome in New Zealand

Bonus questions for politicians

Bonus questions for politicians

Priyanca Radhakrishnan, Minister for Disability Issues, Labour Party  By Sarah Paterson-Hamlin

Priyanca Radhakrishnan, Minister for Disability Issues, Labour Party By Sarah Paterson-Hamlin

Maureen Pugh, Spokesperson for Disability Issues, National Party  By Sarah Paterson-Hamlin

Maureen Pugh, Spokesperson for Disability Issues, National Party By Sarah Paterson-Hamlin

Toni Severin, Disability Issues Spokesperson, ACT Party By Sarah Paterson-Hamlin

Toni Severin, Disability Issues Spokesperson, ACT Party By Sarah Paterson-Hamlin

Jan Logie, Disability Spokesperson, Green Party  By Sarah Paterson-Hamlin

Jan Logie, Disability Spokesperson, Green Party By Sarah Paterson-Hamlin

Te Pāti Māori By Sarah Paterson-Hamlin

Te Pāti Māori By Sarah Paterson-Hamlin

Shona & Roderick: a lifelong relationship By Sarah Paterson-Hamlin

Shona & Roderick: a lifelong relationship By Sarah Paterson-Hamlin

Career Plan Workbook

Career Plan Workbook

Employers guide to hiring someone with Down syndrome

Employers guide to hiring someone with Down syndrome

Heart kids

Heart kids

Relive the highlights of our Virtual Conference

Relive the highlights of our Virtual Conference

The Golden Years: Ageing and Down syndrome (WEBINAR)

The Golden Years: Ageing and Down syndrome (WEBINAR)

Relationships – Theories and Practicalities (WEBINAR)

Relationships – Theories and Practicalities (WEBINAR)

Supported Decision Making – a Human Right (WEBINAR)

Supported Decision Making – a Human Right (WEBINAR)

Making visions work (WEBINAR)

Making visions work (WEBINAR)

Early literacy skills for children with Down syndrome (WEBINAR)

Early literacy skills for children with Down syndrome (WEBINAR)

Individual Education Plan – The capabilities approach (WEBINAR)

Individual Education Plan – The capabilities approach (WEBINAR)

Families urge to be at the heart of new Ministry for Disability

Families urge to be at the heart of new Ministry for Disability

Golden Years resource invaluable for families with Down syndrome

Golden Years resource invaluable for families with Down syndrome

Watch Speech and Language seminar for terrific tips

Watch Speech and Language seminar for terrific tips

Money Game makes paying bills fun

Money Game makes paying bills fun

Down syndrome and autism

Down syndrome and autism

Down syndrome and autism

Down syndrome and autism

Emotional farewell for Colin after 30 years at Hirepool

Emotional farewell for Colin after 30 years at Hirepool

How to make better decisions

How to make better decisions

NZDSA appeals against pre-natal discrimination

NZDSA appeals against pre-natal discrimination

Home alone

Home alone

Power of attorney

Power of attorney

IHC launches exciting new digital friendship platform

IHC launches exciting new digital friendship platform

Where will we live in the future?

Where will we live in the future?

Guide to hearing aids

Guide to hearing aids

How to navigate accidents and emergency care

How to navigate accidents and emergency care

Trailblazer Michael Holdsworth gets Queen’s Birthday honour

Trailblazer Michael Holdsworth gets Queen’s Birthday honour

Numicon kits available

Numicon kits available

Edward enjoying his new flat

Edward enjoying his new flat

Reforms to the Health System in New Zealand

Reforms to the Health System in New Zealand

Guide for living with coeliac disease

Guide for living with coeliac disease

Terrific new Easy Read Self Advocacy resource from DS International

Terrific new Easy Read Self Advocacy resource from DS International

New Guide for Carers He Aratohu mā ngā Kaitiaki

New Guide for Carers He Aratohu mā ngā Kaitiaki

PHAB creates unique and uplifting experience

PHAB creates unique and uplifting experience

New resource fills void for health professionals

New resource fills void for health professionals

Otago Down Syndrome Association flying high

Otago Down Syndrome Association flying high

How to navigate the maze of benefits

How to navigate the maze of benefits

Great videos to help people with learning disabilities

Great videos to help people with learning disabilities

Living with Down syndrome (PDF)

Living with Down syndrome (PDF)

Little One (PDF)

Little One (PDF)

Independence (PDF)

Independence (PDF)

Atlanto-axial-instability (PDF)

Atlanto-axial-instability (PDF)

Getting your first haircut (PDF)

Getting your first haircut (PDF)

Tips on lunchboxes (PDF)

Tips on lunchboxes (PDF)

Supporting appropriate behaviour (PDF)

Supporting appropriate behaviour (PDF)

Creating a Positive Hospital Experience (VID)

Creating a Positive Hospital Experience (VID)

Dress 2 Impress (VID + PDF)

Dress 2 Impress (VID + PDF)

Learn Through Play and Daily Routines (VID)

Learn Through Play and Daily Routines (VID)

Plan For The Future (VID+PDF)

Plan For The Future (VID+PDF)

Transition To School (VID+PDF)

Transition To School (VID+PDF)

Me and My Job at the design studio

Me and My Job at the design studio

Watch webinar about international education guidelines

Watch webinar about international education guidelines

Dementia in people with Down syndrome: What does the research tell us?

Dementia in people with Down syndrome: What does the research tell us?

Ageing DS population raises dementia issue

Ageing DS population raises dementia issue

Why the NZDSA needs your support

Why the NZDSA needs your support

Couch Conversations

Couch Conversations

New guidelines game changer for teachers

New guidelines game changer for teachers

Funding boost for high needs students

Funding boost for high needs students

Oral health major challenge for people with DS

Oral health major challenge for people with DS

Parent connections provide invaluable support

Parent connections provide invaluable support

Lucky Few’ Tattoo Bonanza in Auckland

Lucky Few’ Tattoo Bonanza in Auckland

 “We Decide” message from Down syndrome community

 “We Decide” message from Down syndrome community

New Zealand Warriors embrace Mark Dekker

New Zealand Warriors embrace Mark Dekker

Good support for decision making

Good support for decision making

Making Decisions in Adulthood

Making Decisions in Adulthood

Genuine inclusion key to successful education

Genuine inclusion key to successful education

Taking tiny steps in early learning

Taking tiny steps in early learning

Reaching their full potential in the early years

Reaching their full potential in the early years

My job – Roseanne  Zyskowski

My job – Roseanne  Zyskowski

My job – Peter Rees

My job – Peter Rees

My job  – Hannah Proctor

My job – Hannah Proctor

Young businessman gives back to charities

Young businessman gives back to charities

UNDER ATTACK – Is the Down syndrome community under threat? 

UNDER ATTACK – Is the Down syndrome community under threat? 

OPINION – I wish I had Down syndrome

OPINION – I wish I had Down syndrome

Going Flatting

Going Flatting

Down syndrome and Autistic Spectrum Disorder: A Look at What We Know

Down syndrome and Autistic Spectrum Disorder: A Look at What We Know

List of supported employment services

List of supported employment services

Chasing that dream job

Chasing that dream job

Why we decided to have a baby with Down syndrome 

Why we decided to have a baby with Down syndrome 

Speech therapy tips: 5 tips for pre-schoolers 

Speech therapy tips: 5 tips for pre-schoolers 

Easy as riding a bike…..

Easy as riding a bike…..

Gentle guide to help parents enjoy their children

Gentle guide to help parents enjoy their children

From sign to word for Chat 21

From sign to word for Chat 21

Joe Payton celebrates birthday in style

Joe Payton celebrates birthday in style

Logan’s journey to new happiness

Logan’s journey to new happiness

Keratoconus screening saves our son’s eyesight 

Keratoconus screening saves our son’s eyesight